Looking For Info

[mapsmom]

Hi everyone. Went to Dr. on Friday, who suspects Celiac Disease. After learning of the symptoms, and comparing them to what I've been going through, I think I agree. Took a "Celiac Panel" blood test on Friday, and am ANXIOUSLY awaiting results. Tried asking Dr. when results available, but no call back yet. Can anyone tell me about how long the Celiac panel takes to complete, and when the results are generally available? Any and all info greatly appreciated.

[vmlehtonen]

Celiac usually takes about a week. I have the number to our lab here and I call them and check in after three or four days and get the results myself. I also check the box on the form that says "copy to: patient" so that the lab will send me a copy of the results. Ask what the numbers are when you get the lab work back and check it versus other numbers on the net. OUr doctor told us that our daughters lab work was "fabulous" only to find out that one of her markers came back high. My daughter is IgA deficient, and if you are IgA deficient then you can get a false negative result....they are supposed to routinely order a total IgA to make sure that they don't get a false negative, but not all doctors do! Read about IgA deficeincy and results on this website, it's a good one:

Open Original Shared Link

Read about the different tests and the numbers involved. My daughter came up with a high AGA IgG, this is not specific enough to celiac which is why they told me that nothing is wrong, but they should have ordered IgG versions of all the tests (EMA IgG, TtG IgG, AGA IgG) because she is IgA deficient. If you are IgA deficient then your IgA will not react to the gliadin serum, so it will come up as a false negative.

I hope this helps. My best advice would be to research and know what the numbers mean so that you are well informed to talk with the doctor about the results when you get them!

Good Luck,

Vickie

[mapsmom]

Vickie:

Thanks so much for the info! It's really helpful and good advice.

Trisha

(mapsmom)