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Not Much Has Changed


S-J-L

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S-J-L Apprentice

Not much has changed since being gluten free for about 8 months. Im still really tired,and my constipation went away for a while, but now its returning. I have slipped up a couple of times with my diet though, but the rest of time im strictly gluten free. I get gastritis and heartburn alot now, im only 21. Ive put on 2 kg, but im still only about 48.5kg (around 110 pound) and 5'8.

What do i do?? Im pretty sure im not lactose intolerant.

Now im getting lumps on the back of my neck. Apparently the 1st one was a swollen lymph node, and it went away with antibiotics. Now i have another one! Maybe i just have constant infections that i dont know about.

Ideas??


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ravenwoodglass Mentor

The first thing you need to do is to drop the dairy for a bit. The same villi that are damaged by gluten also are needed to digest dairy. They may not recover until you drop the dairy. You can add dairy back in after a couple of months and see if it is then tolerated. Most can add it back in after they have healed.

How much processed food are you eating? Not all companies tell you about CC issues. Frito Lay is a excellent example of this. Almost nothing they make is actually gluten free because of the processing. Most of us can tolerate the plain chips but most of the other items are like playing roulette. They will be okay one time but not the next. If you can go with whole unprocessed food for a bit that will help you heal. Do you live with gluten eaters? If you do you need to be a bear about CC issues if you are not already. Do you take any meds? The labeling laws do not apply to meds. You need to check the gluten statis of any med you take both over the counter, script, supplements and herbs. How about all your toiletries, shampoos, lotions and makeup? Those need to be gluten free also.

The lymph system helps to clear antibodies out of our systems. Many of us have swollen glands from the bodies fight against gluten and its antibody reaction. This is likely why lymphoma is more common in celiacs that have been undiagnosed for many years. It can take a very long time for the lymph glands to go down.

Do you take a sublingual B12? If you don't be sure to get some, that will help with the fatigue. Those same villi that are damaged are needed to form the factor that allows your body to absorb and utilize the B12 from regular supplements or food so make sure that the B12 is sublingual (dissolves under the tongue and absorbed directly into the bloodstream through the mucous membranes in your mouth)

ShayFL Enthusiast

Good advice from Raven. And get your Thyroid, Ferritin, Vit D checked while you are at it. There are so many things that can need to be addressed with Celiac.

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    • knitty kitty
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    • catnapt
      during the gluten challenge I did not consume any wheat germ   the wheat germ is TOASTED - it's the only way it is sold now afiak doesn't matter I consume vast amounts of lectin containing foods PROPERLY prepared and have for well over a decade. They do not bother me in the least.    no anemia however the endo who ordered the celiac panel is the one who suggested the 2 week gluten challenge of eating at least 2 slices of bread per day or a serving of pasta- ALSO put me on a new drug at the same time (not a good idea)  I ate 4 slices because they were thin, or 2 English muffins, and just once some lasagna that someone else made since I stopped eating wheat pasta years ago. The English muffins caused some of the worst symptoms but that pc of lasagna almost killed me ( not literally but the pain was extreme) during those 12 days there were at least 3 times I considered going to Urgent Care.   This entire process was a waste of time TBH due to being on that new drug at the exact same time. it is impossible to tell if the drug I am taking for the possible renal calcium leak is working or not- given the dramatic response to the gluten challenge and resulting nausea (no vomiting) and eventually a loss of appetite and lower intake of foods so now I have a dangerously low potassium level   I don't have a simple case of celiac or no- I have an extremely complicated case with multiple variables I am seeing an endocrinologist for a problem with the calcium sensing glands - that system is very complicated and she has been unable to give me a firm diagnosis after many tests with confusing and often alarming results. She also appears to be inexperienced and unsure of herself. but I don't have the luxury of finding a new endo due to multiple issues of insurance, lack of drs in my area, money and transportation. so I'm stuck with her At least she hasn't given up    in any case I can assure you that lectins are not and never were the problem. I know they are a favorite villain in some circles to point to, but I have ZERO symptoms from my NORMAL diet which DOES NOT contain gluten. The longer I went without bread or foods with wheat like raisin bran cereal, the better I have felt. my body had been telling me for several years that wheat was the problem- or maybe specifically gluten, that remains to be seen- and stopping eating it was the best thing I could have done   I almost had unnecessary MAJOR SURGERY due to joint pain that I ONLY have if I am eating bread or related products I assumed it was the refined grains - never really suspected gluten but it does not matter I won't put that poison in my body ever again not that it is literally poison but it is def toxic to me        
    • knitty kitty
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    • catnapt
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