Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Breakthrough Bleeding On Birth Control


HAK1031

Recommended Posts

HAK1031 Enthusiast

Hello all,

I have had issues with my period since I started (rather late at 14, compared with 11 for all of the other women in my family...now I'm almost 17). I only had three real periods the first year or so, with several episodes of a few days of light spotting. I had really uncomfortable cramps as well, so I went to the gyno. She diagnosed me with endometriosis and put me on birth control (yaz) which worked wonders for the first 7 months...then I had breakthrough bleeding that didn't stop.

I have since had the same thing happen with five different pills in the past 18 months, with some being effective for only a month and others for several months. Since May I have been on Seasonique, which was working well until about 10 days ago, when I started getting breakthrough bleeding. These episodes are really painful and inconvenient, as you might imagine. There is nothing I can do to make the bleeding stop, and there are times when it is really heavy. The last time this happened, I was in Scotland, and I started bleeding two days before I was supposed to go home...and was in the bathroom every two hours on the plane.

My gyno has always told me that some women just have this problem, but I started thinking...could I somehow be malabsorbing the hormones? While I have been gluten-free for almost a year, I have had a hard time healing. I still get CC'd way more often than I probably should-- about once or twice every couple of months. I read online that two or more days of D in a row while taking the pill should be considered a "missed" pill. I definitely still have digestive issues in that respect, although it is not totally D. I have an appointment with the gyno on wednesday (a different one than usual, the usual one is in France) and I was going to bring it up then. Anyone have any thoughts or experiences with this?

Here are the pills I have been on:

-yaz

-Lo Estrin 24 FE

-Femcon FE

-Portia

-seasonique

My gyno also says she doubts I have ever ovulated..probably a celiac complication. I have no idea if this will resolve itself and I will be able to have biological children.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Janessa Rookie

I had the same problem on birth control (though I don't have endometriosis) I was fine on it for months then breakthrough bleeding that kept getting worse until it was like everyday. My doctor kept switching pills but it kept happening and then I started having more symptoms (the bad ones like the super bad headaches that aren't like normals headaches) and my dr. had to take me off hormonal birth control altogether.

I also notice that soy also messes with my period so I've stopped eating that as well.

Janiney Rookie

Have you considered the other methods of contraception like the contraceptive patch or injection? These methods would go directly into your skin and so there would be no chance that your gut would not absorb them.

When I realised I had coeliac disease I was worried that my pill might contain gluten and as I couldn't get a reply from the manufacturers I went to my doctor to look into other methods. I'm on the contraceptive patch now and although I had some 'breakthough bleeding' in the middle of my cycle last month it only lasted a week and then went away, the leaflet inside says this is normal and just your body adjusting.

I guess there are always other things like condoms etc, it might be that hormonal contraception just doesn't agree with you and you could be better letting your body do it's thing... just depends on your preference! B)

debmidge Rising Star

I am not celiac, my husband is.....anyway I've had breakthrough bleeding when I used

the Pill and part of the issue was I needed a stronger prescription and I had fibroids which

bled a lot.

HAK1031 Enthusiast

Well I'm now on nuvaring so we''ll see how that works out, but the gyno said it may be time to consider surgery for the endometriosis :( arghh it's frustrating. But I'm hoping this works, as my next option is to go on lupron and basically put my body into pseudomenopause...which I'd rather not do at 17...

oh and i'm not on the pill for contraception, it's because i've had so many issues w/ my period. believe me, if I could go off it I would! it's more trouble than it's worth!

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      129,575
    • Most Online (within 30 mins)
      7,748

    SilReg
    Newest Member
    SilReg
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.2k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • KimMS
      Thank you! This is very helpful. Quick followup: what is your recommendation re: gluten-free prepared foods (labeled gluten-free or certified gluten-free) during this time of being more strict about eating gluten-free? Is it necessary to eat only whole foods prepared at home, or is it safe to include prepared / packaged foods in her diet (I'm thinking particularly of snack foods)?
    • xxnonamexx
      Is blending same as cold press? Is there any juice recipe you tried that you feel helped like the ginger turmeric? Is there a brand turmeric powder you used etc? I used Aloe vera years ago but the taste is hard to get down. What are your go to juices you made?
    • Scott Adams
      Your genetic test results confirm that you carry the highest-risk markers for celiac disease, specifically the HLA-DQ2 haplotype (while being negative for HLA-DQ8). The fact that both HLA-DQA1*05 and HLA-DQB1*0201 appear twice means you inherited identical copies from each parent, making you homozygous for these genes. This double dose of the DQ2.5 haplotype is significant because it indicates an even stronger genetic predisposition to celiac disease compared to those who only inherit one copy. Research suggests that people with this homozygous pattern may have a higher likelihood of developing the disease, potentially more severe immune responses to gluten, and a stronger association with dermatitis herpetiformis (which aligns with your diagnosis). While this genetic profile doesn’t guarantee worse symptoms, it does reinforce why strict gluten avoidance is critical for you. Since you’re already diagnosed, the main takeaway is that your results explain your biological susceptibility—no further genetic counseling is needed unless you have family planning questions. The repeating variants simply mean both parents passed you the same high-risk alleles, which is why your body reacts so strongly to gluten. Ultimately, your diagnosis and management remain the same, but this insight helps underscore the importance of lifelong dietary diligence.
    • Scott Adams
      It sounds like you and your daughter are navigating celiac disease with a lot of care and dedication, and it’s wonderful that you’re prioritizing her health and growth during this critical time. Since her antibody levels and growth have plateaued, tightening up her diet by avoiding eating out (except at dedicated gluten-free places) is a smart move—even if it’s challenging socially. Many parents of celiac kids report significant growth spurts once gluten exposure is minimized, so there’s hope she’ll catch up if her levels improve. As for the future, while her growth window closing may reduce some risks, celiac is lifelong, and staying as strict as possible will likely always be best to avoid long-term complications, even if occasional cautious outings become manageable later. Navigating this with a teenager is tough, especially with spontaneous social events. For unplanned outings, keeping safe snacks (like GF protein bars, nuts, or fruit) in her bag or your car can help. To boost nutrition, try sneaking in variety where you can—like lentil or chickpea pasta instead of rice pasta, or adding veggies and proteins to her favorite dishes. Involving her in meal planning might help with pickiness, and connecting with other celiac families or support groups could provide social strategies and emotional support. It’s exhausting, but you’re doing an amazing job—your efforts now will set her up for a healthier future. Hang in there!
    • Scott Adams
      This is good news--I hope we can get this done on a national level!
×
×
  • Create New...