Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Just Down


Blessings

Recommended Posts

Blessings Explorer

Last Sunday I was glutened at Outback. I went through some of my normal symptoms but very mild. Then tonight depression started. It seems so wrong to be doing so good and the wham. I can't even say that this was from last week. We had a picnic today at church and I brought my own foods. Then we had a couple visit that lived here 5 years ago and explaind whats been going on the last few months. I think it is just the emotions of the day. But it feels like my glutened depression. I just get tired of being different.

:(


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



sickchick Community Regular

oh Sweetie I know....

and being depressed makes it worse too.

thank god it will pass...

breathe and take a hot shower? :)

watch your favorite funny movie?

Beth in NC Contributor
Last Sunday I was glutened at Outback. I went through some of my normal symptoms but very mild. Then tonight depression started. It seems so wrong to be doing so good and the wham. I can't even say that this was from last week. We had a picnic today at church and I brought my own foods. Then we had a couple visit that lived here 5 years ago and explaind whats been going on the last few months. I think it is just the emotions of the day. But it feels like my glutened depression. I just get tired of being different.

:(

Blessings, I just now prayed for you, sister. I had a tough day at church as well. I've missed a few meetings in recent weeks with back pain and issues with the Celiac. Today I was in a lot of pain, but was able to manage this morning with alternating ibuprophen and tylenol arthritis. I was so emotional though, all morning! I realized how I am isolating myself at home, away from all the bad food. I send my hubby and son out to eat, but I am scared to go myself. I have hurt all week so badly, and when people want to know how I am, I feel like starting with, "how long ya got?" Then I feel like I'm telling them more than they really want to hear. I was discussing a possible place for a future ladies luncheon and it dawned on me that I'd get to sit there, at my favorite place, and watch everyone else enjoy it. It's just really hard, isn't it?

YoloGx Rookie

I know what you mean. The same thing happened to me last week after going out to eat my birthday dinner at a supposedly safe restaurant. I didn't get D like in the past so that was the good news. However I got achy and had clogged up sinuses and was very depressed. It finally passed a day and a half later.

I think the thing is is that one needs to really be forward with the restaurant and talk to the manager etc. and go look at where they are preparing the food to really be certain no CC happens. Its a real hassle and sometimes a little embarrassing but it apparently really is needed. Otherwise slip ups happen.

Also its a good idea to take along some heavy duty pro biotics and bromelain/papain caps etc. to counteract possible CC when eating out. It helps. Also slippery elm caps and marshmallow caps help heal inflammation and soothe the intestines.

Hope you are starting to feel better again! Just take it slow and easy since your immune system may have been compromised.

Bea

whitball Explorer

I certainly understand how you are feeling. I am praying for you to feel better. The Outback has been a disappointment to me, as I have been glutened twice and both meals were from the gluten-free menu. I explained very clearly to the waiter and it appeared that my instructions and the need to have the food exactly as it was ordered were understood. I think the ball was dropped by the waiter and did not get as far as the cook. Unfortunately, my business with them has ended, as I cannot risk another bout of vomiting for hours. I just have decided that I'm a better cook and eat at home! The depression will end and it does get better. Good luck to you.

greeneyes33 Newbie

I understand. This whole thing has me very depressed as well. I'm hoping as I get the hang of it, it will be easier and I wont be so sad...or mad depending on the day..

I had an issue with Outback too. That has been the only place that I would go because the had a gluten-free menu. Well I ordered off the gluten-free menu and even talked to the waitress who seemed very good with everything. I got my meal and was eating and I had just said to my SIL who was with me that it was nice to feel safe at a resturant and I looked down at my plate and there was a french fry half way under my chicken. Outbacks fries are not gluten free. So ok, maybe it was just a fluke thing, but if they are supposed to be as careful as they say they are, then one of their gluten filled french fries should not have been on my plate. I was devastaed. Not so safe any more. They did take my plate and bring me a new one, and took it off our bill, but that wasn't really the point. I convinced myself that I would be fine. I didn't touch the fry or anything, so I wasnt' going to get sick. Well, so much for positve thinking. The whole next day was horrible. My stomach was just a mess and I felt like I hadn't slept in a week. I'm just not going to take the chance eating out anymore, its just not worth it. And yeah, that is depressing too.

This disease is a very emotional thing too, not just physical. I so understand the depression and saddness. You are not alone...

sickchick Community Regular

How are you doing today Sweetie? :)


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Chrissyb Enthusiast

I hope you are doing better today :lol: Life with Celiac can be so draining on us both on our bodies and emotionally but we press on dont we. Luckly we have this awesome site to come to for support.

