Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Possible Relocation To Germany


AMQmom

Recommended Posts

AMQmom Explorer

My husband is considering a 2-3 year position in Germany. We would be relocating from the United States. Both of our daughters (ages 3 and 7) are celiac and one has severe food allergies in addition to celiac. Are any of you able to let us know how easy or difficult it is to live with food allergies in Germany? I am concerned about their well being. Also, the 3 year old suffers from speech delay due to celiac (she is gluten free and improving, but quite behind in speech still). Are there speech services in Germany like they have in the U.S.? Many thanks in advance!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



home-based-mom Contributor
My husband is considering a 2-3 year position in Germany. We would be relocating from the United States. Both of our daughters (ages 3 and 7) are celiac and one has severe food allergies in addition to celiac. Are any of you able to let us know how easy or difficult it is to live with food allergies in Germany? I am concerned about their well being. Also, the 3 year old suffers from speech delay due to celiac (she is gluten free and improving, but quite behind in speech still). Are there speech services in Germany like they have in the U.S.? Many thanks in advance!

I don't know for sure but I have a friend whose grandchildren are in Germany for the same reason, so I will ask her the next time I see her. Celiac runs in her family, so she is aware of the needs.

I do know that here in the USA parents have the option of homeschooling their kids if that seems to be the best option for whatever reason, including constant exposure to gluten and other allergens from what other people bring into the school. That is not an option in Germany. The state will actually remove your child from your custody if you dig your heals in. Some families flee to other European countries. That isn't always enough. One family has moved to Canada and another has moved to *Iran* :o of all places, all in the name of the freedom to educate their own kids as they see fit.

If you don't home school your kids and have no intention of doing so, that isn't an issue, but I thought I'd give you a heads up, just in case.

  • 3 weeks later...
theceliachusband Rookie

OHNE GLUTEN.

ZOELIKALIE

Those are the two words to translate gluten free and celiacs disease I think.

For research purposes (my wife is opening a gluten-free bakery & pastry shop), I surfed around the net in Germany, to see how they do it.

There are some options available and I am sure many more I did not find.

Schaer, widely available in drug marts, like the DM chain. Soso stuff, we ate some on our last trip to Austria.

Hammermuehle, a corn producer, they have a shop near Frankfurt I think.

But the best I could find while surfing was an actual Baeckermeister, Thomas Kaufman, who dedicated his craft to gluten free bread. We exchanged some emails since and he is really into his bakery, which when it comes to gluten-free is so important. Passion for quality is it. He ships via his website. Here is his website. Under "links" you can find a whole list of celiac related websites in Germany.

Open Original Shared Link

Just so you know, Italy is the the most advanced country when it comes to Celiacs screening. Every child before school age gets tested. Italy is not far from Germany at all and you can find tons and tons of gluten-free products there as well.

Heidi13 Newbie

Hi!

I recommend you to get in contact with the "Deutsche Z

theceliachusband Rookie

Here is a super blog post for Germany and Austria for you:

Open Original Shared Link

  • 2 months later...
GermanMia Newbie

Hi,

I'm a German celiac and live in the north-western aerea of Germany, at the dutch border. If you have any special questions, you're welcome :)

Mia

  • 2 weeks later...
kwalsh Newbie
Hi,

I'm a German celiac and live in the north-western aerea of Germany, at the dutch border. If you have any special questions, you're welcome :)

Mia

Hi Mia,

I have never blogged before but am getting ready to visit Germany at the end of the year for 2 weeks. I came across this while doing as much research as possible and I am very excited you offered to help. I am going with my boyfriend and he has a friend who lives in Germany. I do not know where we will be staying but would love to get some suggestions from you for eating out. Oh, and what chocolate we can eat. I am a chocoholic. LOL I will certainly find out and get back to you, if you do not mind. Thank you

Kim in AZ (USA)


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



GermanMia Newbie

Hi Kim,

if you can tell me exactly where you will go I'll be able to find out about eating out there. How sensitive are you to gluten? I know that some celiacs can tolerate chocolate which says "may contain traces of gluten" but some even get sick with those traces. There is chocolate which is declared to be gluten free, though. Do you prefer dark chocolate or milk chocolate?

AMQmom Explorer

Thank you all for your responses! The move did not go through, but I truly appreciate all of your support!

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - knitty kitty replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    2. - Jane02 replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    3. - knitty kitty replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    4. 0

      Penobscot Bay, Maine: Nurturing Gluten-Free Wellness Retreat with expert celiac dietitian, Melinda Dennis

    5. - Scott Adams replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,332
    • Most Online (within 30 mins)
      7,748

    Nicolah
    Newest Member
    Nicolah
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Who's Online (See full list)

