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Guest imsohungry

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Guest imsohungry

Hi everyone,

I haven't posted much recently. I must confess that I have fallen away from staying gluten-free recently...I am just so stressed trying to finish my Master's program. :blink: However, I learned some news this week that really opened my eyes. My mother was diagnosed Friday with colon cancer and all kind of things wrong in her intestines. She has been sick for a long time. "IBS"..."Spastic Colon"...etc.

When I found out about six months ago that I had a dx of Celiac, I told my mom to get tested, but she did not feel that she needed to. I told her it was genetic and all of my other auto-immune diseases came from her side of the family (this isn't an accusation...the women in her family ALL have auto-immune issues). Anyway, she finally got to feeling so sick that she had to go to the doctor; they did two endoscopies and found a whole list of problems in her intestines; including the cancer. I am trying not to worry or dwell on it, but both her mother and father passed away from cancer.

I guess I just need some support. HAS ANYONE HEARD OF CELIAC DISEASE BEING RELATED TO COLON CANCER? She promised me that after her surgery she will meet with her doctor and discuss getting tested for Celiac. Thank you for your support and knowledge. I'm so stressed and scared. -Julie :(


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Merika Contributor

Hi Julie,

My thoughts go out to you and your mom. I'm not 100% sure, but yes i believe untreated celiac can lead to colon cancer.

Which is one of the reasons (here's my rant :) ) of why *you should be eating gluten-free*. You will finish your master's with less stress, more energy, and more clear-headedness if you stick to being gluten-free. Really :) I know how stressful and time-consuming grad school is (btdt), and the temptation to just order out. Get a rice cooker, which you can set in the morning to be done just when you get home, go to the grocery store and buy some cooked meat or cans of beans, frozen veggies already chopped, fresh fruit, and you'll be set.

Also, if anyone wants menu-planning you can get online menus (pretty easy to adapt to gluten-free) - there's a link on www.flylady.net to "saving dinner". Not all the recipes may be to your taste, but some are great, and she has a grocery menu, simple recipes, and presto you're done. Or just make a really big soup once a week and eat it with varied spices/beans/meats each night (or lunch). I hate to think about menus and cooking too.

Best wishes to your family, and good luck with gluten-free eating.....

Merika

tarnalberry Community Regular

Absolutely. Untreated celiac disease causes a very large increase in risk for all sorts of intestinal cancers. Do some searching around pubmed for the numbers, if you'd like.

As Merika noted, it's just one of the reasons why it's VITAL to your LIFE that you remain COMPLETELY gluten-free. I know it can be frustrating, and a hassle, but when you get a few quick things that satisfy you under your belt, it'll help. (For me, those are soups - if I'm going to be home to stir - or trail mix or rice cakes w/ peanut butter or fruit.)

Guest imsohungry

Thank you both for your replies. I know you are right about staying gluten-free. My mother's diagnosis this week reminded me that taking care of myself is more important than school. I just need to learn to be gluten-free efficiently. I'm so incredibly stressed right now; I'm at work 60 hours a week (completing my internship as well as my "real job"), taking two classes at school, dealing with seizures, lupus, and celiac, and now worried over my sweet mom. This week I had a seizure and busted my eye...I had to go to the ER and get it closed up. It has just been one of those weeks. :unsure:

I know that I should be strict on my gluten-free diet. I will try to do better. Thank you for letting me vent and thank you for your support. -Julie :):(:blink:

Merika Contributor

Hi Julie,

I just remembered that Amy's brand at health food stores now has a few frozen dinners that are gluten-free. I tried a lasagna (didn't love it, but it was edible - but I'm not really a frozen dinner lover) and there was another one too....There are also gluten-free pizza crusts at Whole Foods that you just throw in the oven with whatever toppings you like, peanut butter & jelly on rice bread...maybe check out the food forum here for more ideas.

It sounds like you are doing a million things! Be healthy, stay strong, and get in the kitchen, lol :)