Blessings Explorer

Hey guys

Thanks for the prayers and support. I am feeling so much better today. Just resting. I'm tired of doing nothing.

Yesterday I did some running around and bought some dried Plautos. They were so yummy but I spent the afternoon visiting the restroom. Felt like I had a Phosopho Soda. At first I thought it was a reation to a Humira shot but it had to be the dried fruit. I didn't have anything else new.

Always something. I see my counselor tomorrow. We are supposed to talk about an anti depressant. We'll see.

God Bless,

Vicky

YoloGx Rookie

Dried fruit is always iffy for me too. Besides just the candida/fungal issues I discovered a lot of it is dusted with gluten to keep it from sticking together...

I question anti depressants when just avoiding these hidden pitfalls works much better--especially since it takes a while to find an anti depressant that actually works for you plus getting used to it.

Bea

sickchick Community Regular

Hopefully it won't be too bad or last too long, Doll.

B)

Blessings Explorer

I had double checked the ingredients and it said

Ingredients

dried pluots (pluots, sulfer dioxide)

Product of USA

Members Mark brand from Sam's Club

I am going to try it again to see if it was them. I only had 5 of them.

God Bless,

Vicky

Meleficent Rookie

I am glad to hear that you are feeling better. I am with you on the down side of things, but my problem is that people have been bringing in lots and lots of sweets to work and I want them so bad! I am such a sweet freak, and not being able to enjoy things every day for 2 weeks has gotten me down. But, I know that this too will pass......

Blessings Explorer
I am glad to hear that you are feeling better. I am with you on the down side of things, but my problem is that people have been bringing in lots and lots of sweets to work and I want them so bad! I am such a sweet freak, and not being able to enjoy things every day for 2 weeks has gotten me down. But, I know that this too will pass......

Meleficent

Make a gluten-free cheesecake and bring it in. I use Midel Pecan cookies and use the whole bag. I bake the crust while I mix the filling. I use Pamels Baking mix instead of flour and I use the regular Better Homes and Garden recipie. It will satisfy all your sweet needs. I have also used Pamelas simple bite chocolate cookies. I had to special order them. MMMMMMMMMMMMMMMMMMMMMMMMMMMMMMMMMMMMMMMMM

God Bless,

Vicky

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Rejoicephd commented on Jefferson Adams's article in Gluten-Free Cooking
      1

      Your Complete Gluten-Free Thanksgiving Plan: Recipes, Tips & Holiday Favorites

    2. - marion wheaton replied to marion wheaton's topic in Gluten-Free Foods, Products, Shopping & Medications
      3

      Are Lindt chocolate balls gluten free?

    3. - trents replied to marion wheaton's topic in Gluten-Free Foods, Products, Shopping & Medications
      3

      Are Lindt chocolate balls gluten free?

    4. - BlessedinBoston replied to marion wheaton's topic in Gluten-Free Foods, Products, Shopping & Medications
      3

      Are Lindt chocolate balls gluten free?


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,416
    • Most Online (within 30 mins)
      7,748