  • Upcoming Events

  • Posts

    • knitty kitty
      @Jane02, I hear you about the kale and collard greens.  I don't do dairy and must eat green leafies, too, to get sufficient calcium.  I must be very careful because some calcium supplements are made from ground up crustacean shells.  When I was deficient in Vitamin D, I took high doses of Vitamin D to correct the deficiency quickly.  This is safe and nontoxic.  Vitamin D level should be above 70 nmol/L.  Lifeguards and indigenous Pacific Islanders typically have levels between 80-100 nmol/L.   Levels lower than this are based on amount needed to prevent disease like rickets and osteomalacia. We need more thiamine when we're physically ill, emotionally and mentally stressed, and if we exercise like an athlete or laborer.  We need more thiamine if we eat a diet high in simple carbohydrates.  For every 500 kcal of carbohydrates, we need 500-1000 mg more of thiamine to process the carbs into energy.  If there's insufficient thiamine the carbs get stored as fat.  Again, recommended levels set for thiamine are based on minimum amounts needed to prevent disease.  This is often not adequate for optimum health, nor sufficient for people with absorption problems such as Celiac disease.  Gluten free processed foods are not enriched with vitamins like their gluten containing counterparts.  Adding a B Complex and additional thiamine improves health for Celiacs.  Thiamine is safe and nontoxic even in high doses.  Thiamine helps the mitochondria in cells to function.  Thiamine interacts with each of the other B vitamins.  They are all water soluble and easily excreted if not needed. Interesting Reading: Clinical trial: B vitamins improve health in patients with coeliac disease living on a gluten-free diet https://pubmed.ncbi.nlm.nih.gov/19154566/ Safety and effectiveness of vitamin D mega-dose: A systematic review https://pubmed.ncbi.nlm.nih.gov/34857184/ High dose dietary vitamin D allocates surplus calories to muscle and growth instead of fat via modulation of myostatin and leptin signaling https://pubmed.ncbi.nlm.nih.gov/38766160/ Safety of High-Dose Vitamin D Supplementation: Secondary Analysis of a Randomized Controlled Trial https://pubmed.ncbi.nlm.nih.gov/31746327/ Vitamins and Celiac Disease: Beyond Vitamin D https://pmc.ncbi.nlm.nih.gov/articles/PMC11857425/ Investigating the therapeutic potential of tryptophan and vitamin A in modulating immune responses in celiac disease: an experimental study https://pubmed.ncbi.nlm.nih.gov/40178602/ Investigating the Impact of Vitamin A and Amino Acids on Immune Responses in Celiac Disease Patients https://pmc.ncbi.nlm.nih.gov/articles/PMC10814138/
    • Jane02
      Thank you so much @knitty kitty for this insightful information! I would have never considered fractionated coconut oil to be a potential source of GI upset. I will consider all the info you shared. Very interesting about the Thiamine deficiency.  I've tracked daily averages of my intake in a nutrition software. The only nutrient I can't consistently meet from my diet is vitamin D. Calcium is a hit and miss as I rely on vegetables, dark leafy greens as a major source, for my calcium intake. I'm able to meet it when I either eat or juice a bundle of kale or collard greens daily haha. My thiamine intake is roughly 120% of my needs, although I do recognize that I may not be absorbing all of these nutrients consistently with intermittent unintentional exposures to gluten.  My vitamin A intake is roughly 900% (~6400 mcg/d) of my needs as I eat a lot of sweet potato, although since it's plant-derived vitamin A (beta-carotene) apparently it's not likely to cause toxicity.  Thanks again! 
    • knitty kitty
      Hello, @Jane02,  I take Naturewise D 3.  It contains olive oil.   Some Vitamin D supplements, like D Drops, are made with fractionated coconut oil which can cause digestive upsets.  Fractionated coconut oil is not the same as coconut oil used for cooking.  Fractionated coconut oil has been treated for longer shelf life, so it won't go bad in the jar, and thus may be irritating to the digestive system. I avoid supplements made with soy because many people with Celiac Disease also react to soy.  Mixed tocopherols, an ingredient in Thornes Vitamin D, may be sourced from soy oil.  Kirkland's has soy on its ingredient list. I avoid things that might contain or be exposed to crustaceans, like Metagenics says on its label.  I have a crustacean/shellfish/fish allergy.  I like Life Extension Bioactive Complete B Complex.  I take additional Thiamine B 1 in the form Benfotiamine which helps the intestines heal, Life Extension MegaBenfotiamine. Thiamine is needed to activate Vitamin D.   Low thiamine can make one feel like they are getting glutened after a meal containing lots of simple carbohydrates like white rice, or processed gluten free foods like cookies and pasta.   It's rare to have a single vitamin deficiency.  The water soluble B Complex vitamins should be supplemented together with additional Thiamine in the form Benfotiamine and Thiamine TTFD (tetrahydrofurfuryl disulfide) to correct subclinical deficiencies that don't show up on blood tests.  These are subclinical deficiencies within organs and tissues.  Blood is a transportation system.  The body will deplete tissues and organs in order to keep a supply of thiamine in the bloodstream going to the brain and heart.   If you're low in Vitamin D, you may well be low in other fat soluble vitamins like Vitamin A and Vitamin K. Have you seen a dietician?
    • Scott Adams
      I do not know this, but since they are labelled gluten-free, and are not really a product that could easily be contaminated when making them (there would be not flour in the air of such a facility, for example), I don't really see contamination as something to be concerned about for this type of product. 
    • trents
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.