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Are These Tests Enough?


Lesliean

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Lesliean Apprentice

Off Gluten 21 days when I had these tests-Antigliadin Antibody panel IGA,IGG

Tissue Transglutanimase IGG, IGA

Reticulin IGG Antibody IFA

All were negative but I KNOW I am positive. What more do I need them to order and which go negative when gluten-free for a month?

Thanks so much :D

Leslie


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MySuicidalTurtle Enthusiast

Do you need a positive result for something?

If not you can still eat glutenfree since it makes you feel better.

You could always have the biopsy, too.

Carriefaith Enthusiast

Make sure that you inform your doctor that you were gluten free for 3 weeks before the tests. In order to get accurate results, you need to be eating gluten when you get tested so that there are antibodies in your blood. For some people the antibodies can stay in their systems for awhile, but everyone is different... I'm no expert on this subject, maybe someone else could fill in?

I would discuss this with your doctor. Good luck.

FaithInScienceToo Contributor

I went gluten-free on my own BEFORE learning that it would interfere with regular testing...BUT, since I felt SOOOO much better after going gluten-free, I cannot possibly make myself eat gluten again, just to try to get positive test results via blood (which aren't always reliable), and I refuse to have any more invasive tests done if I don't need to - i.e.; biopsy (which also isn't always reliable)...2 gastro surgeries are enough for me.

So, anyway....

I used the EnteroLab testing - You can have these tests done EVEN AFTER going gluten-free, and they required only one stool sample and 2 cheek cell samples...all sent via DHL. (You can only send samples on Mon, Tues, or Wed to insure they get there before the weekend.)

I sent my samples off yesterday, and will get my results within 3 weeks. They will be able to tell me if I am suffering from malabsorption (duh!), if my immune system is already messed up by gluten (if it has antibodies to it, and how strongly it is reacting), and if I am genetically loaded for Celiac Disease (which and how many of the genes I might have). I also got a free dairy-intolerance test thrown in :-) [Guess I still just need the test for egg protein, which they also offer, and which can also be a problem for those with gluten-intolerance.]

Here's their web site URL:

Open Original Shared Link

Good luck to you Lesliean,

Gina

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      Hey @Butch68, I also have dermatitis herpetiformis but don't suffer from it anymore. I used to drink Guinness too but I drink Cider now when out on social occasions. I assume you are in Ireland or the UK. If it's any good to you ... 9 White Deer based in Cork brew a range of gluten-free products including a gluten-free Stout. I'm not sure if they are certified though. https://www.9whitedeer.ie/ I haven't come across any certified gluten-free stouts this side of the pond.
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      Interestingly, this thought occurred to me last night. I did find that there are studies investigating whether vitamin D deficiency can actually trigger celiac disease.  Source: National Institutes of Health https://pmc.ncbi.nlm.nih.gov/articles/PMC7231074/ 
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      Before being diagnosed coeliac I used to love Guinness. Being made from barley it should be something a coeliac shouldn’t drink. But taking to another coeliac and they can drink it with no ill effects and have heard of others who can drink it too.  is this everyone’s experience?  Can I drink it?  I get dermatitis herpetiformis and don’t get instant reactions to gluten so can’t try it to see for myself. 
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