Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Please, Please Read


Guest imsohungry

Recommended Posts

Guest imsohungry

Hi everyone,

I haven't posted much recently. I must confess that I have fallen away from staying gluten-free recently...I am just so stressed trying to finish my Master's program. :blink: However, I learned some news this week that really opened my eyes. My mother was diagnosed Friday with colon cancer and all kind of things wrong in her intestines. She has been sick for a long time. "IBS"..."Spastic Colon"...etc.

When I found out about six months ago that I had a dx of Celiac, I told my mom to get tested, but she did not feel that she needed to. I told her it was genetic and all of my other auto-immune diseases came from her side of the family (this isn't an accusation...the women in her family ALL have auto-immune issues). Anyway, she finally got to feeling so sick that she had to go to the doctor; they did two endoscopies and found a whole list of problems in her intestines; including the cancer. I am trying not to worry or dwell on it, but both her mother and father passed away from cancer.

I guess I just need some support. HAS ANYONE HEARD OF CELIAC DISEASE BEING RELATED TO COLON CANCER? She promised me that after her surgery she will meet with her doctor and discuss getting tested for Celiac. Thank you for your support and knowledge. I'm so stressed and scared. -Julie :(


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Merika Contributor

Hi Julie,

My thoughts go out to you and your mom. I'm not 100% sure, but yes i believe untreated celiac can lead to colon cancer.

Which is one of the reasons (here's my rant :) ) of why *you should be eating gluten-free*. You will finish your master's with less stress, more energy, and more clear-headedness if you stick to being gluten-free. Really :) I know how stressful and time-consuming grad school is (btdt), and the temptation to just order out. Get a rice cooker, which you can set in the morning to be done just when you get home, go to the grocery store and buy some cooked meat or cans of beans, frozen veggies already chopped, fresh fruit, and you'll be set.

Also, if anyone wants menu-planning you can get online menus (pretty easy to adapt to gluten-free) - there's a link on www.flylady.net to "saving dinner". Not all the recipes may be to your taste, but some are great, and she has a grocery menu, simple recipes, and presto you're done. Or just make a really big soup once a week and eat it with varied spices/beans/meats each night (or lunch). I hate to think about menus and cooking too.

Best wishes to your family, and good luck with gluten-free eating.....

Merika

tarnalberry Community Regular

Absolutely. Untreated celiac disease causes a very large increase in risk for all sorts of intestinal cancers. Do some searching around pubmed for the numbers, if you'd like.

As Merika noted, it's just one of the reasons why it's VITAL to your LIFE that you remain COMPLETELY gluten-free. I know it can be frustrating, and a hassle, but when you get a few quick things that satisfy you under your belt, it'll help. (For me, those are soups - if I'm going to be home to stir - or trail mix or rice cakes w/ peanut butter or fruit.)

Guest imsohungry

Thank you both for your replies. I know you are right about staying gluten-free. My mother's diagnosis this week reminded me that taking care of myself is more important than school. I just need to learn to be gluten-free efficiently. I'm so incredibly stressed right now; I'm at work 60 hours a week (completing my internship as well as my "real job"), taking two classes at school, dealing with seizures, lupus, and celiac, and now worried over my sweet mom. This week I had a seizure and busted my eye...I had to go to the ER and get it closed up. It has just been one of those weeks. :unsure:

I know that I should be strict on my gluten-free diet. I will try to do better. Thank you for letting me vent and thank you for your support. -Julie :):(:blink:

Merika Contributor

Hi Julie,

I just remembered that Amy's brand at health food stores now has a few frozen dinners that are gluten-free. I tried a lasagna (didn't love it, but it was edible - but I'm not really a frozen dinner lover) and there was another one too....There are also gluten-free pizza crusts at Whole Foods that you just throw in the oven with whatever toppings you like, peanut butter & jelly on rice bread...maybe check out the food forum here for more ideas.

It sounds like you are doing a million things! Be healthy, stay strong, and get in the kitchen, lol :)

Merika

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Florence Lillian replied to Florence Lillian's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      4

      Gluten-Mimicking Proteins that can affect some Celiac individuals.

