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Caffeine

beaks

By beaks
in Coping with Celiac Disease

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beaks Newbie
beaks
Posted

I am following a strict gluten-free diet...does anyone have trouble with strong coffee?

I find that if I drink strong coffee on a fairly empty stomach, I will have symptoms (loose poop) that are like celiac.

Does anyone else have this problem?

No possibilities of cross-contamination either. (or with cream/sugar)

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aikiducky Apprentice
aikiducky
Posted

Caffeine is very irritating to your intestines & stomach. So yes, you can get D from coffee alone, without it being a gluten problem. Better to eat something with your coffee, or leave it out completely for a while until your intestines are in better shape. Actually I think it's never a good idea to drink coffee on an empty stomach, even after you've healed. :)

Pauliina

msmini14 Enthusiast
msmini14
Posted

I have to cut way down on my coffee for my guts to heal. I was having the same problem, so only drank 1-2 cups of coffee that were not strong. Once I heal I can go back to drinking as much coffee as possible lol. I only drink water so coffee is a treat for me, I cant live without it lol.

Best to cut down or stop drinking it for a few days until you feel better.

JNBunnie1 Community Regular
JNBunnie1
Posted
I have to cut way down on my coffee for my guts to heal. I was having the same problem, so only drank 1-2 cups of coffee that were not strong. Once I heal I can go back to drinking as much coffee as possible lol. I only drink water so coffee is a treat for me, I cant live without it lol.

Best to cut down or stop drinking it for a few days until you feel better.

Actually, I have found that I have the same reaction. However, I can far exceed the amount of caffeine coffee has and still not react, as long as it's from something else. And I have the same D reaction to decaf. I think maybe it's the oil and acid in the coffee that bothers us, not the caffeine. Try switching to tea for a few days, once you feel better, and have as much tea as you want. See if it bothers you.

Mel-in-Tampa Newbie
Mel-in-Tampa
Posted

Oh yes; caffine / coffee sensitive. When I was younger I was super-sensitive to coffee and caffine in general. About 2 years ago, I started drinking half caffine coffee; then realized about a year later that I was using it to help keep me regular. That was my only symptom of Celiac - mild C. I got tested because my mom found out she had it.

Been gluten free for just over a month and finding that I am again sensitive to caffine. Thanks for asking; now I know I am not alone!!

-------------------------------------

Positive blood work & biopsy

gluten free since 06/05/08

lactose almost-free since 6/23

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    • knitty kitty
      My only proof

      By knitty kitty · Posted

      You're right, doctors usually only test Vitamin D and B12.  Both are really important, but they're not good indicators of deficiencies in the other B vitamins.  Our bodies are able to store Vitamin B12 and Vitamin D in the liver for up to a year or longer.  The other B vitamins can only be stored for much shorter periods of time.  Pyridoxine B 6 can be stored for several months, but the others only a month or two at the longest.  Thiamine stores can be depleted in as little as three days.  There's no correlation between B12 levels and the other B vitamins' levels.  Blood tests can't measure the amount of vitamins stored inside cells where they are used.  There's disagreement as to what optimal vitamin levels are.  The Recommended Daily Allowance is based on the minimum daily amount needed to prevent disease set back in the forties when people ate a totally different diet and gruesome experiments were done on people.  Folate  requirements had to be updated in the nineties after spina bifida increased and synthetic folic acid was mandated to be added to grain products.  Vitamin D requirements have been updated only in the past few years.   Doctors aren't required to take as many hours of nutritional education as in the past.  They're educated in learning institutions funded by pharmaceutical corporations.  Natural substances like vitamins can't be patented, so there's more money to be made prescribing pharmaceuticals than vitamins.   Also, look into the Autoimmune Protocol Diet, developed by Dr. Sarah Ballantyne, a Celiac herself.  Her book The Paleo Approach has been most helpful to me.  You're very welcome.  I'm glad I can help you around some stumbling blocks while on this journey.    Keep me posted on your progress!  Best wishes! P.S.  interesting reading: Thiamine, gastrointestinal beriberi and acetylcholine signaling https://pmc.ncbi.nlm.nih.gov/articles/PMC12014454/
    • NanceK
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    • knitty kitty
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      By knitty kitty · Posted

      Segments of the protein Casein are the same as segments of the protein strands of gluten, the 33-mer segment.   The cow's body builds that Casein protein.  It doesn't come from wheat.   Casein can trigger the same reaction as being exposed to gluten in some people.   This is not a dairy allergy (IGE mediated response).  It is not lactose intolerance.  
    • trents
      Has anyone had terrible TMJ/ Jaw Pain from undiagnosed Celiac?

      By trents · Posted

      Wheatwacked, what exactly did you intend when you stated that wheat is incorporated into the milk of cows fed wheat? Obviously, the gluten would be broken down by digestion and is too large a molecule anyway to cross the intestinal membrane and get into the bloodstream of the cow. What is it from the wheat that you are saying becomes incorporated into the milk protein?
    • Scott Adams
      Has anyone had terrible TMJ/ Jaw Pain from undiagnosed Celiac?

      By Scott Adams · Posted

      Wheat in cow feed would not equal gluten in the milk, @Wheatwacked, please back up extraordinary claims like this with some scientific backing, as I've never heard that cow's milk could contain gluten due to what the cow eats.
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