Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Please, Please Read

Guest imsohungry

By Guest imsohungry
in Coping with Celiac Disease

Recommended Posts

Guest imsohungry
Guest imsohungry
Posted

Hi everyone,

I haven't posted much recently. I must confess that I have fallen away from staying gluten-free recently...I am just so stressed trying to finish my Master's program. :blink: However, I learned some news this week that really opened my eyes. My mother was diagnosed Friday with colon cancer and all kind of things wrong in her intestines. She has been sick for a long time. "IBS"..."Spastic Colon"...etc.

When I found out about six months ago that I had a dx of Celiac, I told my mom to get tested, but she did not feel that she needed to. I told her it was genetic and all of my other auto-immune diseases came from her side of the family (this isn't an accusation...the women in her family ALL have auto-immune issues). Anyway, she finally got to feeling so sick that she had to go to the doctor; they did two endoscopies and found a whole list of problems in her intestines; including the cancer. I am trying not to worry or dwell on it, but both her mother and father passed away from cancer.

I guess I just need some support. HAS ANYONE HEARD OF CELIAC DISEASE BEING RELATED TO COLON CANCER? She promised me that after her surgery she will meet with her doctor and discuss getting tested for Celiac. Thank you for your support and knowledge. I'm so stressed and scared. -Julie :(

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Merika Contributor
Merika
Posted

Hi Julie,

My thoughts go out to you and your mom. I'm not 100% sure, but yes i believe untreated celiac can lead to colon cancer.

Which is one of the reasons (here's my rant :) ) of why *you should be eating gluten-free*. You will finish your master's with less stress, more energy, and more clear-headedness if you stick to being gluten-free. Really :) I know how stressful and time-consuming grad school is (btdt), and the temptation to just order out. Get a rice cooker, which you can set in the morning to be done just when you get home, go to the grocery store and buy some cooked meat or cans of beans, frozen veggies already chopped, fresh fruit, and you'll be set.

Also, if anyone wants menu-planning you can get online menus (pretty easy to adapt to gluten-free) - there's a link on www.flylady.net to "saving dinner". Not all the recipes may be to your taste, but some are great, and she has a grocery menu, simple recipes, and presto you're done. Or just make a really big soup once a week and eat it with varied spices/beans/meats each night (or lunch). I hate to think about menus and cooking too.

Best wishes to your family, and good luck with gluten-free eating.....

Merika

tarnalberry Community Regular
tarnalberry
Posted

Absolutely. Untreated celiac disease causes a very large increase in risk for all sorts of intestinal cancers. Do some searching around pubmed for the numbers, if you'd like.

As Merika noted, it's just one of the reasons why it's VITAL to your LIFE that you remain COMPLETELY gluten-free. I know it can be frustrating, and a hassle, but when you get a few quick things that satisfy you under your belt, it'll help. (For me, those are soups - if I'm going to be home to stir - or trail mix or rice cakes w/ peanut butter or fruit.)

Guest imsohungry
Guest imsohungry
Posted

Thank you both for your replies. I know you are right about staying gluten-free. My mother's diagnosis this week reminded me that taking care of myself is more important than school. I just need to learn to be gluten-free efficiently. I'm so incredibly stressed right now; I'm at work 60 hours a week (completing my internship as well as my "real job"), taking two classes at school, dealing with seizures, lupus, and celiac, and now worried over my sweet mom. This week I had a seizure and busted my eye...I had to go to the ER and get it closed up. It has just been one of those weeks. :unsure:

I know that I should be strict on my gluten-free diet. I will try to do better. Thank you for letting me vent and thank you for your support. -Julie :):(:blink:

Merika Contributor
Merika
Posted

Hi Julie,

I just remembered that Amy's brand at health food stores now has a few frozen dinners that are gluten-free. I tried a lasagna (didn't love it, but it was edible - but I'm not really a frozen dinner lover) and there was another one too....There are also gluten-free pizza crusts at Whole Foods that you just throw in the oven with whatever toppings you like, peanut butter & jelly on rice bread...maybe check out the food forum here for more ideas.

It sounds like you are doing a million things! Be healthy, stay strong, and get in the kitchen, lol :)

Merika

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. knitty kitty
      - knitty kitty replied to Charlie1946's topic in Related Issues & Disorders
      11

      Severe severe mouth pain

      @Charlie1946, There are many vitamin deficiencies associated with PCOS and Celiac disease and mental health issues. The malabsorption of nutrients caused by Celiac can exacerbate PCOS and mental health issues. Vitamin B 3 Niacin (the kind that causes flushing) improves sebaceous hyperplasia and PCOS. (300 mg/day) Vitamin B 1 Thiamine improves...
    2. cristiana
      - cristiana replied to Charlie1946's topic in Related Issues & Disorders
      11

      Severe severe mouth pain

      Hi @Charlie1946 I am so sorry to hear you are suffering with this problem. Just a few other thoughts. I had debilitating anxiety prior to my diagnosis. I was never admitted to a hospital but thankfully had a lot of support from friends and family, and found a couple of publications contained really helpful advice: for depression, The Depression...
    3. trents
      - trents replied to Charlie1946's topic in Related Issues & Disorders
      11

      Severe severe mouth pain

      @Charlie1946, as an alternative to milk-based protein shakes, let me suggest whey protein. Whey and casein are the two main proteins found in milk but whey doesn't cause issues like casein can for celiacs. Concerning your question about celiac safe mental health facilities, unfortunately, healthcare facilities in general do not have good reputations...
    4. Charlie1946
      - Charlie1946 replied to Charlie1946's topic in Related Issues & Disorders
      11

