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Looking For Celiac Specialist In Los Angeles/after 1 Yr Of Gluten Free I'm Still Sick

HippyGirl84

By HippyGirl84
in Doctors

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HippyGirl84 Rookie
HippyGirl84
Posted

Hi, I have been living in California for about a yr and a half during which I uncovered the devastatingly long and frustrating truth that i had been suffering from Celiac disease. Being 23, and working to just get by in a big city, I didn't have health ins so i paid out of pocket for the blood work....now I have some insurance and want to see a specialist (b/c after a yr of being strictly gluten free i am still having issues)....

so my questions are:

1. Does anyone know of a GOOD Celiac/Gastro Dr. in the L.A./San Fernando Valley area?

2. Can I see a specialist without my insurance co finding out? (b/c they will drop me if they find i have Celiac...it took me a yr to get THIS ins i have now b/c no one would take me that knew of the bloodwork i had done for celiac!)

3. Has anyone else had severe problems like shaking (sometimes as intense as mini seizures), persisting daily nausea, malnutrition (despite the B12 shots i get every 10 days), teeth enamel loss and incredible fatigue even after a YEAR of strictly monitoring their food intake and being as gluten free as humanly possible?

I appreciate the help! thanks in advance!

HippyGirl84

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    • kpf
      ttg iga high (646 mg/dl) other results are normal

      By kpf · Posted

      And of course I get these results (the ttg iga marked high at 646 mg/dL) on a Friday in my portal, my doctor wasn't in, and now we are in the weekend—leaving me to have to try and figure things out on my own until sometime next week. None of the nurses at the office would talk to me. 
    • kpf
      ttg iga high (646 mg/dl) other results are normal

      By kpf · Posted

      peptide iga, peptide igg, and ttg igg were all marked normal with limits noted as <15.0
    • kpf
      ttg iga high (646 mg/dl) other results are normal

      By kpf · Posted

      Gliadin peptide iga was 0.7 U/mL Gliadin peptide igg was <0.4 U/mL IGA TTG was 646 mg/dL (marked high with limits noted as 40-350) IGG TTG was <0.8 UmL
    • kpf
      ttg iga high (646 mg/dl) other results are normal

      By kpf · Posted

      I can’t figure out how to attach a photo here, but thank you so much for your response. And thank you for the welcome. 
    • trents
      ttg iga high (646 mg/dl) other results are normal

      By trents · Posted

      Are you asking if it is typical to only have the ttg-iga be high and the other tests being within normal range? Is so, the answer is it is very common. What other tests were included in the celiac panel? Can you list all tests and include not only the scores but the reference ranges? Different labs use different reference ranges so it is difficult to say much by just looking at the scores. Welcome to the forum, @kpf!
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