Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

What Type Of Testing Do I Need?


pilatesgirl24

Recommended Posts

pilatesgirl24 Rookie

I've had bowel issues (constipation, fuzzy white stuff/mucus in stool, blood in stool, painful bowel movements, bloating, gas) and stomach problems (epigrastric pain, nausea, occasional vomiting, pain when swallowing, and sore throat) for at least six months now. I've had a lot of tests done, including bloodwork for viral/bacterial infections and liver function, an abdominal ultrasound, a colonoscopy, and an upper GI endoscopy with tissue biopsies. All of these tests revealed "normal" results. My doctor, a GI specialist, tells me my sypmtoms are caused by GERD and perhaps irritable bowel syndrome. I'm taking Prilosec twice a day, I'm avoiding the foods I'm told might exacerbate my symptoms (such as acidic veggies/fruits/juices, caffeine, alcohol, chocolate), and I exercise regularly. I'm also taking fiber as directed by my doc for my bowel problems. Despite these treatment interventions, I still have symptoms almost daily. I also have some skin problems, specifically intermittent outbreaks of raised, painful bumps on my fingers, palms, and feet. Additionally, I suffer from migraine headaches and heavy bleeding/intense pain during my periods. I'm wondering if I might have celiac disease or a food allergy/intolerance, and I want to pursue this possibility with my doc. I'm not sure what tests to ask for or what action to take at this point. Any advice? Thanks so much! --Maggie

P.S. I'm twenty-four years old and am otherwise in good health. I don't have any history of GI problems before all this started.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Rosewynde Rookie

I'd suggest telling doc you've been looking up things on the web, they hate to hear it but better they know where you got info from. Request that Doc tests you for Celiac Disease, which he may have to find out more about. If he says your biopsy indicated no problems then request a bloodwork test. Mine was positive for the Celiac Antibodies but both my lower and upper gi biopsy was perfectly ok. Another choice is to go on the diet yourself and see if problems are fixed.

BTW fiber is usually wheat fiber which may just exasperate the problem. I've heard certain fibers can also make gas problems which can also exasperate an already irritated stomach. It did for me, and that was years before i was finally diagnosed with Celiac.

cruelshoes Enthusiast

The celiac panel consists of a battery of tests:

Anti-Gliadin (AGA) IgA and IgG

Anti-Tissue Transglutamise (tTg) IgA and IgG

Total Serum IgA

Endomesial Antiobody (EMA) IgA and IgG

If blood tests are positive (and occasionally even if they are not), the GI doctor may want to proceed to an endoscopy to confirm the diagnosis.

Hope this helps.

pilatesgirl24 Rookie

cruelshoes and rosewynde,

Thank you both for your very helpful responses! I will definitely ask for bloodwork to be done. If my doc isn't interested in pursuing this, I will probably try to find another doctor for a second opinion.

rosewynde, I especially appreciate what you said about fiber. It is definitely irritating to my stomach! Whenever I take it, I feel really full and bloated, and I start burping like crazy. I keep taking it, because it does help with regularity, but the side effects are no fun.

Thanks again!

Maggie

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - trents replied to Teaganwhowantsanexpltion's topic in Introduce Yourself / Share Stuff
      4

      A little about me and my celiac disease

    2. - Peace lily replied to AristotlesCat's topic in Super Sensitive People
      118

      Gluten Free Coffee

    3. - Teaganwhowantsanexpltion replied to Teaganwhowantsanexpltion's topic in Introduce Yourself / Share Stuff
      4

      A little about me and my celiac disease

    4. - trents replied to Teaganwhowantsanexpltion's topic in Introduce Yourself / Share Stuff
      4

      A little about me and my celiac disease

    5. 0

      Celiac Friendly Sports Camps - Academy Camps - Virtual Open House

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,237
    • Most Online (within 30 mins)
      7,748

    Nancy MacManus
    Newest Member
    Nancy MacManus
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • trents
      I know what you mean. When I get glutened I have severe gut cramps and throw up for 2-3 hr. and then have diarrhea for another several hours. Avoid eating out if at all possible. It is the number one source of gluten contamination for us celiacs. When you are forced to eat out at a new restaurant that you are not sure is safe, try to order things that you can be sure will not get cross contaminated like a boiled egg, baked potatos, steamed vegies, fresh fruit. Yes, I know that doesn't sound as appetizing as pizza or a burger and fries but your health is at stake. I also realize that as a 14 year old you don't have a lot of control over where you eat out because you are tagging along with others or adults are paying for it. Do you have support from your parents concerning your need to eat gluten free? Do you believe they have a good understanding of the many places gluten can show up in the food supply?
    • Peace lily
      Okay went online to check green mountain k cups .It was said that the regular coffees are fine but they couldn’t guarantee cross contamination.with the flavors. im trying to figure out since I eliminated the suyrup so far so good. I’m hoping. thanks it feels good to listen to other people there views.
    • Teaganwhowantsanexpltion
      Thank you I will i have been on a strict gluten free diet ever since I got diagnosed but sometimes places lie about there food so there r some things that do get contaminated which causes me to throw up on end for several hours until I can't hold myself up anymore 
    • trents
      Welcome to celiac.com, @Teaganwhowantsanexpltion! Joint pain is a well-established symptom of celiac disease. But joint pain may also be caused by other medical problems such as rheumatoid arthritis, chronic fatigue syndrome, etc. Make sure you share these concerns with your physician so that he or she can initiate testing or make referrals to specialists. As someone with celiac disease it is very important that you be consistent with the gluten free diet.
    • Scott Adams
      Let us know how things go.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.