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Could This Be (mild) Dh?


DarkIvy

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DarkIvy Explorer

A few months before I figured out that I couldn't eat gluten, I started getting bumps on my ankles. They were little red bumps that were itchy and painful, and they took a really, really long time to heal. The eventually left purple marks for several weeks after they subsided. I assumed they were just spider bites or something similar at the time, because I was in a dorm that had a lot of spiders (yuck!).

Around this time, I also developed some really, really itchy patches on my knees that felt kind of swollen, and my normal eczema medication wasn't helping it at all.

Going gluten free seemed to help a lot initially, but I went through a period of about a year in which it was very difficult for me to avoid gluten totally- I was living in a sorority house where I couldn't just cook, not living at home, not having access to a kitchen. I was constantly sick again, and it wasn't until this August that I actually finally had my own place and have really become a lot more diligent about the foods I eat. I never did anything like eat bread or pasta, but was getting low doses of gluten in my food from cross contamination very often... we got a new chef in January that baked my sandwich on gluten free bread on a pan full of gluten crumbs, for example. During this time, I sporadically got spots on my legs that looked like pimples and itched like crazy. I got them pretty sporadically, though, so I wasn't too concerned.

Since moving into my new apartment, the couple times I've been glutened, I've gotten more spots than normal, again mostly on my legs. They still look like red pimples, but they itch and burn, and it makes my knees, calves, and inner thighs itch like crazy. Some of them fade fast, but a handful always take a couple weeks to heal. It's still not a lot of them, just a handful... scattered mostly on my calves, ankles, and knees. Sometimes I also get a couple on my butt :/

Anyway I have been told in the past that I also have a wheat allergy. This was ages ago, long before I knew I had celiac, so I wonder if maybe the skin test for wheat was irritating enough that my celiac kicked in, or if I'm both allergic and a celiac. Could this be an allergic reaction or a celiac reaction?


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SusanBurroughs Newbie

I am not sure what this is, but I have used California Baby products with a lot of luck and great results.

Check out my blog: Open Original Shared Link

:)

Susan

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    • LynnM
      Thank you Scott. My son doesn't have a reaction topically, only when ingested. Interestingly though, the doc told us the face cream getting gluten into his bloodstream doesn't do the damage akin to when gluten is ingested. He had no reaction when using the face cream, it only presented in blood-work. I'm hopeful from all the comments today and will wait for the GI doc to reply. If he is cleared to use it, I will encourage SHIELD to get a gluten-free certification 
    • Scott Adams
      It’s great that you’re taking the time to research products carefully for your son with celiac disease—especially since accidental gluten exposure through skincare can be a real concern for sensitive individuals. Based on the ingredient lists you’ve shared, none of the products appear to contain obvious sources of gluten like wheat, barley, or rye derivatives. Ingredients like glycerin and tocopherols (not listed here but often a concern) can sometimes be derived from wheat, but many manufacturers use plant-based or synthetic sources. SHIELD’s transparency and willingness to share their full ingredient list is a good sign, and their note about not intentionally adding gluten is reassuring. Still, because ingredient sourcing can vary and sensitivities differ from person to person, it’s wise that you’ve reached out to your GI specialist to be sure these products are safe for your son’s specific needs. In the meantime, if you do try any of the products, consider patch-testing them first and watching closely for any signs of skin irritation or reactions. PS - Most people with celiac disease won't react to skin products that may contain gluten, but I still recommend finding gluten-free products.
    • LynnM
      Greetings Trents and Scott. This is the first time I'm posting here so I apologize in advance if I'm not replying properly. My 13 YO was diagnosed at age 5 and once gluten was removed from his diet, he grew 3" in a year, skin became much better and dark circles around his eyes disappeared. Today his numbers were very high and our new dietician discovered his face cream (Clinique dramatically different lotion) contained gluten. My fault for not checking.    His acne really has only just started and he's using OCT gluten-free products but the SHIELD is nothing short of miraculous for my 16 YO son and the 13 YO is eager to start. I will await his dietician's reply or google each ingredient.    I don't want to put him on that Rx as it's not that bad and isn't painful either. Just a boy starting 8th grade and doesn't want bad acne.    When I hear back I will circle back. 
    • Scott Adams
      That happened to me as well @trents! I always wondered it that regimen caused my celiac disease! 
    • trents
      I see nothing in the ingredient list that concerns me from a gluten intolerant perspective. Historically, how has your 13 yr. old been treated for his acne? When I was a teenager I had acne issues (this was in the 1960s) and was put on a long term regimin of tetracycline. It helped the acne but I am convinced it altered my gut microbiome and contributed to the development of celiac disease.
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