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What Is Wrong With Me?

k2626

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k2626 Explorer
k2626
Posted

Hi guys. I have been having tons of medical issues and am trying to find out what is wrong with me. Today I actually ended up in the ER. Here is my story and symptoms-

Over the past yrs I have gotten stabbing pains 3 inches to the left of my belly button that spreads. It comes and goes, ended me up in the ER 5yrs ago as it was so bad. Have had my liver, gallbladder, panc., kidneys all tested. Last month it hit me but the pain was dull, lasted for about a week. Then this am I had such bad pain there that spread across my lower stomach that I could not move. I have never had such a pain in my life. 10 min later the pain went down, but came back again 15 min later. They ran all stomach tests on me, did a RA, Lupus, CBC and liver blood test-all was fine.

I have a history of GERD (bad chest pains due to esp spasms) am on Aciphex and do get gas a lot

Now onto my new symptoms which are REALLY concerning me-

-Dizzy spells

-Fatigue

-Joint pain, and A LOT of joint cracking noises

-Travel pains in my bones (ie-ankle, then an hour later my right foot..including my toes, tail bone, spine)

-Some shooting pains in my body

**Bone and joint pain just started about 3 wks ago***

Finally, my toes get "stuck" often, like a charlie horse that wont get relieved.

I have been under a ton of stress lately (dad JUST dx w terminal pc-is declining rapidly)

Can any please give me feedback? I wont get additional labs back for a few days and need my mind put at ease

that its not something like bone cancer.

Would a CBC show anything? I do not think I have anyone (at least in immediate family) with this.

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BRUMI1968 Collaborator
BRUMI1968
Posted
Hi guys. I have been having tons of medical issues and am trying to find out what is wrong with me. Today I actually ended up in the ER. Here is my story and symptoms-

Over the past yrs I have gotten stabbing pains 3 inches to the left of my belly button that spreads. It comes and goes, ended me up in the ER 5yrs ago as it was so bad. Have had my liver, gallbladder, panc., kidneys all tested. Last month it hit me but the pain was dull, lasted for about a week. Then this am I had such bad pain there that spread across my lower stomach that I could not move. I have never had such a pain in my life. 10 min later the pain went down, but came back again 15 min later. They ran all stomach tests on me, did a RA, Lupus, CBC and liver blood test-all was fine.

I have a history of GERD (bad chest pains due to esp spasms) am on Aciphex and do get gas a lot

Hi. Sorry to hear you're having so much trouble right now. This is what I found for side effects for Aciphex. I bolded the stuff I thought it sounded like you're experiencing:

Body as a Whole: asthenia, fever, allergic reaction, chills, malaise, chest pain substernal, neck rigidity, photosensitivity reaction. Rare: abdomen enlarged, face edema, hangover effect. Cardiovascular System: hypertension, myocardial infarct, electrocardiogram abnormal, migraine, syncope, angina pectoris, bundle branch block, palpitation, sinus bradycardia, tachycardia. Rare: bradycardia, pulmonary embolus, supraventricular tachycardia, thrombophlebitis, vasodilation, QTC prolongation and ventricular tachycardia. Digestive System: diarrhea, nausea, abdominal pain, vomiting, dyspepsia, flatulence, constipation, dry mouth, eructation, gastroenteritis, rectal hemorrhage, melena, ano-rexia, cholelithiasis, mouth ulceration, stomatitis, dysphagia, gingivitis, cholecystitis, increased appetite, abnormal stools, colitis, esophagitis, glossitis, pancreatitis, proctitis. Rare: bloody diarrhea, cholangitis, duodenitis, gastrointestinal hemorrhage, hepatic encephalopathy, hepatitis, hepatoma, liver fatty deposit, salivary gland enlargement, thirst. Endocrine System: hyperthyroidism, hypothyroidism. Hemic & Lymphatic System: anemia, ecchymosis, lymphadenopathy, hypochromic anemia. Metabolic & Nutritional Disorders: peripheral edema, edema, weight gain, gout, dehydration, weight loss. Musculo-Skeletal System: myalgia, arthritis, leg cramps, bone pain, arthrosis, bursitis. Rare: twitching. Nervous System: insomnia, anxiety, dizziness, depression, nervousness, somnolence, hypertonia, neuralgia, vertigo, convulsion, abnormal dreams, libido decreased, neuropathy, paresthesia, tremor. Rare: agitation, amnesia, confusion, extrapyramidal syndrome, hyperkinesia. Respiratory System: dyspnea, asthma, epistaxis, laryngitis, hiccup, hyperventilation. Rare: apnea, hypoventilation. Skin and Appendages: rash, pruritus, sweating, urticaria, alopecia. Rare: dry skin, herpes zoster, psoriasis, skin discoloration. Special Senses: cataract, amblyopia, glaucoma, dry eyes, abnormal vision, tinnitus, otitis media. Rare: corneal opacity, blurry vision, diplopia, deafness, eye pain, retinal degeneration, strabismus. Urogenital System: cystitis, urinary frequency, dysmenorrhea, dysuria, kidney calculus, metrorrhagia, polyuria. Rare: breast enlargement, hematuria, impotence, leukorrhea, menorrhagia, orchitis, urinary incontinence.

I recently found a book called "Why Stomach Acid is Good For You" which talked about acid reflux, and some ideas on how to help it w/o medication. I don't know if it is this medication that is bothering you, but it sounds as though it could be. A site that lists what folks are experiencing on this drug is here:

Open Original Shared Link

I also did not quite catch if you are off gluten or not - if not, I would get off gluten asap, as well as dairy to see if that helps your acid reflux. I know for me if I ate bread (back when I did), I would get it quite badly. Now I only get it occasionally, and usually from avocado or something else fatty (which most of the time I digest fine).

Anyway, I can't think of anything else other than gluten reaction or drug reaction (the drug, by the way, does claim to be gluten free) that might cause so much "pain" associated things, other than an intolerance to nightshades (tomato, potato, eggplant, peppers/chilies, tobacco).

Ursa Major Collaborator
Ursa Major
Posted

I agree that the Aciphex could very well be the cause of a lot, if not most/all of your symptoms.

It sounds like maybe gluten could be your original problem to begin with, as could dairy, soy or another food/foods you are intolerant to.

I tend to get acid reflux when I eat things that don't really agree with me (like eggs or rice, I wouldn't eat gluten foods). I find that a homeopathic remedy is helping an awful lot. It is called Nux Vomica (also called colubrina). And of course, homeopathic remedies don't have any side effects.

Another remedy called Sepia will relieve inflammation and stomach pain.

Have you ever been tested for celiac disease? You may want to get the testing done immediately, and then try the gluten-free diet regardless if your tests are positive or negative. But if you want to get tested you have to keep eating gluten until after the tests are done, or you will risk getting false negative results.

Billygean Apprentice
Billygean
Posted

My friend had excruciating unexplained stomach pains and the public health service here tested every organ around that area and shrugged and sent him home. He went private and they diagnosed a slipped disc in his spine. He's well now.

k2626 Explorer
k2626
Posted
  • Author

Wow I never knew this could be a side effect of aciphex, the thing is I have been on it for about a yr on and off, prob. this round about 3 months. Would side effects come on this late in the game?

I am not on gluten free but started today. Can Celiacs cause weird pain in jonits and bones? I am really really scared. I am only 33 and am so tired of all these issues and I have only been having the pains about 2/3 wks :(

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