Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Caffeine

beaks

By beaks
in Coping with Celiac Disease

Recommended Posts

beaks Newbie
beaks
Posted

I am following a strict gluten-free diet...does anyone have trouble with strong coffee?

I find that if I drink strong coffee on a fairly empty stomach, I will have symptoms (loose poop) that are like celiac.

Does anyone else have this problem?

No possibilities of cross-contamination either. (or with cream/sugar)

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


aikiducky Apprentice
aikiducky
Posted

Caffeine is very irritating to your intestines & stomach. So yes, you can get D from coffee alone, without it being a gluten problem. Better to eat something with your coffee, or leave it out completely for a while until your intestines are in better shape. Actually I think it's never a good idea to drink coffee on an empty stomach, even after you've healed. :)

Pauliina

msmini14 Enthusiast
msmini14
Posted

I have to cut way down on my coffee for my guts to heal. I was having the same problem, so only drank 1-2 cups of coffee that were not strong. Once I heal I can go back to drinking as much coffee as possible lol. I only drink water so coffee is a treat for me, I cant live without it lol.

Best to cut down or stop drinking it for a few days until you feel better.

JNBunnie1 Community Regular
JNBunnie1
Posted
I have to cut way down on my coffee for my guts to heal. I was having the same problem, so only drank 1-2 cups of coffee that were not strong. Once I heal I can go back to drinking as much coffee as possible lol. I only drink water so coffee is a treat for me, I cant live without it lol.

Best to cut down or stop drinking it for a few days until you feel better.

Actually, I have found that I have the same reaction. However, I can far exceed the amount of caffeine coffee has and still not react, as long as it's from something else. And I have the same D reaction to decaf. I think maybe it's the oil and acid in the coffee that bothers us, not the caffeine. Try switching to tea for a few days, once you feel better, and have as much tea as you want. See if it bothers you.

Mel-in-Tampa Newbie
Mel-in-Tampa
Posted

Oh yes; caffine / coffee sensitive. When I was younger I was super-sensitive to coffee and caffine in general. About 2 years ago, I started drinking half caffine coffee; then realized about a year later that I was using it to help keep me regular. That was my only symptom of Celiac - mild C. I got tested because my mom found out she had it.

Been gluten free for just over a month and finding that I am again sensitive to caffine. Thanks for asking; now I know I am not alone!!

-------------------------------------

Positive blood work & biopsy

gluten free since 06/05/08

lactose almost-free since 6/23

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      132,035
    • Most Online (within 30 mins)
      7,748
    bostonbell
    Newest Member
    bostonbell
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Jmartes71
      Fighting for a name

      By Jmartes71 · Posted

      Thankyou so much for your words.Its a hard battle when a supposed well known hospital whose celiac " specialist " has down played me because my colon looks fine and put it in my medical and so pcp doesn't take seriously. In their eyes we all carry that gene.Im having alot of bad days trying to be positive because of it.
    • Scott Adams
      Celiac getting dentures

      By Scott Adams · Posted

      Your experience is both shocking and critically important for the community to hear, underscoring the terrifying reality that cross-contamination can extend into the most unexpected and invasive medical devices. It is absolutely devastating that you had to endure six months of sickness and ultimately sustain permanent vision loss because a doctor dismissed your legitimate, life-altering condition. Your relentless research and advocacy, from discovering the gluten in MMA acrylic to finding a compassionate prosthodontist, is a testament to your strength in a system that often fails celiac patients. While the scientific and medical consensus is that gluten cannot be absorbed through the skin or eyes (as the molecules are too large to pass through these barriers), your story highlights a terrifying gray area: what about a substance *permanently implanted inside the body*, where it could potentially shed microparticles or cause a localized immune reaction? Your powerful warning about acrylic lenses and the drastic difference with the silicone alternative is invaluable information. Thank you for sharing your harrowing journey and the specific, severe neurological symptoms you endure; it is a stark reminder that celiac is a systemic disease, and your advocacy is undoubtedly saving others from similar trauma.
    • Scott Adams
      Dedicated gluten-free Restaurants in East Bay (near San Francisco):

      By Scott Adams · Posted

      Those are driving distance from me--I will try to check them out, thanks for sharing!
    • Scott Adams
      Fighting for a name

      By Scott Adams · Posted

      I am so sorry you're going through this bad experience--it's difficult when your own lived reality of cause and effect is dismissed by the very professionals meant to help you. You are absolutely right—your violent physical reactions are not "what you think," but undeniable data points, and it's a form of medical gaslighting to be told otherwise, especially when you have a positive HLA-DQ2 gene and a clear clinical picture. Since your current "celiac specialist" is not addressing the core issue or your related conditions like SIBO and chronic fatigue, it may be time for a strategic pivot. Instead of trying to "reprove" your celiac disease to unwilling ears, consider seeking out a new gastroenterologist or functional medicine doctor, and frame the conversation around managing the complications of a confirmed gluten-free diet for celiac disease. Go in and say, "I have celiac disease, am strictly gluten-free, but I am still suffering from these specific complications: SIBO, chronic fatigue, dermatological issues, and high blood pressure linked to pain. I need a partner to help me address these related conditions." This shifts the focus from a debate about your diagnosis to a collaborative plan for your current suffering, which is the help you truly need and deserve to work toward bouncing back.
    • NanCel
      Celiac getting dentures

      By NanCel · Posted

      Hello, no I had to have them re done and then used a liner over the top.  Many dentists are not aware of the celiac effects.  Best of luck.   There is other material, yet, very expensive.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.