    2. - trents replied to HectorConvector's topic in Related Issues & Disorders
      326

      Terrible Neurological Symptoms

    3. - knitty kitty replied to HectorConvector's topic in Related Issues & Disorders
      326

      Terrible Neurological Symptoms

    4. - Scott Adams replied to Florence Lillian's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      4

      Gluten-Mimicking Proteins that can affect some Celiac individuals.

    5. - Scott Adams replied to HectorConvector's topic in Related Issues & Disorders
      326

      Terrible Neurological Symptoms

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,625
    • Most Online (within 30 mins)
      7,748

    marianmanu
    Newest Member
    marianmanu
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • Florence Lillian
      Hi Scott: A wonderful, thoughtful explanation. Controlled human studies would be very interesting and quite informative. I have been eliminating certain foods and have narrowed it down considerably. Having other autoimmune diseases along with Celiac has become rather challenging. I appreciate your input, thank you. All the best, Florence
    • trents
      Hector, have you had a follow-up biopsy to check the progress of small bowel villous lining recovery after going gluten free?
    • knitty kitty
      @HectorConvector, Please try adding Niacin to your supplements.  Low Niacin has a connection with suicidal ideation.  Been here, done that.  Niacin made me feel better mentally and physically.  Omega Three fats will help, too. For pain, Thiamine, B12 and, Pyridoxine B6 have been shown to have analgesic effects when taken together.  I know this works because I've cracked some vertebrae and this combination relieves the pain.  I was prescribed opioids, but couldn't function or poop, so... I can highly recommend these vitamins for pain relief.   I adopted a paleo diet, the Autoimmune Protocol Diet which has been shown to improve intestinal health.  Improving intestinal health improves mental health because of the gut brain-axis.  Important neurotransmitter Serotonin is made in the digestive system.   Please Read... Association between dietary niacin intake and suicidal ideation: mediating role of C-reactive protein https://pubmed.ncbi.nlm.nih.gov/40859220/ Mechanisms of action of vitamin B1 (thiamine), B6 (pyridoxine), and B12 (cobalamin) in pain: a narrative review https://pubmed.ncbi.nlm.nih.gov/35156556/
    • Scott Adams
      Hi Florence, thank you for clarifying — and no worries at all about late-night writing. I appreciate you explaining that you’re specifically asking about gluten cross-reactivity, particularly the proposed immune cross-reaction between alpha-gliadin and certain non-gluten foods on a gluten-free diet. It’s an interesting and often confusing topic. The Vojdani & Tarash paper you mentioned did report antibody cross-reactivity in laboratory settings, which has led to a lot of discussion in the gluten-free community. However, it’s important to note that in-vitro antibody reactions (in a lab dish) don’t always translate into clinically meaningful reactions inside the human body. At this point, major celiac research centers generally conclude that true immune cross-reactivity to non-gluten foods in people with celiac disease hasn’t been clearly demonstrated in well-controlled human studies. That said, many individuals do report symptoms with foods like corn, dairy, oats, or others, and those reactions can absolutely be real — they just may involve different mechanisms, such as food intolerance, FODMAP sensitivity, separate immune responses, or individual gut permeability differences rather than molecular mimicry of gliadin specifically. If certain foods consistently trigger symptoms for you, keeping a structured food and symptom log and discussing it with a knowledgeable gastroenterologist or dietitian may help clarify patterns. It’s a nuanced area, and your question is thoughtful — we just have to separate what’s biologically plausible in theory from what’s been conclusively demonstrated in patients.
    • Scott Adams
      I’m really sorry you’re dealing with such intense burning pain right now. When symptoms get that overwhelming, it can feel unbearable and even trigger really dark thoughts, and that’s a sign of just how much you’ve been carrying — not a sign of weakness. It makes sense that you’d want to go back to a lower-carb, meat-and-vegetable approach if that’s helped reduce symptoms before; sometimes dialing things back to simple, whole foods can calm inflammation or gut irritation. At the same time, your safety and mental health matter just as much as the physical symptoms. If the suicidal thoughts are feeling strong or hard to control, please consider reaching out for immediate support — in the U.S., you can call or text 988 for the Suicide & Crisis Lifeline, or go to the nearest emergency room if you feel at risk. You don’t have to handle this alone. It may also be worth checking in with your doctor soon to review what’s changed and see if there are adjustments or treatments that could ease the burning pain more effectively. You deserve relief, and you deserve support while you figure this out.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.