Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Is It Too Late For Me?


miss vivian

Recommended Posts

miss vivian Newbie
Hi Viv,

I was 57 when I was diagnosed, I suppose I had symptoms all my life without realising it.

I have had 'Acid Reflux' for ever, always seemed tired, susceptible to flu and chest infections,

'mouth ulcers', dry skin, all the classic symptoms.

.

I'm 61 now and a lot happier if not a little too 'rotund' from eating all my gluten-free creations, but that's another story!

.

My Friend who is also a Coeliac had his mother checked and she was biopsy diagnosed at 83, she is so much better in herself now on the gluten-free diet.

.

So in answer to your question: Is it too late for me??

.

The answer is a resounding!! It's NEVER too late!

.

Best Regards,

David

Thanks - it's good to know that you're better and so is your mom! I am hoping to recover from the damages I may have inside. I will find out more after the biopsy tomorrow...

Take care and thanks again... Viv

oops. I meant your friends' mom! Sorry for the error... Great to hear the good news that someone a little older can mend.. it gives me hope that I might be ok.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



miss vivian Newbie
My mom was finally diagnosed at 45 or so. She nearly died, because this was the mid 1960's and hardly anyone knew a thing about celiac disease. She was truly almost dead of starvation, I think: 85 or so pounds, couldn't keep anything down, and doctors kept telling her it was "in her head." Finally, thankfully, she got a new doctor who asked her if she had ever lived in certain tropical places, thinking her symptoms sounded like tropical sprue. He tested her, did a biopsy which showed her villi to be GONE, her stomach lining was nearly destroyed, lots of other things, and he was smart enough to figure out she had celiac disease. She went gluten free, and was better within a few months, had regained all her lost weight, felt great. They did a re-test of her biopsy and found the villi had mostly regenerated.

She is now almost 88, in great health, no problems at all!

So once you know the facts, eat carefully and avoid all gluten.

Great to hear that the damage can be reversed! :) thank you... glad your mom is well.

Amber M Explorer
Amber you are most welcomed here. I try to catch "newbie" threads everyday so people dont get overlooked. :)

Thanks Shay, I have read a lot of your postings. I have learned so much. I am recovering from last weeks mistake gluten poisoning. I'm doing much better, but I have a question. When does the nasea go away? I get naseated off and on out of the clear blue, and dizzy. I feel like if I thought about it much, I would puke! Did you? Any suggestions? (I was still getting it when I was gluten free before the mistake) Thanks, Amber

Lori Park Newbie

All of this sounds so familiar. I have been gluten free for 7 months and was 36 when I was diagnosed. I had decided that I was a big baby and a hypo-condriac. I thought I must be crazy, because they could not find anything wrong with me. I feel alot better, but recently I have been feeling some of the old symptoms. Has anybody ever just suddenly slowed down in their healing?

mslee Apprentice

welcome welcome!

Just wanted to add since my dx my Mom is in the process of being dx'ed she is in her 50's and symptoms she has had her whole life are healing since going gluten free. It is a little scary at first but we will be so much healthier once we heal & that part is empowering & exciting!

Amber M Explorer
All of this sounds so familiar. I have been gluten free for 7 months and was 36 when I was diagnosed. I had decided that I was a big baby and a hypo-condriac. I thought I must be crazy, because they could not find anything wrong with me. I feel alot better, but recently I have been feeling some of the old symptoms. Has anybody ever just suddenly slowed down in their healing?

I think I am going on 4 months gluten free, with a couple of slips. I have good days and bad days. Just when I think I am free of the symptoms, they re-appear with a vengence. It sets me into a panic going back over ingredients again and again only to discover I have NOT eaten gluten. So I am in the same delima. My Allergist said that I sould see better results after 6 months, but some adults take a few years to get better. After your 7 months, I would make sure that you are not eating something with gluten. One thing I learned last night after watching the UCLA lecture on Celiacs is that when the label says "wheat free" instead of "gluten free", it could still have "barley, malt, or rye" in it and you need to check the full ingredient list. Holy Bananas! I did not realize that. I have mostly eaten fresh food or baking with gluten free ingredients, so I don't think I ate any gluten, but I did not know this. I am just learning. Double check your stuff! Good luck. Amber

miss vivian Newbie
welcome welcome!

Just wanted to add since my dx my Mom is in the process of being dx'ed she is in her 50's and symptoms she has had her whole life are healing since going gluten free. It is a little scary at first but we will be so much healthier once we heal & that part is empowering & exciting!

Yes! You're so right about that! It is very empowering to know that we can do the right things and change the way we feel.. I had my biopsy yesterday, and it went easy - but I still have pains, in spite of being gluten free for almost one month. My gastro told me that she thinks it will take more time for me to feel better. She thinks I should not feel pains in a few months.

I don't know. I looked at the pics of my insides once I woke up - and I couldn't make any sense of it. Heck, I'm no doctor, but I am trying to learn all I can.

Thanks for you response... Everyone here and everyone that I've met since being diagnosed have been wonderul and helpful. It's such a comfort.

