Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Caffeine


beaks

Recommended Posts

beaks Newbie

I am following a strict gluten-free diet...does anyone have trouble with strong coffee?

I find that if I drink strong coffee on a fairly empty stomach, I will have symptoms (loose poop) that are like celiac.

Does anyone else have this problem?

No possibilities of cross-contamination either. (or with cream/sugar)


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



aikiducky Apprentice

Caffeine is very irritating to your intestines & stomach. So yes, you can get D from coffee alone, without it being a gluten problem. Better to eat something with your coffee, or leave it out completely for a while until your intestines are in better shape. Actually I think it's never a good idea to drink coffee on an empty stomach, even after you've healed. :)

Pauliina

msmini14 Enthusiast

I have to cut way down on my coffee for my guts to heal. I was having the same problem, so only drank 1-2 cups of coffee that were not strong. Once I heal I can go back to drinking as much coffee as possible lol. I only drink water so coffee is a treat for me, I cant live without it lol.

Best to cut down or stop drinking it for a few days until you feel better.

JNBunnie1 Community Regular
I have to cut way down on my coffee for my guts to heal. I was having the same problem, so only drank 1-2 cups of coffee that were not strong. Once I heal I can go back to drinking as much coffee as possible lol. I only drink water so coffee is a treat for me, I cant live without it lol.

Best to cut down or stop drinking it for a few days until you feel better.

Actually, I have found that I have the same reaction. However, I can far exceed the amount of caffeine coffee has and still not react, as long as it's from something else. And I have the same D reaction to decaf. I think maybe it's the oil and acid in the coffee that bothers us, not the caffeine. Try switching to tea for a few days, once you feel better, and have as much tea as you want. See if it bothers you.

Mel-in-Tampa Newbie

Oh yes; caffine / coffee sensitive. When I was younger I was super-sensitive to coffee and caffine in general. About 2 years ago, I started drinking half caffine coffee; then realized about a year later that I was using it to help keep me regular. That was my only symptom of Celiac - mild C. I got tested because my mom found out she had it.

Been gluten free for just over a month and finding that I am again sensitive to caffine. Thanks for asking; now I know I am not alone!!

-------------------------------------

Positive blood work & biopsy

gluten free since 06/05/08

lactose almost-free since 6/23

Archived

This topic is now archived and is closed to further replies.

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      132,916
    • Most Online (within 30 mins)
      7,748

    Ykat
    Newest Member
    Ykat
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • xxnonamexx
      very interesting thanks for the info  
    • Florence Lillian
      More cookie recipes ...thanks so much for the heads-up Scott.  One can never have too many.  Cheers, Florence.
    • Russ H
      Hi Charlie, You sound like you have been having a rough time of it. Coeliac disease can cause a multitude of skin, mouth and throat problems. Mouth ulcers and enamel defects are well known but other oral conditions are also more common in people with coeliac disease: burning tongue, inflamed and swollen tongue, difficulty swallowing, redness and crusting in the mouth corners, and dry mouth to name but some. The link below is for paediatric dentistry but it applies to adults too.  Have you had follow up for you coeliac disease to check that your anti-tTG2 antibodies levels have come down? Are you certain that you not being exposed to significant amounts of gluten? Are you taking a PPI for your Barrett's oesophagus? Signs of changes to the tongue can be caused by nutritional deficiencies, particularly iron, B12 and B9 (folate) deficiency. I would make sure to take a good quality multivitamin every day and make sure to take it with vitamin C containing food - orange juice, broccoli, cabbage etc.  Sebaceous hyperplasia is common in older men and I can't find a link to coeliac disease.   Russ.   Oral Manifestations in Pediatric Patients with Coeliac Disease – A Review Article
    • cristiana
      Hi @Charlie1946 You are very welcome.   I agree wholeheartedly with @knitty kitty:  "I wish doctors would check for nutritional deficiencies and gastrointestinal issues before prescribing antidepressants." I had a type of tingling/sometimes pain in my cheek about 2 years after my diagnosis.  I noticed it after standing in cold wind, affecting  me after the event - for example, the evening after standing outside, I would feel either tingling or stabbing pain in my cheek.   I found using a neck roll seemed to help, reducing caffeine, making sure I was well-hydrated, taking B12 and C vitamins and magnesium.  Then when the lockdowns came and I was using a facemask I realised that this pain was almost entirely eliminated by keeping the wind off my face.  I think looking back I was suffering from a type of nerve pain/damage.  At the time read that coeliacs can suffer from nerve damage caused by nutritional deficiencies and inflammation, and there was hope that as bodywide healing took place, following the adoption of a strict gluten free diet and addressing nutritional deficiencies, recovery was possible.   During this time, I used to spend a lot of time outdoors with my then young children, who would be playing in the park, and I'd be sheltering my face with an upturned coat collar, trying to stay our of the cold wind!  It was during this time a number of people with a condition called Trigeminal Neuralgia came up to me and introduced themselves, which looking back was nothing short of miraculous as I live in a pretty sparsely populated rural community and it is quite a rare condition.   I met a number of non-coeliacs who had suffered with this issue  and all bar one found relief in taking medication like amitriptyline which are type of tricyclic anti-depressant.   They were not depressed, here their doctors had prescribed the drugs as pain killers to address nerve pain, hence I mention here.  Nerve pain caused by shingles is often treated with this type of medication in the UK too, so it is definitely worth bearing in mind if standard pain killers like aspirin aren't working. PS  How to make a neck roll with a towel: https://www.painreliefwellness.com.au/2017/10/18/cervical-neck-roll/#:~:text=1.,Very simple. 
    • Scott Adams
      We just added a ton of new recipes here: https://www.celiac.com/celiac-disease/gluten-free-recipes/gluten-free-dessert-recipes-pastries-cakes-cookies-etc/gluten-free-cookie-recipes/
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.