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Mom To Newly Diagnosed 6 Year Old


jmj0803

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jmj0803 Apprentice

My 6 year old daughter seems to be doing much better since she started her gluten-free diet. She has been gluten free for 2 weeks. My concern is she has not had a bowel movement for 48 hours( I never thought I would be saying this :))!! Anyone had a similiar experience?


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snoopylian Apprentice

Add more fiber to her diet. I've had the same exp w/my two children ages 3 & 1. I added fresh fruit daily eg. a whole pear or an entire apple. I found that pears are best but they also have more sugar than apples. I also buy the Gerber garden vegetables (baby food) and their large jar of pear sauce. I mix the garden veggies in with the pear sauce. You'll have to play with the amount of veggies you can get away with adding to the pear sauce and still have her eat it. I call it yummy green leprechaun pear sauce. Another suggestion I have is to find a good nutritionist who works with Celiacs to ensure she's getting everything she needs. Good luck! :)

Merika Contributor

If you're looking for fiber (which may not be necessary) canned pumpkin is great, tastes good and kids like it (pets too, lol). I like to make "pumpkin pie". Get some Libby's plain pumpkin and semi-follow the recipe on the back. Our version goes something like this:

can pumpkin

egg(s) or egg replacer (however many it call for)

use just 2/3 of amount for spices and sugar

use either milk in recipe or slightly less rice milk (make sure it's gluten-free)

stir, pour into individuall ramekins (or just into a gluten-free/CLEAN pie pan - ramekins are prettier though and don't make you feel like you're missing the crust).

Bake for ?40 minutes at 350.

My ds, age 3, really loves this. And aside from the sugar, it's really good for him. You can add gluten-free whipped cream too (most is, but read the label!). mmmmmm. :P

Merika

jmj0803 Apprentice

Thanks for the information. I'll give it a try.

cdford Contributor

One of my children has had problems with constipation since birth, even on nothing but breast milk. The doctor's "constipation diet" we were given around age five basically went like this:

Absolutely NO white flour (of course, for us), white rice, white potatoes, apples. or bananas. Avoid dairy initially then gradually add back if not otherwise reactive. Avoid processed foods. Use fresh or frozen vegetables such as beans or broccoli.

Gradually add fiber into the diet until regular. Dry beans are easy and useful for this. So are whole grains that we can eat. If you make your own breads, add 1/3 cup milled flax to each loaf. It adds no cholesterol but does add vitamins and fiber. I use a flour mix with it even for biscuits. I also mill fresh brown rice for my flours to get the nutrition and fiber. Popcorn is a good snack. So is a plate of broccoli florets with cheese melted over them. We sometimes fix a 32 oz bag and share it as we watch TV together like most folks would share a bag of potato chips.

After we got him regular, we were able to add back some of the NO items listed above in smaller amounts. We also found that some foods tended to trigger a BM even though he had no specific allergy to the item. We would use a serving of those once or twice a week. (Here it was corn or okra, but different folks do it with different foods.)

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    • trents
      Not necessarily. The "Gluten Free" label means not more than 20ppm of gluten in the product which is often not enough for super sensitive celiacs. You would need to be looking for "Certified Gluten Free" (GFCO endorsed) which means no more than 10ppm of gluten. Having said that, "Gluten Free" doesn't mean that there will necessarily be more gluten than "Certified Gluten" in any given batch run. It just means there could be. 
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      I think it is wise to seek a second opinion from a GI doc and to go on a gluten free diet in the meantime. The GI doc may look at all the evidence, including the biopsy report, and conclude you don't need anything else to reach a dx of celiac disease and so, there would be no need for a gluten challenge. But if the GI doc does want to do more testing, you can worry about the gluten challenge at that time. But between now and the time of the appointment, if your symptoms improve on a gluten free diet, that is more evidence. Just keep in mind that if a gluten challenge is called for, the bare minimum challenge length is two weeks of the daily consumption of at least 10g of gluten, which is about the amount found in 4-6 slices of wheat bread. But, I would count on giving it four weeks to be sure.
    • Paulaannefthimiou
      Are Bobresmill gluten free oats ok for sensitive celiacs?
    • jenniber
      thank you both for the insights. i agree, im going to back off on dairy and try sucraid. thanks for the tip about protein powder, i will look for whey protein powder/drinks!   i don’t understand why my doctor refused to order it either. so i’ve decided i’m not going to her again, and i’m going to get a second opinion with a GI recommended to me by someone with celiac. unfortunately my first appointment isn’t until February 17th. do you think i should go gluten free now or wait until after i meet with the new doctor? i’m torn about what i should do, i dont know if she is going to want to repeat the endoscopy, and i know ill have to be eating gluten to have a positive biopsy. i could always do the gluten challenge on the other hand if she does want to repeat the biopsy.    thanks again, i appreciate the support here. i’ve learned a lot from these boards. i dont know anyone in real life with celiac.
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