Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Gluten Free[dom]


Live2BWell

Recommended Posts

Live2BWell Enthusiast

So, I have been so hesitantabout going gluten free. I joined this forum a while ago, and have a plethora of diagnoses which include Diabetes II,Hashimotos,IBS,GERD,Dysphagia,Restless Leg Syndrome, ADD/ADHD, and the list goes on; I have tested positive for food sensitivity to Whole Milk, Egg, Wheat (non-glutenated), Soy, Yeast, Cocoa Bean, Mixed Nuts, & Shellfish.

I had a colonoscopy over a week ago, and and my biopsies came back okay (which it's my understanding that doesn't mean much in ways of gluten intolerance.)

Up until recently, I have been feeling so sick - not only GI wise, but many symptoms from which I am told stem from the autoimmune disorder(s) I have been diagnosed with. I am also told they will "even-out" once I get my thyroid under control, and if they don't, then they have to explore the other conditions such as Fibromyalgia, CFIDS, or Dysautonomia - medical mumbo jumbo if you ask me ~ I don't care what I have, I do care how I feel though!

It goes without saying that feeling poorly physically, has certainly contributed to my feeling poorly emotionally, and I have been depressed. Now that I feel a bit better, I also feel a bit more about taking care of myself better (it could have to do with the fact that I have some energy back and I do not hurt so bad I'm confined to the couch.)

So this morning I woke up, and decided today I was going to go Gluten Free, to see if I feel any better. I have heard so many positive things, and if anything it can't hurt me ... So why am I being so stubborn? I have been fighting it for a while now, but literally woke up this morning and said "why not?," and... so far, I have been successfully gluten free (and it's almost 5pm) - okay, so maybe that's not all that much to be gung ho about, but it makes me proud nonetheless. Ask me again in a few days, and I may feel differently :P

I am also almost done with the book "Living Gluten Free For Dummies" by Danna Korn, and I have to say that it has been my personal cheerleader, and an excellent read on "gluten freedom," as Ms. Korn calls it (I highly suggest it!)

So, here's to DAY #1 of being gluten-free .....


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



ohsotired Enthusiast

Jess!

YAY FOR YOU!!!!

I really, really hope that this helps you! Just be strong, and remember to take baby steps - one day at a time.

(((HUGS))) You can do it! ;)

curlyfries Contributor

Jessica,

I am so glad you have decided to take the leap! You won't regret it! Just remember........some symptoms may show an immediate response, others will take longer. If you have any problems or questions, let me know. It takes time to get it right, but it's worth it! :D

Hummingbird4 Explorer

Hi there Jessica! I officially started gluten-free today too. Although I have eaten gluten-free the past few days, but today is my OFFICIAL start-date.

Best of luck to you - and I hope this is the answer you have been looking for! I have the Gluten-free for Dummies book too; also, the Gluten-Free Bible (which I just started reading). I have learned a ton from the books, and this site as well as others. I met with a dietician earlier this week, and it seemed I knew more about celiac disease and the gluten-free diet than she did. :rolleyes:

Live2BWell Enthusiast

ohsotired ~ Hey Chick! It was great talking to you tonight, thanks for the support! I am so excited to hear how you enjoy the book, and for you to get all this figured out too! Have a great night, hon :)

curlyfries ~ Thanks so much! I've already posted a few questions here and there around the forum, feel free to answer any of them (or all of them, LoL !!!) Thanks again for your encouragement B)

hummingbird4~ Yay for you on DAY #1 ! How'd it go?

sickchick Community Regular

Congratulations Sweetheart! Keep positive and optomistic! B)

ohsotired Enthusiast

It was great talking to you too! You need to get really good at this gluten free thing so you can give ME pointers once I start it up again! LOL I'm gonna go pick up the book tomorrow so I can psych myself up for starting the diet again once I'm done with all my stupid tests. Hope tomorrow is another successful day for you!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



gfpaperdoll Rookie

Keep us posted on your progress!!!! Yea for gluten-free!!

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Rejoicephd posted a topic in Related Issues & Disorders
      0

      Basic metabolic panel results - more flags

    2. - xxnonamexx posted a topic in Related Issues & Disorders
      0

      Self Diagnosed avoiding gluten 7 months later (Not tested due to eating gluten to test) update and question on soy

    3. - knitty kitty replied to Scatterbrain's topic in Sports and Fitness
      9

      Feel like I’m starting over

    4. - Scatterbrain replied to Scatterbrain's topic in Sports and Fitness
      9

      Feel like I’m starting over

    5. - knitty kitty replied to Scatterbrain's topic in Sports and Fitness
      9

      Feel like I’m starting over


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,317
    • Most Online (within 30 mins)
      7,748

