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Finally Had Egd And Biopsy Today...few Questions

starrymazed

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starrymazed Rookie
starrymazed
Posted

I talked to my dr after the procedure and recieved a copy of the report itself. While I have to wait a week for the biopsy results, I did find out that I have GERD, a small hiatal herna, a gastric ulcer, and possibly gastritis. The report also says they biopsied for gastritis, duodentus, and to rule out H. pylori as well as celiacs disease. He told me my that my twenty years of taking over the counter pain medicne for headaches probably caused the ulcer, and not to take anymore. He also gave me Prilosec, and told me to go back to a gluten free diet. What realy does all this mean? When I asked if they suspected celiacs, he said they need to wait for the biopsy results. Are this many stomach issues normal? Does anyone have any similar experiences? I just don't know what to think. Celiacs? Or something else altogether? In any case, I am gluten free as of today, my stomach feels awful, and I am more confused than before. Any input would be GREATLY appreciated! Thank you so much for reading!

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starrymazed Rookie
starrymazed
Posted
  • Author

I forgot to mention that report also stated they suctioned 150cc of biliary fluid and that they biopsied a section with "scalloped mucosa". I thought that the scallpoed mucos was consistant with celiacs, but why would they suction fluid out? I am so overwhelmed right now. And the fact that there is a week wait for the biopsy results really stink. The worst is my stomach right now. I feel absolutely horrible :(

ravenwoodglass Mentor
ravenwoodglass
Posted

((((((((hugs)))))))) I hope you feel better soon. The report he gave you has strong indications of celiac but many doctors will not diagnose unless the villi are totally destroyed. It sounds like you have a smart GI who recognizes the celiac changes, I would agree with him that you should get on the diet. You also should not stop the diet if the biopsies are negative, there is a lot of small intestine there and biopsies are hit and miss. I am betting you will feel much better soon.

starrymazed Rookie
starrymazed
Posted
  • Author
((((((((hugs)))))))) I hope you feel better soon. The report he gave you has strong indications of celiac but many doctors will not diagnose unless the villi are totally destroyed. It sounds like you have a smart GI who recognizes the celiac changes, I would agree with him that you should get on the diet. You also should not stop the diet if the biopsies are negative, there is a lot of small intestine there and biopsies are hit and miss. I am betting you will feel much better soon.

Thank you. I am feeling pretty crappy today, with my stomach and muscle aches. I am not sure, but I would imagine it has something to do with the EGD and the biopsies. Thank you for your response.

ravenwoodglass Mentor
ravenwoodglass
Posted
Thank you. I am feeling pretty crappy today, with my stomach and muscle aches. I am not sure, but I would imagine it has something to do with the EGD and the biopsies. Thank you for your response.

That is a possibility. I had a hard time after mine cause my body really does not like Versed and my doctor gave me a great deal of it, more than he should have in my opinion since there was no anesthesiologist there. I counted at least 8 'pushes' and still wasn't out. He told me I was on the next visit though, till I repeated every word he had said. That shut him up.

It can take a couple of days for the after effects to go away for some of us. If your discomfort increase or does not go away you may want to let him know. Pamper yourself and take it easy today if you can.

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      how much gluten do I need to eat before blood tests?

      By catnapt · Posted

      oh that's interesting... it's hard to say for sure but it has *seemed* like oats might be causing me some vague issues in the past few months. It's odd that I never really connect specific symptoms to foods, it's more of an all over feeling of unwellness after  eating them.  If it happens a few times after eating the same foods- I cut back or avoid them. for this reason I avoid dairy and eggs.  So far this has worked well for me.  oh, I have some of Bob's Red Mill Mighty Tasty Hot cereal and I love it! it's hard to find but I will be looking for more.  for the next few weeks I'm going to be concentrating on whole fresh fruits and veggies and beans and nuts and seeds. I'll have to find out if grains are truly necessary in our diet. I buy brown rice pasta but only eat that maybe once a month at most. Never liked quinoa. And all the other exotic sounding grains seem to be time consuming to prepare. Something to look at later. I love beans and to me they provide the heft and calories that make me feel full for a lot longer than a big bowl of broccoli or other veggies. I can't even tolerate the plant milks right now.  I have reached out to the endo for guidance regarding calcium intake - she wants me to consume 1000mgs from food daily and I'm not able to get to more than 600mgs right now.  not supposed to use a supplement until after my next round of testing for hyperparathyroidism.   thanks again- you seem to know quite a bit about celiac.  
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