Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Growth Problem?


mom2lucas

Recommended Posts

mom2lucas Rookie

Hi! My 2-year-old son has been on the gluten-free diet for 2 months now after being diagnosed a celiac through a biopsy. He has gained 6 pounds in these 2 months which put him back on the 95th weight percentile, from where he had started to fall about 8 months ago. However, he hasn't grown a single inch, and is now on the 50th height percentile. My question is: after the gluten-free diet, is it normal for the height growth to take its time to gain speed? I thought that by now with his very obvious weight gain, he had grown, but we checked it yesterday and he hasn't. He has always been a tall baby, and we parents are tall, so I'm starting to worry that he might have something else causing this growth delay. Anyone has ever experienced this with your celiac toddlers? Thanks for any input.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Ridgewalker Contributor

Hi there! I'm mom to a Lucas as well! (Mine is 7. :D )

I have a few questions that may help clarify the situation...

How long has it actually been since he gained any height? If it's only been a few months, this is normal even for a child without Celiac.

Has he gained NO height, or only a tiny bit? Even a 1/4 of an inch counts.

Does he look well-proportioned? Ignore the charts for a moment, and look at your son-- does his weight seem to fit his height and bone structure?

If he has always been a tall baby, even before he was diagnosed, that is excellent. Dropping to the 50th percentile shouldn't be anything to worry about-- since 50th percentile is average for the nation. In other words, I'm not sure I would consider this to be a growth delay (unless it's a been a LONG time since he's gained no height.) What was his doctor's reaction to the height measurement?

Kids go through fast and slow periods in their growth, and that's normal. Last year, my Lucas was the tallest kid in his kindergarten class. This year, there were 4 or 5 kids that were taller than him.

I hope this helps!

mom2lucas Rookie
Hi there! I'm mom to a Lucas as well! (Mine is 7. :D )

I have a few questions that may help clarify the situation...

How long has it actually been since he gained any height? If it's only been a few months, this is normal even for a child without Celiac.

Has he gained NO height, or only a tiny bit? Even a 1/4 of an inch counts.

Does he look well-proportioned? Ignore the charts for a moment, and look at your son-- does his weight seem to fit his height and bone structure?

If he has always been a tall baby, even before he was diagnosed, that is excellent. Dropping to the 50th percentile shouldn't be anything to worry about-- since 50th percentile is average for the nation. In other words, I'm not sure I would consider this to be a growth delay (unless it's a been a LONG time since he's gained no height.) What was his doctor's reaction to the height measurement?

Kids go through fast and slow periods in their growth, and that's normal. Last year, my Lucas was the tallest kid in his kindergarten class. This year, there were 4 or 5 kids that were taller than him.

I hope this helps!

Thanks for your reply. He hasn't grown a thing since December- his celiac sintoms and ordeal began in January. He does look fit, even a little plump having gained 6 pounds in 2 months, but it's just that I would have expected that since he was so obviously gaining weight, meaning his gut was healing, I thought he would have grown something... his GastroPedi says she's not worried as bones take a longer time to get back on track, but his Pediatrician seemed a little worried, told me to get back to her if he didn't grow by September. That's what got me all stressed up about this... :(

Ridgewalker Contributor
Thanks for your reply. He hasn't grown a thing since December- his celiac sintoms and ordeal began in January. He does look fit, even a little plump having gained 6 pounds in 2 months, but it's just that I would have expected that since he was so obviously gaining weight, meaning his gut was healing, I thought he would have grown something... his GastroPedi says she's not worried as bones take a longer time to get back on track, but his Pediatrician seemed a little worried, told me to get back to her if he didn't grow by September. That's what got me all stressed up about this... :(

Remember that I'm no doctor, "just" a mom-- but I'm betting he's got a nice big growth spurt coming up really soon! Try to take a breath and not worry until it's time to worry. (I know that's easier said than done!)

Keep feeding him good, healthy foods, and put him on a gluten-free children's multivitamin, if you haven't already.

If he had a lot of intestinal damage, then even as his gut heals, it's going to take time for his body to catch up. A very important thing to remember is that it can't take care of everything at once. I've learned that the body can and will prioritize when it has multiple jobs to do. Sometimes the body's priorities make sense to us, and sometimes they don't.

There's a lot of healing going on in his body right now, and to me, the fact that he's gaining weight so well seems like an excellent sign that his body is doing its work!

Keep asking questions- of us, and of your son's doctors. Don't hesitate to call them with questions, too! That's what they're there for, and I think sometimes we get these weird ideas that we shouldn't "bother" our doctors too much. Forget about that! Keep them in the loop, and ask them anything you're wondering about.

I hope you stick around the forum, this is an excellent place to learn about Celiac and the gluten-free diet.

Darn210 Enthusiast

My opinion . . . I don't think you need to worry yet. It's fantastic that he's gained 6 pounds in two months!! A friend of mine has a 95% kid (not celiac - just sharing a kid story) and she was complaining about the growth pattern because she ends up having to buy a lot of clothes. Anyway, she was saying that her daughter would alternate her growth in height and weight . . . meaning, for a while she would just put on weight, then she just gets taller but quits gaining weight, then she gains weight but doesn't grow taller . . . etc, etc. You might find that your child just needs to be gluten-free a little longer before he takes off or you might find his growth pattern does something like my friend's daughter.

