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No Way!

KaitiUSA

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KaitiUSA Enthusiast
KaitiUSA
Posted

Well, I moved to Arkansas at the beginning of the year to get married and so I had to find a new GI doctor. We went and saw him 2 days ago and I have been having some of my symptoms again(think partly due to my anxiety disorder and getting off of those meds that helped with it) So he was puzzled that my former GI doc was able to give me a 99% diagnosis since they normally are not supposed to do that unless there is a biopsy. So, they wanted me to go back on gluten for a week and then do a biopsy but I told him I knew I had it and I get reactions and no longer am malnourished in vitamins and minerals. So they decided to check for refractory celiac. Yesterday I went and had to be sedated and they did one on my. They did a endoscopy and biopsy and they said it all looked great which I figured it would. I really liked the doctor though....he was being very thorough and not giving me answers unless he is confident in the answer and he did a good job and was very knowledgable with celiac. My family (many of whom hate doctors) were there and got to talk to him after the procedure and they were impressed to. Just goes to show not all doctors are bad.

Another guy who is not a GI but another doctor I saw said he has celiac and he can eat anything made of potato and rice and corn and says he gets bread from a normal store and doesn't have to go anywhere special and he also believed you have to have the classic symptoms such as diarrhea and weight loss to have celiac and I was like telling him about it and I was like o my goodness he knew nothing about celiac and if you know this area you would know there is no such thing of finding gluten free bread at the local grocery store.

Anyhow, I have been feeling good since I got back on my anxiety meds. The regular doc. said that I could quit cold turkey since it was a low dose but I went through withdrawal and thats when my symptoms started this mess. But we are talking about starting to have kids so we were hoping to get off of it but I am going to be tapered off instead. I was a little upset with the doctor but I didnt ask the specialist who put me on it so it was myt fault.

Anyway thats all for now B):)

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Rachel--24 Collaborator
Rachel--24
Posted

Kaiti,

I'm glad everyone is happy with the new GI. :)

Thanks for the update and a congrats on getting married!!

I'm happy that you're feeling better now and hopefully we'll get to see a baby pic up there one of these days.

Good luck with everything! :)

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    • catnapt
      how much gluten do I need to eat before blood tests?

      By catnapt · Posted

      after several years of issues with a para-gland issue, my endo has decided it's a good idea for me to be tested for celiac disease. I am 70 yrs old and stunned to learn that you can get celiac this late in life. I have just gradually stopped eating most foods that contain gluten over the past several years- they just make me feel ill- although I attributed it to other things like bread spiking blood sugar- or to the things I ate *with* the bread or crackers etc   I went to a party in Nov and ate a LOT of a vegan roast made with vital wheat gluten- as well as stuffing, rolls and pie crust... and OMG I was so sick! the pain, the bloating, the gas, the nausea... I didn't think it would ever end (but it did) and I was ready to go the ER but it finally subsided.   I mentioned this to my endo and now she wants me to be tested for celiac after 2 weeks of being on gluten foods. She has kind of flip flopped on how much gluten I should eat, telling me that if the symptoms are severe I can stop. I am eating 2-3 thin slices of bread per day (or english muffins) and wow- it does make me feel awful. But not as bad as when I ate that massive amnt of vital wheat gluten. so I will continue on if I have to... but what bothers me is - if it IS celiac, it seems stupid for lack of a better word, to intentionally cause more damage to my body... but I am also worried, on the other hand, that this is not a long enough challenge to make the blood work results valid.   can you give me any insight into this please?   thank you
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