Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):
    GliadinX



    Celiac.com Sponsor (A1-M):
    GliadinX


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Finally Have A Diagnosis For Dd


ptkds

Recommended Posts

ptkds Community Regular

Well, we FINALLY have a diagnosis for my 3 yr old dd. I have posted before about her and her bleeding problems.

Her platelets don't function properly. She also has a Factor VII deficiency and von Willebrands disease. She has two seperate bleeding disorders.

She went through a horribly long test today to confirm the von Willebrands. They had to put in 2 IV's because the first one fell out, and in all they poked her 5 times. She was so ready to get out of there. We were in there for over 4 hours.

So we finally have a diagnosis and we don't have to go back to the hematologist for 6 months!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):
Food for Life
Smith & Truslow



Celiac.com Sponsor (A8-M):
Authentic Foods


ravenwoodglass Mentor

I am so sorry she has had to go through so much but so thankful you now have answers. Hopefully there is something the doctors can do to help her now. It has got to be such a relief for you to now understand what is going on with her. I hope her condition improves.

Green12 Enthusiast

Yes, I agree. I'm sorry she's had to go through all of this but it's good to have an answer with the diagnosis and to know what you are delaing with.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):
    Food for Life



  • Member Statistics

    • Total Members
      130,048
    • Most Online (within 30 mins)
      7,748

    Rachellabeth
    Newest Member
    Rachellabeth
    Joined

  • Celiac.com Sponsor (A20):
    Smith & Truslow


  • Forum Statistics

    • Total Topics
      121.3k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):
    GliadinX




  • Celiac.com Sponsor (A21):
    Holidaily Brewing Co.



  • Upcoming Events

  • Posts

    • KimMS
      Thank you. This is very reassuring!
    • rjane
      thank you so much for all your help and information its very helpful, mind blowing but helpful 
    • trents
      @rjane, yes, it often feels overwhelming in the beginning. But let me encourage you by saying that it will get easier. You and your husband will develop, over time, a sixth sense of how gluten is typically hidden in the food supply and where it is found and you will develop an inventory of foods that you can trust and to stock your pantry with. The largest risk involves eating out at restaurants. Even if you order things that are naturally gluten free, you have no control over cross contamination happening back in the kitchen in how things are prepared and handled. Another trap is eating at other people's homes who are trying to accommodate your husband's need to eat gluten free but...
    • rjane
      I am not sure if they have tested him for SIBO  should I ask the hospital if they have tested him for that, there is so much to learn in the beginning I am not sure what or who to ask I am thinking the good folks on this site will help me, thanking you for your help  
    • trents
×
×
  • Create New...