:) Peace!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Jmartes71 replied to Jmartes71's topic in Related Issues & Disorders
      20

      My only proof

    2. - knitty kitty replied to Scott Adams's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      44

      Supplements for those Diagnosed with Celiac Disease

    3. - knitty kitty replied to Jmartes71's topic in Related Issues & Disorders
      20

      My only proof

    4. - Scott Adams commented on Scott Adams's article in Gluten-Free Grains and Flours
      18

      Cricket Flour Makes Really Good Gluten-Free Bread


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,543
    • Most Online (within 30 mins)
      7,748

    Jeanette K.
    Newest Member
    Jeanette K.
    Joined

  • Celiac.com Sponsor (A20):



  • Celiac.com Sponsor (A22):




  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Jmartes71
      Thus has got to STOP , medical bit believing us! I literally went through 31 years thinking it was just a food allergy as its downplayed by medical if THEY weren't the ones who diagnosed us! Im positive for HLA-DQ2 which is first celiac patient per Iran and Turkey. Here in the States especially in Cali its why do you feel that way? Why do you think your celiac? Your not eating gluten so its something else.Medical caused me depression. I thought I was safe with my former pcp for 25 years considering i thought everything I went through and going through will be available when I get fired again for health. Health not write-ups my health always come back when you're better.Im not and being tossed away at no fault to my own other than shitty genes.I was denied disability because person said he didn't know how to classify me! I said Im celiac, i have ibs, hernia, sciatica, high blood pressure, in constant pain have skin and eye issues and menopause intensified everything. With that my celiac nightmare began to reprove my disregarded disease to a bunch of clowns who think they are my careteam when they said I didn't have...I feel Im still breathing so I can fight this so no body else has to deal with this nightmare. Starting over with " new care team" and waisting more time on why I think I am when diagnosed in 1994 before food eliminated from my diet. P.s everything i went through I did write to medical board, so pretty sure I will continue to have a hard time.
    • knitty kitty
      @Scatterbrain, Thiamine Vitamin B1 and amino acid Taurine work together.  Our bodies can make Taurine from meats consumed.  Our bodies cannot make Thiamine and must consume thiamine from food.  Meat is the best source of B vitamins like Thiamine.   Vegetarians may not make sufficient taurine since they don't eat meat sources of taurine.  Seaweed is the best vegetarian source of taurine. Vegetarians may not consume sufficient Thiamine since few veggies are good sources.  Whole grains, legumes, and nuts and seeds contain thiamine.  Many of these sources can be hard to digest and absorb for people with Celiac disease.   You may find taking the forms of thiamine called Benfotiamine or TTFD (tetrahydrofurfuryl disulfide) and a B Complex will give the benefits you're looking for better than taurine alone.  
    • knitty kitty
      @Jmartes71, I went to Doterra's site and had a look around.  The Doterra TerraZyme supplement really jumped out at me.  Since we, as Celiacs, often have digestive problems, I looked at the ingredients.  The majority of the enzymes in this supplement are made using black mold, Aspergillus!  Other enzymes are made by yeast Saccharomyces!  Considering the fact that Celiac often have permeable intestines (leaky gut syndrome), I would be very hesitant to take a product like this.  Although there may not be live black mold or yeast in the product, the enzymes may still cause an immune system response which would definitely cause inflammation throughout the body.   Skin, eyes, and intestines are all made from the same basic type of cells.  Your skin on the outside and eyes can reflect how irritated the intestines are on the inside.  Our skin, eyes, and intestines all need the same vitamins and nutrients to be healthy:  Vitamin A, Niacin B3 and Tryptophan, Riboflavin B2, Biotin B7, Vitamin C, and Omega Threes.  Remember that the eight B vitamins work together.  Just taking high doses of just one, vitamin like B12, can cause a deficiency in the others.  Taking high doses of B12 can mask a Folate B9 deficiency.  If you take B12, please take a B Complex, too.  Thiamine B1 can be taken in high doses safely without toxicity.  Thiamine is needed by itself to produce energy so every cell in the body can function, but Thiamine also works with the other B vitamins to make life sustaining enzymes and digestive enzymes.  Deficiencies in either Niacin, Vitamin C, or Thiamine can cause digestive problems resulting in Pellagra, Scurvy, and Gastrointestinal Beriberi.   If you change your diet, you will change your intestinal microbiome.  Following the Autoimmune Protocol Diet, a Paleo diet, will starve out SIBO bacteria.  Thiamine keeps bacteria in check so they don't get out of control as in SIBO.  Thiamine also keeps MOLDS and Yeasts from overgrowth.   Menopause symptoms and menstrual irregularities are symptomatic of low Vitamin D.   Doctors are not as knowledgeable about malnutrition as we need them to be.  A nutritionist or dietician would be more helpful.   Take control of your diet and nutrition.  Quit looking for a pill that's going to make you feel better overnight.  The Celiac journey is a marathon, not a sprint.   "Let food be your medicine, and let medicine be your food."
    • RUKen
      The Lindt (Lindor) dairy-free oat milk truffles are definitely gluten-free, and (last time I checked) so are the white chocolate truffles and the mint chocolate truffles. 
    • lmemsm
      I've used magnesium taurinate and magnesium taurate vitamins.  Didn't notice much of a difference when I used them.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.