    Heather8280
    Newest Member
    Heather8280
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • marion wheaton
      Thanks for responding. I researched further and Lindt Lindor chocolate balls do contain barely malt powder which contains gluten. I was surprised at all of the conflicting information I found when I checked online.
    • trents
      @BlessedinBoston, it is possible that in Canada the product in question is formulated differently than in the USA or at least processed in in a facility that precludes cross contamination. I assume from your user name that you are in the USA. And it is also possible that the product meets the FDA requirement of not more than 20ppm of gluten but you are a super sensitive celiac for whom that standard is insufficient. 
    • BlessedinBoston
      No,Lindt is not gluten free no matter what they say on their website. I found out the hard way when I was newly diagnosed in 2000. At that time the Lindt truffles were just becoming popular and were only sold in small specialty shops at the mall. You couldn't buy them in any stores like today and I was obsessed with them 😁. Took me a while to get around to checking them and was heartbroken when I saw they were absolutely not gluten free 😔. Felt the same when I realized Twizzlers weren't either. Took me a while to get my diet on order after being diagnosed. I was diagnosed with small bowel non Hodgkins lymphoma at the same time. So it was a very stressful time to say the least. Hope this helps 😁.
    • knitty kitty
      @Jmartes71, I understand your frustration and anger.  I've been in a similar situation where no doctor took me seriously, accused me of making things up, and eventually sent me home to suffer alone.   My doctors did not recognize nutritional deficiencies.  Doctors are trained in medical learning institutions that are funded by pharmaceutical companies.  They are taught which medications cover up which symptoms.  Doctors are required to take twenty  hours of nutritional education in seven years of medical training.  (They can earn nine hours in Nutrition by taking a three day weekend seminar.)  They are taught nutritional deficiencies are passe' and don't happen in our well fed Western society any more.  In Celiac Disease, the autoimmune response and inflammation affects the absorption of ALL the essential vitamins and minerals.  Correcting nutritional deficiencies caused by malabsorption is essential!  I begged my doctor to check my Vitamin D level, which he did only after making sure my insurance would cover it.  When my Vitamin D came back extremely low, my doctor was very surprised, but refused to test for further nutritional deficiencies because he "couldn't make money prescribing vitamins.". I believe it was beyond his knowledge, so he blamed me for making stuff up, and stormed out of the exam room.  I had studied Nutrition before earning a degree in Microbiology.  I switched because I was curious what vitamins from our food were doing in our bodies.  Vitamins are substances that our bodies cannot manufacture, so we must ingest them every day.  Without them, our bodies cannot manufacture life sustaining enzymes and we sicken and die.   At home alone, I could feel myself dying.  It's an unnerving feeling, to say the least, and, so, with nothing left to lose, I relied in my education in nutrition.  My symptoms of Thiamine deficiency were the worst, so I began taking high dose Thiamine.  I had health improvement within an hour.  It was magical.  I continued taking high dose thiamine with a B Complex, magnesium. and other essential nutrients.  The health improvements continued for months.  High doses of thiamine are required to correct a thiamine deficiency because thiamine affects every cell and mitochondria in our bodies.    A twenty percent increase in dietary thiamine causes an eighty percent increase in brain function.  The cerebellum of the brain is most affected.  The cerebellum controls things we don't have to consciously have to think about, like digestion, balance, breathing, blood pressure, heart rate, hormone regulation, and many more.  Thiamine is absorbed from the digestive tract and sent to the most important organs like the brain and the heart.  This leaves the digestive tract depleted of Thiamine and symptoms of Gastrointestinal Beriberi, a thiamine deficiency localized in the digestive system, begin to appear.  Symptoms of Gastrointestinal Beriberi include anxiety, depression, chronic fatigue, headaches, Gerd, acid reflux, gas, slow stomach emptying, gastroparesis, bloating, diarrhea and/or constipation, incontinence, abdominal pain, IBS,  SIBO, POTS, high blood pressure, heart rate changes like tachycardia, difficulty swallowing, Barrett's Esophagus, peripheral neuropathy, and more. Doctors are only taught about thiamine deficiency in alcoholism and look for the classic triad of symptoms (changes in gait, mental function, and nystagmus) but fail to realize that gastrointestinal symptoms can precede these symptoms by months.  All three classic triad of symptoms only appear in fifteen percent of patients, with most patients being diagnosed with thiamine deficiency post mortem.  I had all three but swore I didn't drink, so I was dismissed as "crazy" and sent home to die basically.   Yes, I understand how frustrating no answers from doctors can be.  I took OTC Thiamine Hydrochloride, and later thiamine in the forms TTFD (tetrahydrofurfuryl disulfide) and Benfotiamine to correct my thiamine deficiency.  I also took magnesium, needed by thiamine to make those life sustaining enzymes.  Thiamine interacts with each of the other B vitamins, so the other B vitamins must be supplemented as well.  Thiamine is safe and nontoxic even in high doses.   A doctor can administer high dose thiamine by IV along with the other B vitamins.  Again, Thiamine is safe and nontoxic even in high doses.  Thiamine should be given if only to rule Gastrointestinal Beriberi out as a cause of your symptoms.  If no improvement, no harm is done. Share the following link with your doctors.  Section Three is especially informative.  They need to be expand their knowledge about Thiamine and nutrition in Celiac Disease.  Ask for an Erythrocyte Transketolace Activity test for thiamine deficiency.  This test is more reliable than a blood test. Thiamine, gastrointestinal beriberi and acetylcholine signaling.  https://pmc.ncbi.nlm.nih.gov/articles/PMC12014454/ Best wishes!
    • Jmartes71
      I have been diagnosed with celiac in 1994, in remission not eating wheat and other foods not to consume  my household eats wheat.I have diagnosed sibo, hernia ibs, high blood pressure, menopause, chronic fatigue just to name a few oh yes and Barrett's esophagus which i forgot, I currently have bumps in back of my throat, one Dr stated we all have bumps in the back of our throat.Im in pain.Standford specialist really dismissed me and now im really in limbo and trying to get properly cared for.I found a new gi and new pcp but its still a mess and medical is making it look like im a disability chaser when Im actively not well I look and feel horrible and its adding anxiety and depression more so.Im angery my condition is affecting me and its being down played 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.