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Finally Have A Diagnosis For Dd

ptkds

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ptkds Community Regular
ptkds
Posted

Well, we FINALLY have a diagnosis for my 3 yr old dd. I have posted before about her and her bleeding problems.

Her platelets don't function properly. She also has a Factor VII deficiency and von Willebrands disease. She has two seperate bleeding disorders.

She went through a horribly long test today to confirm the von Willebrands. They had to put in 2 IV's because the first one fell out, and in all they poked her 5 times. She was so ready to get out of there. We were in there for over 4 hours.

So we finally have a diagnosis and we don't have to go back to the hematologist for 6 months!

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ravenwoodglass Mentor
ravenwoodglass
Posted

I am so sorry she has had to go through so much but so thankful you now have answers. Hopefully there is something the doctors can do to help her now. It has got to be such a relief for you to now understand what is going on with her. I hope her condition improves.

Green12 Enthusiast
Green12
Posted

Yes, I agree. I'm sorry she's had to go through all of this but it's good to have an answer with the diagnosis and to know what you are delaing with.

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      By StuartJ · Posted

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      Unfortunately, the development of celiac disease usually is not an end in and of itself. It usually brings along friends, given time. It is at heart an immune system dysfunction which often embraces other immune system dysfunctions as time goes on.
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