    RickT
    Newest Member
    RickT
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Rejoicephd
      Hey all  Has anyone on here experienced any of the following on their basic metabolic panel results ? This is what mine is currently flagging : - low sodium  - nearly too low potassium - nearly too low chloride - high CO2  - low anion gap  This is now after being nearly gluten-free for over a year (although I admit I make mistakes sometimes and pay dearly for it). My TtG went down to undetectable. I was so sensitive to so many foods I am now avoiding meat dairy and don’t eat a lot of cooked food in general (raw veggies, white rice, avocados and boiled eggs are my usual go-to meal that doesn’t make me sick). But my abdomen still hurts, i have a range of other symptoms too (headaches that last for days before letting up, fatigue, joint pain, bladder pain). Anyway im hoping my urologist (that’s now the latest specialist I’ve seen on account of the bladder pain and cloudy urine after eating certain foods) will help me with this since he ordered this metabolic panel. But I’m bouncing around a lot between specialists and still not sure what’s wrong. Also went back to the GI doctor and she thought maybe the celiac is just not healed or I have something else going on in the colon and I should have that looked at too. I’m still anemic too BTW. And I’m taking sooo may vitamins daily. 
    • xxnonamexx
      I know I haven't been tested but self diagnosed that by avoiding gluten the past 7 months I feel so much better. I have followed how to eat and avoid gluten and have been good about hidden gluten in products, how to prep gluten-free and flours to use to bake gluten-free and have been very successful. It has been a learning curve but once you get the hang of it and more aware you realize how many places are gluten-free and contamination free practices etc. One thing I have read is how soy is like gluten. How would one know if soy affects you? I have eaten gluten free hershey reeses that say gluten free etc some other snacks say gluten free but contain soy and I dont get sick or soy yogurt no issues. Is there adifference in soys?
    • knitty kitty
      Check your multivitamin to see if it contains Thiamine Mononitrate, which is a "shelf-stable" form of thiamine that doesn't break down with exposure to light, heat, and time sitting on a shelf waiting to be sold.  Our bodies have difficulty absorbing and utilizing it.  Only 30% is absorbed and less can be utilized.   There's some question as to how well multivitamins dissolve in the digestive tract.  You can test this at home.  YouTube has instructional videos.   Talk to your nutritionist about adding a B Complex.  The B vitamins are water soluble, so any excess is easily excreted if not needed.  Consider adding additional Thiamine in the forms Benfotiamine or TTFD (tetrahydrofurfuryl disulfide) or thiamine hydrochloride.   Thiamine is needed to help control electrolytes.  Without sufficient thiamine, the kidneys loose electrolytes easily resulting in low sodium and chloride.   We need extra thiamine when we're emotionally stressed, physically ill, and when we exercise regularly, are an athlete, or do physical labor outdoors, and in hot weather.  Your return to activities and athletics may have depleted your thiamine and other B vitamins to a point symptoms are appearing.   The deficiency symptoms of B vitamins overlap, and can be pretty vague, or easily written off as due to something else like being tired after a busy day.  The symptoms you listed are the same as early B vitamin deficiency symptoms, especially Thiamine.  Thiamine deficiency symptoms can appear in as little as three days.  I recognize the symptoms as those I had when I was deficient.  It can get much worse. "My symptoms are as follows: Dizziness, lightheaded, headaches (mostly sinus), jaw/neck pain, severe tinnitus, joint stiffness, fatigue, irregular heart rate, post exercise muscle fatigue and soreness, brain fog, insomnia.  Generally feeling unwell." I took a B 50 Complex twice a day and extra thiamine in the forms Benfotiamine and TTFD.  I currently take the Ex Plus supplement used in this study which shows B vitamins, especially Thiamine B 1, Riboflavin B2, Pyridoxine B 6, and B12 Cobalamine are very helpful.   A functional evaluation of anti-fatigue and exercise performance improvement following vitamin B complex supplementation in healthy humans, a randomized double-blind trial https://pmc.ncbi.nlm.nih.gov/articles/PMC10542023/
    • Scatterbrain
      I am taking a multivitamin which is pretty bolstered with B’s.  Additional Calcium, D3, Magnesium, Vit C, and Ubiquinol.  Started Creapure creatine monohydrate in June for athletic recovery and brain fog.  I have been working with a Nutritionist along side my Dr. since February.  My TTG IGA levels in January were 52.8 and my DGP IGA was >250 (I don’t know the exact number since it was so high).  All my other labs were normal except Sodium and Chloride which were low.  I have more labs coming up in Dec.  I make my own bread, and don’t eat a lot of processed gluten-free snacks.
    • knitty kitty
      @Scatterbrain, What supplements are you taking? I agree that the problem may be nutritional deficiencies.  It's worth talking to a dietician or nutritionist about.   Did you get a Marsh score at your diagnosis?  Was your tTg IgA level very high?  These can indicate more intestinal damage and poorer absorption of nutrients.   Are you eating processed gluten free food stuffs?  Have you looked into the Autoimmune Protocol Diet?  
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.