      Severe severe mouth pain

      @knitty kitty are you kidding? I had no idea about the casein!! No one ever mentioned that to me at all!! I basically live off that milk! I have also wondered if I have Sjorgen's , but I haven't been to the doctor yet. Can you get the TTFD over the counter? I do have dysphasia and I have lysine I just haven't been good about taking it. I am so glad I found...
    5. Charlie1946
      - Charlie1946 replied to Charlie1946's topic in Related Issues & Disorders
      11

      Severe severe mouth pain

      @trents, Hi, thank you for the reply, I used to be pretty good at taking my vitamins and supplements, because I also have PCOS, I have Barrett's esophagus, it's just too expensive to have it stretched all the time, and I also get kinda panicked when trying to swallow pills because of getting choked a lot before. I think maybe the thrush made it worse, I...
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      132,901
    • Most Online (within 30 mins)
      7,748
    kharvey
    Newest Member
    kharvey
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • knitty kitty
      Severe severe mouth pain

      By knitty kitty · Posted

      @Charlie1946, There are many vitamin deficiencies associated with PCOS and Celiac disease and mental health issues.  The malabsorption of nutrients caused by Celiac can exacerbate PCOS and mental health issues. Vitamin B 3 Niacin (the kind that causes flushing) improves sebaceous hyperplasia and PCOS. (300 mg/day) Vitamin B 1 Thiamine improves dysphagia, and with Omega Threes, Sjogren's, and PCOS.     (300 mg/day) The other B vitamins are needed as well because they all work together like an orchestra.   The fat soluble vitamins A, D, E, and K, are needed as well.  Low Vitamin D is common in both PCOS and Celiac and depression.   Deficiencies in Niacin Thiamine, Cobalamine B12, Folate B 9, Vitamin C, and Vitamin D can cause mental health issues.   I wish doctors would check for nutritional deficiencies and gastrointestinal issues before prescribing antidepressants.  My mental health issues didn't get better until my vitamin deficiencies were corrected and a gluten free keto/paleo diet adopted.   Though blood tests are not really accurate, you may want to get tested for deficiencies before supplementing, otherwise you'll be measuring the vitamins you've taken and blood tests will show blood levels that are too high. Yes, Thiamine TTFD and the other vitamins are available over-the-counter.  A B Complex with additional Thiamine TTFD and Niacin made a big difference to my health.  I follow a paleo diet, and make sure I get Omega Threes.  I took high dose Vitamin D to correct my deficiency there.   I've run through the mental health gamut if you would like to talk about your issues.  You can personal message us if you would be more comfortable.   Interesting Reading: Nutritional and herbal interventions for polycystic ovary syndrome (PCOS): a comprehensive review of dietary approaches, macronutrient impact, and herbal medicine in management https://pmc.ncbi.nlm.nih.gov/articles/PMC12049039/
    • cristiana
      Severe severe mouth pain

      By cristiana · Posted

      Hi @Charlie1946 I am so sorry to hear you are suffering with this problem.   Just a few other thoughts.  I had debilitating anxiety prior to my diagnosis.  I was never admitted to a hospital but thankfully had a lot of support from friends and family, and found a couple of publications contained really helpful advice:  for depression, The Depression Cure: The Six-Step Programme to Beat Depression Without Drugs by Dr Steve Llardi, and for debilitating anxiety, At Last A Life by Paul David.  Both can be ordered online, there is also a website for the latter.  If you are deficient in or have low iron or B12 this can cause or worsen mental health issues.  I am sure my own issues were caused by long-term deficiencies.   If you can get your blood tested, it would be useful.  In the case of iron, make sure you only supplement if you have a deficiency, and levels can be monitored, as too much iron can be dangerous. If you have burning mouth issues, very bad TMJ or neuralgia,  I understand the pain can be managed by the use of a certain class of medication like amitriptyline, which is also used to treat depression.  But there again, it is possible with the correct diet and supplementation these issues might improve? I do hope that you find relief soon. Cristiana
    • trents
      Severe severe mouth pain

      By trents · Posted

      @Charlie1946, as an alternative to milk-based protein shakes, let me suggest whey protein. Whey and casein are the two main proteins found in milk but whey doesn't cause issues like casein can for celiacs. Concerning your question about celiac safe mental health facilities, unfortunately, healthcare facilities in general do not have good reputations for being celiac safe. Most celiacs find that they need to depend on family members to advocate for them diligently or bring in food from the outside. Training of staff is inconsistent and there is the issue of turnover and also cross contamination.
    • Charlie1946
      Severe severe mouth pain

      By Charlie1946 · Posted

      @knitty kitty are you kidding?  I had no idea about the casein!! No one ever mentioned that to me at all!! I basically live off that milk! I have also wondered if I have Sjorgen's , but I haven't been to the doctor yet. Can you get the TTFD over the counter? I do have dysphasia and I have lysine I just haven't been good about taking it. I am so glad I found this group and all of you with all this helpful information!! I thought I was going crazy!!  I have sebaceous hyperplasia too- is that related to Celiac?  OH , and I wanted to ask if there is a site where I could find information on mental health issues , with celiac safe facilities??
    • Charlie1946
      Severe severe mouth pain

      By Charlie1946 · Posted

      @trents, Hi, thank you for the reply, I used to be pretty good at taking my vitamins and supplements, because I also have PCOS, I have Barrett's esophagus, it's just too expensive to have it stretched all the time, and I also get kinda panicked when trying to swallow pills because of getting choked a lot before.  I think maybe the thrush made it worse, I just can't figure out why I can't get it to go away 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.