Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Getting Dh And I Tested


wsieving

Recommended Posts

wsieving Contributor

Ok, so while we're waiting to see our DD's ped GI, I really want to have DH and I tested. I think it would give us more insight, and if one of us were positive then I probably would absolutely refuse an endoscopy for DD b/c we are 99% sure she has it anyway...

I was wondering if you think I could just call my doc and ask him to give me orders for a lab? I really do not want to have to make an appt for me and DH, pay the co-pays, when really all I want is a lab. As it is, we're forking out gas money and co-pays for the specialist for my DD... I just really can't afford anymore. But if the doc just ordered a lab, with no office visit, there would be no copay, and I could make payments on whatever my insurance didn't cover. Do you think it is reasonable for me to ask him to do that since DD is suspected of having Celiac? Or will we have to wait for a formal diagnosis from her doc in order to get testing done for us?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



ravenwoodglass Mentor
Ok, so while we're waiting to see our DD's ped GI, I really want to have DH and I tested. I think it would give us more insight, and if one of us were positive then I probably would absolutely refuse an endoscopy for DD b/c we are 99% sure she has it anyway...

I was wondering if you think I could just call my doc and ask him to give me orders for a lab? I really do not want to have to make an appt for me and DH, pay the co-pays, when really all I want is a lab. As it is, we're forking out gas money and co-pays for the specialist for my DD... I just really can't afford anymore. But if the doc just ordered a lab, with no office visit, there would be no copay, and I could make payments on whatever my insurance didn't cover. Do you think it is reasonable for me to ask him to do that since DD is suspected of having Celiac? Or will we have to wait for a formal diagnosis from her doc in order to get testing done for us?

I would go ahead and call and ask. Are you and your DH having health issues of your own? If so that might make it easier to get them to order the test. If you have the kind of doctor who does evening call backs I would ask to have him call and ask him directly. That way you could explain why you really want the tests done ASAP. Even if your not having issues if your DD has had a positive blood then she does have it, regardless of the endo. If she has had a positive blood all first degree relatives need to be tested whether they have symptoms or not.

wsieving Contributor

DH and I could both possibly fit some of the classic Celiac symptoms. Neither one of us seems to think it is reasonable that we both have it (what would be the odds?), but it is a definite possibility and we wouldn't be surprised which one of us it was.

These are my symptoms:

Weight issues all my life (gaining, not losing, to eating all I want and maintaining),

Joint pain since I was 17, now getting worse, started in my knees at 17 and is now in both shoulders as well as my fingers/wrists if I am doing anything intricate like crocheting

Chronic constipation in my late teens/early twenties

Now I have a BM anywhere between at least twice per day to 6 times per day (about half or more float)

ADD/Anxiety/Depression depending on the day, but I've really learned to control the swinging moods without meds because I really hate being dependent on drugs to be "normal"

Insomnia/wild dreams

constant fatigue

typically low iron

Struggled with cavities since I was 21... my poor teeth

And I don't know if this one counts, but I was reading somewhere about a link between Mono and Celiac, I had a severe case of Mono when I was 17 coupled with Strep at the same time

Now, here are DH's symptoms:

Overweight since late teens/early twenties

I've ALWAYS accused him of having IBS... food seems to go straight through him depending on what we have. He says it never floats, but he has loose stools more than anyone I know

He has always had high blood pressure

Sleep Apnea

A slew of allergies as a kiddo

Incredibly gassy....*pppeeeeeeew*

The past few years his teeth have started having more cavaties

His mother and his sister struggled with infertility and obesity, also his niece was diagnosed with rheumatoid arthritis at 3

I'm not really sure what to think. DH thinks it's me, but I lean more towards him.

ravenwoodglass Mentor
DH and I could both possibly fit some of the classic Celiac symptoms. Neither one of us seems to think it is reasonable that we both have it (what would be the odds?), but it is a definite possibility and we wouldn't be surprised which one of us it was.

The odds you both are gluten intolerant are really pretty good. Everyone in my family assumed it was inherited from me until I pointed out that both children showed up on blood work. I don't. That prompted my ex to get tested and guess what? He was positive also. You both show symptoms of gluten intolerance even if it is not full blown celiac. After you all are done with the testing you choose to do the whole family should go on the diet, strictly for a bit. Even if those results are negative or a real low positive. I think you will be surprised how much everyones health will improve.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - yellowstone posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      0

      Cold/flu or gluten poisoning?

    2. - Churro replied to Churro's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      17

      Celiac disease symptoms

    3. - Wheatwacked replied to Churro's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      17

      Celiac disease symptoms

    4. - trents replied to Churro's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      17

      Celiac disease symptoms

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,066
    • Most Online (within 30 mins)
      7,748

    lgcalvitti
    Newest Member
    lgcalvitti
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • yellowstone
      Cold/flu or gluten poisoning? Hello. I've had another similar episode. I find it very difficult to differentiate between the symptoms of a cold or flu and those caused by gluten poisoning. In fact, I don't know if my current worsening is due to having eaten something that disagreed with me or if the cold I have has caused my body, which is hypersensitive, to produce symptoms similar to those of gluten poisoning.        
    • Churro
      I'm no longer dealing with constipation. I got my liver test last month and it was in normal range. Two years ago I did have a vitamin D deficiency but I'm know taking vitamin D3 pills. Last month I got my vitamin D checked and it was in normal range. I don't believe I've had my choline checked. However, I do drink almond milk eat Greek yogurt on a daily basis. 
    • Wheatwacked
      Non-Celiac Gluten Sensitivity (NCGS) can be associated with low ferritin and iron deficiency. Once Celiac Disease (1% of the population affected) has been ruled out by tests the next step is to check for Non Celiac Gluten Sensitivity (10% of the population affected) by eliminating gluten for a trial period, then re-introduce Gluten Challange. Have you been supplementing Iron? How are your liver enzymes? Low levels of ferritin indicate iron deficiency, while  59% transferrin saturation indicates high iron levels.  Possibly indicating Fatty Liver Disease.  Choline is crucial for liver health, and deficiency is a known trigger for Non-Alcoholic Fatty Liver.  Some experts say that less than 10% eat the the Food and Nutrition Board established Adequate Intake that are based on the prevention of liver damage. Severe constipation and hemorrhoids may be linked to a bile or choline deficiency.  "Ninety-five percent of phospholipids (PLs) in bile is secreted as phosphatidylcholine or lecithin."  Fatty acid composition of phospholipids in bile in man   Deficiency of these bile salts causes the bile to get thick. Some people with Celiac Disease are misdiagnosed with Gall Bladder bile issues.  Removal of the gallbladder provides only temporary relief. Whether or not celiac disease or NCGS are your issues you need to look at your vitamin D blood level.   
    • Churro
    • trents
      If you have hemorrhoids 1x weekly I don't see how you have time to heal from one episode before you experience another one, unless each one is a very minor event. Have you consulted a physician about your hemorrhoid issue? It's not normal to be having an episode every week unless it is really one episode that is not completely healing between weekly flareups.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.