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Debating Testing On 12 Mo Old.

chefdana

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chefdana Newbie
chefdana
Posted

To begin, today is the first day I have even looked up Celiac disease, no needless to say I really know NOTHING about it.

My daughter has had constant loose stools since June when she was 10 mo old. This is also the time we went from breastmilk to formula. For the last week we have been off all dairy and her stools seem worse. She is having about 2 a day and they are awful, smelly, light green and full of undigested food. Other than that she doesn't have any symptoms, no pain, no bloating, she is a bit gassy, but not bad.

The only other thing is that my husband has had horrible digestive issues including gas, diarrhea and pain for the 10+ years I have known him.

Is there any reason we should be tested...my Ped said to take my dd off dairy for about 2 weeks (again we are just starting the second week), then if no improvement take her off soy dairy for another 2 weeks and see if that helps. If no improvement then he thought we should do the blood test for celiac. But after reading a bit it doesn't seem like the blood test is very definitive. Does my daughter even sound like she fits the profile?

Okay thanks for your help, just trying to find a place to begin...

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kbalman Rookie
kbalman
Posted

Does she have any other symptoms? I just started my son on gluten diet after going through blood work, stool tests, biopsie and the list goes on. Only to find out that all the tests under the age of 3 are inaccurate. Did alot of research and I am 99% sure my son has celiac. thanks to this forum and encouragement from others I said hell with the drs (been to two gis, two pediatricians, dietician) I am trying the diet to see how he does.

My 15 month old sons symptoms included (they can be different for each child)

consitpation

bloated belly

lactose intollerant

anemia

skin issues rashes ulcers in mouth

fussiness

excessive spitting up

failure to thrive very little weight or heigh gain in last 8 months he is below 3rd percentile

hope this helps.

llmom Newbie
llmom
Posted
Does she have any other symptoms? I just started my son on gluten diet after going through blood work, stool tests, biopsie and the list goes on. Only to find out that all the tests under the age of 3 are inaccurate. Did alot of research and I am 99% sure my son has celiac. thanks to this forum and encouragement from others I said hell with the drs (been to two gis, two pediatricians, dietician) I am trying the diet to see how he does.

My 15 month old sons symptoms included (they can be different for each child)

consitpation

bloated belly

lactose intollerant

anemia

skin issues rashes ulcers in mouth

fussiness

excessive spitting up

failure to thrive very little weight or heigh gain in last 8 months he is below 3rd percentile

hope this helps.

llmom Newbie
llmom
Posted

I too am 41 year old with Celiac. my 3 year old was tested when he was 14 mos and came back negative... however, now I am on the side believing that he is positive. during and currently with the potty training "thing" the poop training is not going well.... I think because of the celiac, it comes up on him so fast that he doesn't know when he has to go and we have all kinds of accidents. so we are now a full 2 weeks into a gluten free diet and it is getting much, much better. now my 19 month old doesn't seem to have any symptoms but due to the diet for myself and the 3 year old he is on it as well, as is my husband by default. just hang in there and go with your gut instincts.

Chelsea-A Rookie
Chelsea-A
Posted
To begin, today is the first day I have even looked up Celiac disease, no needless to say I really know NOTHING about it.

My daughter has had constant loose stools since June when she was 10 mo old. This is also the time we went from breastmilk to formula. For the last week we have been off all dairy and her stools seem worse. She is having about 2 a day and they are awful, smelly, light green and full of undigested food. Other than that she doesn't have any symptoms, no pain, no bloating, she is a bit gassy, but not bad.

The only other thing is that my husband has had horrible digestive issues including gas, diarrhea and pain for the 10+ years I have known him.

Is there any reason we should be tested...my Ped said to take my dd off dairy for about 2 weeks (again we are just starting the second week), then if no improvement take her off soy dairy for another 2 weeks and see if that helps. If no improvement then he thought we should do the blood test for celiac. But after reading a bit it doesn't seem like the blood test is very definitive. Does my daughter even sound like she fits the profile?

Okay thanks for your help, just trying to find a place to begin...

Chelsea-A Rookie
Chelsea-A
Posted
To begin, today is the first day I have even looked up Celiac disease, no needless to say I really know NOTHING about it.

My daughter has had constant loose stools since June when she was 10 mo old. This is also the time we went from breastmilk to formula. For the last week we have been off all dairy and her stools seem worse. She is having about 2 a day and they are awful, smelly, light green and full of undigested food. Other than that she doesn't have any symptoms, no pain, no bloating, she is a bit gassy, but not bad.

The only other thing is that my husband has had horrible digestive issues including gas, diarrhea and pain for the 10+ years I have known him.

Is there any reason we should be tested...my Ped said to take my dd off dairy for about 2 weeks (again we are just starting the second week), then if no improvement take her off soy dairy for another 2 weeks and see if that helps. If no improvement then he thought we should do the blood test for celiac. But after reading a bit it doesn't seem like the blood test is very definitive. Does my daughter even sound like she fits the profile?

Okay thanks for your help, just trying to find a place to begin...

Chelsea-A Rookie
Chelsea-A
Posted

It takes time to figure these things out and it's so hard when we want the answers yesterday. You'll get there.

I am a mom of an 18 month old. He was diagnosed with celiac at 13 months old. His diarrhea started at 7 months old. He had severe diarrhea 5-10 times a day. He dropped off his growth curve, failure to thrive. After lots of test and worry (six months) we finally got our answer. His blood work was inconclulsive because his total IgA were low. We went for the EGD and his biopsy was positive for celiac.

I agree that most of the time biopsies are neg at this age. But they can be positive.

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Fiddle-Faddle Community Regular
Fiddle-Faddle
Posted

Unfortunately, I do think dietary response is your most accurate diagnostic tool at this stage.

Kudos to you for looking for answers right away. I can't tell you how many parents I have talked to (mostly moms of autistic kids in waiting rooms at occupational therapy and speech therapy) who said their kids had digestive problems from the moment they started formula, but they never took them off dairy!

I would keep looking for a milk substitute, and I would definitely eliminate the top allergens (wheat, dairy, soy, corn, citrus, strawberries, peanuts, etc) as well as other sources of gluten (rye, barley, anything with malt, even oats) from your child's diet until the poops normalize.

My oldest had those poops full of undigested--even unchewed--food, too. I think that is a sign of leaky gut, but someone correct me if I am wrong on this. Anyway, he is definitely sensitive to wheat and dairy.

Is it possible for you to either resume nursing or pump your own milk? And what solid foods is the baby eating at this time?

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