Aleshia Contributor

hi, I agree about the growth spurt, kids usually get a bit on the chubby side right before they shoot up. you could look at his feet to see if they have gotten larger. I've heard that the feet grow first then the lefts then the hands then the arms. so if his shoes are getting tight you can bet he will get taller.

my son is 18 1/2 mo. and had only gained 2 lb in 12 mo. then I put him on a gluten-free diet and he gained a lb in a month. he is just now growing out of his 18-24mo. clothes that he has been in since 4 mo. old!

don't worry his growth will get better :)

mom2lucas Rookie

Thank you all for your words, I feel more relieved now... ;)


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Krystens mummy Enthusiast

My doctor told me that weight always perceeds height. The body will store the weight fat and nutrients it needs first before it will use them to grow. This is for self preservation. Your child may need to put on a bit more weight to catch up before the growth starts

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - knitty kitty replied to mamaof7's topic in Parents, Friends and Loved Ones of Celiacs
      6

      Help understand results

    2. - knitty kitty replied to hjayne19's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      10

      Insomnia help

    3. - trents replied to pothosqueen's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      Positive biopsy

    4. - pothosqueen posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      Positive biopsy

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      132,990
    • Most Online (within 30 mins)
      7,748

    pothosqueen
    Newest Member
    pothosqueen
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • knitty kitty
      That test is saying that your daughter is not making normal amounts of any IGA antibodies.  She's not making normal amounts of antibodies against gliadin, not against bacteria, not against viruses.  She is deficient in total IGA, so the test for antigliadin antibodies is not valid.  The test was a failure.  The test only works if all different kinds of antibodies were being made.  Your daughter is not making all different kinds of antibodies, so the test results are moot.  Your daughter should have the DGP IgG and TTG IgG tests done.   The tests should be performed while she is still consuming gluten.  Stopping and restarting a gluten containing diet can make her more sick, just like you refuse to eat gluten for testing.  Call the doctor's office, request both the IGG tests. Request to be put on the cancellation list for an appointment sooner.  Ask for genetic testing.   Celiac disease is passed on from parents to children.  You and all seven children should be tested for genes for Celiac disease.  Your parents, your siblings and their children should be tested as well.  Eating gluten is not required for genetic testing because your genes don't change.  Genetic testing is not a diagnosis of Celiac disease.  Just having the genes means there is the potential of developing Celiac disease if the Celiac genes are activated.  Genetic testing helps us decide if the Celiac genes are activated when coupled with physical symptoms, antibody testing, and biopsy examination. It's frustrating when doctors get it wrong and we suffer for it.  Hang in there.  You're a good mom for pursuing this!  
    • knitty kitty
      @hjayne19, So glad you found the information helpful.  I know how difficult my struggle with anxiety has been.  I've been finding things that helped me and sharing that with others makes my journey worthwhile. I like Life Extension Bioactive Complete B Complex.  It contains the easily activated forms of B vitamins needed by people with the MTHFR genetic variation often found with Celiac disease.   Avoid B Complex vitamins if they contain Thiamine Mononitrate if possible.  (Read the ingredients listing.)  Thiamine Mononitrate is the "shelf-stable" form of B 1 that the body can't utilize.  B vitamins breakdown when exposed to heat and light, and over time.  So "shelf-stable" forms won't breakdown sitting on a shelf in a bright store waiting to be bought.  (It's also very cheap.)  Thiamine Mononitrate is so shelf-stable that the body only absorbs about thirty percent of it, and less than that is utilized.  It takes thiamine already in the body to turn Thiamine Mononitrate into an active form.   I take MegaBenfotiamine by Life Extension.  Benfotiamine has been shown to promote intestinal healing, neuropathy, brain function, glycemic control, and athletic performance.   I take TTFD-B1 Max by Maxlife Naturals, Ecological Formulas Allthiamine (TTFD), or Thiamax by EO Nutrition.  Thiamine Tetrahydrofurfuryl Disulfide (TTFD for short) gets into the brain and makes a huge difference with the anxiety and getting the brain off the hamster wheel.  Especially when taken with Magnesium Threonate.   Any form of Thiamine needs Magnesium to make life sustaining enzymes and energy.  I like NeuroMag by Life Extension.  It contains Magnesium Threonate, a form of magnesium that easily crosses the blood brain barrier.  My brain felt like it gave a huge sigh of relief and relaxed when I started taking this and still makes a difference daily.   Other brands of supplements i like are Now Foods, Amazing Formulas, Doctor's Best, Nature's Way, Best Naturals, Thorne, EO Nutrition. Naturewise.  But I do read the ingredients labels all the time just to be sure they are gluten and dairy free. Glad to help with further questions.  
    • trents
      Welcome to the celiac.com community @pothosqueen!   Can you be more specific about which IGA test was run that resulted in 114 score and said to be "normal" and could you please include the reference range for what would be normal? By the size of that number it looks like it may have been what we call "total IGA" but that test is not usually run without also running a TTG-IGA. Total IGA tests for IGA deficiency. If someone is IGA deficient, then the celiac-specific IGA tests like the TTG-IGA will be inaccurate. Was this the only IGA test that was run? To answer, your question, yes, a positive biopsy is normally definitive for celiac disease but there are some other medical conditions, some medications and even some food proteins in rare cases that can cause positive biopsies. But it is pretty unlikely that it is due to anything other than celiac disease.
    • pothosqueen
      Upper endoscopy last week resulted in positive biopsy for celiac disease. The IgA they ran was normal (114). Does positive biopsy automatically mean definitive diagnosis?
    • hjayne19
      This is great thank you very much @Scott Adams
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.