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Waiting Forever

wsieving

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wsieving Contributor
wsieving
Posted

This seems like the longest wait in the history of waiting. It is even dragging by slower than that last month of pregnancy that seems to take a year. I've researched everything available on the internet, I've been to doctors, and now waiting on the specialist. Another 12 days seems like forever away. Does it always take this long to get in to see a specialist?

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mftnchn Explorer
mftnchn
Posted

What specialist are you waiting for?

darlindeb25 Collaborator
darlindeb25
Posted

A good specialist is worth their weight in gold!!! When they are good, it always takes a long time to see them.

I wanted to see this neurologist, Dr. G...#1 in his field. A friend of mine finally got an appt with him and he was very impressed, and he had seen several neuro's previously. I called for an appt with him and could not be seen for 4-5 months, they offered me another neuro in the same office, who had a cancellation that week. I accepted, thinking I may never get to see Dr. G. I was with the other neuro for 1 yr, and getting no where. I belong to another forum, Neurotalk, and we were discussing good and not so good doctors. I mentioned how unhappy I was with my neuro, and how I had wanted to see Dr. G so much. Believe it or not, Dr. G reads in that forum, he came across my post, emailed the forum administrator, and asked him to give me his email addy, saying if I still wanted to see him, send him an email. I sent the email, and within 15 mins, Dr. G emailed me back, told me to call his office coordinator, and they would set me up with an appt. I saw him in 6 weeks, he spend at least 45 minutes with me. Color me impressed!!! :lol:

The last week in August, I tried to schedule my next appt with him...he is totally booked for the year, and they do not have a schedule for next year yet. They have 3 offices, and need to schedule who is where for the next year. He is worth his weight in gold, kind of a nice Dr. House...he finds the reason!

I hope you found someone just as good.

wsieving Contributor
wsieving
Posted
  • Author

I'm waiting to see a pediatric GI at Children's Mercy. They are known to have the best pediatric docs in the state, so yes, hopefully he will be worth the wait! DD is seeing Dr Robert Kane, who is also the Professor of Pediatrics at UMKC.... hoping that is he is teaching students then he must know what he is doing (not always true, I know).

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      Welcome to celiac.com @sha1091a! Your experience is a very common one. Celiac disease is one the most underdiagnosed and misdiagnosed medical conditions out there. The reasons are numerous. One key one is that its symptoms mimic so many other diseases. Another is ignorance on the part of the medical community with regard to the range of symptoms that celiac disease can produce. Clinicians often are only looking for classic GI symptoms and are unaware of the many other subsystems in the body that can be damaged before classic GI symptoms manifest, if ever they do. Many celiacs are of the "silent" variety and have few if any GI symptoms while all along, damage is being done to their bodies. In my case, the original symptoms were elevated liver enzymes which I endured for 13 years before I was diagnosed with celiac disease. By the grace of God my liver was not destroyed. It is common for the onset of the disease to happen 10 years before you ever get a diagnosis. Thankfully, that is slowly changing as there has developed more awareness on the part of both the medical community and the public in the past 20 years or so. Blessings!
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