Merika

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    • trents
      @BlessedinBoston, it is possible that in Canada the product in question is formulated differently than in the USA or at least processed in in a facility that precludes cross contamination. I assume from your user name that you are in the USA. And it is also possible that the product meets the FDA requirement of not more than 20ppm of gluten but you are a super sensitive celiac for whom that standard is insufficient. 
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    • knitty kitty
      @Jmartes71, I understand your frustration and anger.  I've been in a similar situation where no doctor took me seriously, accused me of making things up, and eventually sent me home to suffer alone.   My doctors did not recognize nutritional deficiencies.  Doctors are trained in medical learning institutions that are funded by pharmaceutical companies.  They are taught which medications cover up which symptoms.  Doctors are required to take twenty  hours of nutritional education in seven years of medical training.  (They can earn nine hours in Nutrition by taking a three day weekend seminar.)  They are taught nutritional deficiencies are passe' and don't happen in our well fed Western society any more.  In Celiac Disease, the autoimmune response and inflammation affects the absorption of ALL the essential vitamins and minerals.  Correcting nutritional deficiencies caused by malabsorption is essential!  I begged my doctor to check my Vitamin D level, which he did only after making sure my insurance would cover it.  When my Vitamin D came back extremely low, my doctor was very surprised, but refused to test for further nutritional deficiencies because he "couldn't make money prescribing vitamins.". I believe it was beyond his knowledge, so he blamed me for making stuff up, and stormed out of the exam room.  I had studied Nutrition before earning a degree in Microbiology.  I switched because I was curious what vitamins from our food were doing in our bodies.  Vitamins are substances that our bodies cannot manufacture, so we must ingest them every day.  Without them, our bodies cannot manufacture life sustaining enzymes and we sicken and die.   At home alone, I could feel myself dying.  It's an unnerving feeling, to say the least, and, so, with nothing left to lose, I relied in my education in nutrition.  My symptoms of Thiamine deficiency were the worst, so I began taking high dose Thiamine.  I had health improvement within an hour.  It was magical.  I continued taking high dose thiamine with a B Complex, magnesium. and other essential nutrients.  The health improvements continued for months.  High doses of thiamine are required to correct a thiamine deficiency because thiamine affects every cell and mitochondria in our bodies.    A twenty percent increase in dietary thiamine causes an eighty percent increase in brain function.  The cerebellum of the brain is most affected.  The cerebellum controls things we don't have to consciously have to think about, like digestion, balance, breathing, blood pressure, heart rate, hormone regulation, and many more.  Thiamine is absorbed from the digestive tract and sent to the most important organs like the brain and the heart.  This leaves the digestive tract depleted of Thiamine and symptoms of Gastrointestinal Beriberi, a thiamine deficiency localized in the digestive system, begin to appear.  Symptoms of Gastrointestinal Beriberi include anxiety, depression, chronic fatigue, headaches, Gerd, acid reflux, gas, slow stomach emptying, gastroparesis, bloating, diarrhea and/or constipation, incontinence, abdominal pain, IBS,  SIBO, POTS, high blood pressure, heart rate changes like tachycardia, difficulty swallowing, Barrett's Esophagus, peripheral neuropathy, and more. Doctors are only taught about thiamine deficiency in alcoholism and look for the classic triad of symptoms (changes in gait, mental function, and nystagmus) but fail to realize that gastrointestinal symptoms can precede these symptoms by months.  All three classic triad of symptoms only appear in fifteen percent of patients, with most patients being diagnosed with thiamine deficiency post mortem.  I had all three but swore I didn't drink, so I was dismissed as "crazy" and sent home to die basically.   Yes, I understand how frustrating no answers from doctors can be.  I took OTC Thiamine Hydrochloride, and later thiamine in the forms TTFD (tetrahydrofurfuryl disulfide) and Benfotiamine to correct my thiamine deficiency.  I also took magnesium, needed by thiamine to make those life sustaining enzymes.  Thiamine interacts with each of the other B vitamins, so the other B vitamins must be supplemented as well.  Thiamine is safe and nontoxic even in high doses.   A doctor can administer high dose thiamine by IV along with the other B vitamins.  Again, Thiamine is safe and nontoxic even in high doses.  Thiamine should be given if only to rule Gastrointestinal Beriberi out as a cause of your symptoms.  If no improvement, no harm is done. Share the following link with your doctors.  Section Three is especially informative.  They need to be expand their knowledge about Thiamine and nutrition in Celiac Disease.  Ask for an Erythrocyte Transketolace Activity test for thiamine deficiency.  This test is more reliable than a blood test. Thiamine, gastrointestinal beriberi and acetylcholine signaling.  https://pmc.ncbi.nlm.nih.gov/articles/PMC12014454/ Best wishes!
    • Jmartes71
      I have been diagnosed with celiac in 1994, in remission not eating wheat and other foods not to consume  my household eats wheat.I have diagnosed sibo, hernia ibs, high blood pressure, menopause, chronic fatigue just to name a few oh yes and Barrett's esophagus which i forgot, I currently have bumps in back of my throat, one Dr stated we all have bumps in the back of our throat.Im in pain.Standford specialist really dismissed me and now im really in limbo and trying to get properly cared for.I found a new gi and new pcp but its still a mess and medical is making it look like im a disability chaser when Im actively not well I look and feel horrible and its adding anxiety and depression more so.Im angery my condition is affecting me and its being down played 
    • marion wheaton
      Wondering if anyone knows whether Lindt chocolate balls are gluten free. The Lindt Canadian website says yes but the Lindt USA website says no. The information is a bit confusing.
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