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Frustrated With Test Results


Hannahsmommylisaw

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Hannahsmommylisaw Newbie

we had another set of celiac testing come back neg on my 15th read the link for more bg whats the incidence of false negatives they said his level was 2 - I think it was the total iga ??? they run

we are now on the gluten free diet to see if it helps these docs dont want to see him and dont want to refer us anywhere yet I am supposed to just sit and let my sone be in pain all the time while they say he has a behavioral issue

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mftnchn Explorer

I'm finding your post a little hard to read. Did you mean the total IgA is very low? If so, the other blood tests would be unreliable.

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    • AnnaNZ
      Hello. Do you mind saying what symptoms led the doctors to test for bacteria in your blood?
    • trents
      So you you ate wheat products every single day for 50 years without a problem but then in the 90's you discovered that wheat was your problem. That's confusing to me. It seems contradictory. Did you have a problem or not?
    • The Logician
      I spent my first 50 years eating wheat products every single day with no ill affects. Being a 6’2” Italian you can imagine what my diet was like and believe me I had an appetite that wouldn’t quit. In the 90’s once I discovered the wheat was my problem I avoided it and no longer had IBS.  I seriously doubt I have celiac but I appreciate your input and will let you know if I have a problem with wheat again. I’ve been eating things I’ve longed for for decades and have never felt better.
    • trents
      I would say two things and then I'm done. Many celiacs have been misdiagnosed for years with IBS. Testing for celiac disease requires regular and significant consumption of gluten for weeks/months in order to be valid.
    • RMJ
      Can the rest of your household eat the food with gluten instead of getting rid of it? Can you create one shelf, or partial shelf, for your new food in the pantry, in the fridge and in the cabinets as a start? My husband is not gluten free so we each have a cabinet, and separate shelves in the fridge. If we have to share space the gluten free foods go on the upper shelves so crumbs with gluten can’t fall onto them. Good luck!
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