Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Skin Problems/gluten Intolerant


jasmari

Recommended Posts

jasmari Newbie

Hi all. I haven't been on here for a while but had a question about my skin. I was diagnosed celiac based on a biopsy. Then after a couple months the doctor sent the same biopsy off to another pathologist who said it wasn't positive. Needless to say, I'm much better going gluten free and with the unclear diagnosis, have remained gluten free. No more vomiting, no more nausea, much less stomach pains, etc.

Anyways, I had dinner at my son's house the other night. My DIL made a lovely dinner but I asked her to cook my pork without breadcrumbs. I wasn't aware she had cooked it in the same pan as the breaded meat until it was on my plate. Not wanting to be the nasty mother-in-law, I kept quiet and ate it. It was really delicious!

I was nauseaus that night and

the very next day I had these blistery things on my face. I haven't had these since giving up gluten. They're almost always around my mouth and last for a few days. Definitely not cold sores. I've suffered from them and know exactly how they feel and their appearance. After going back to my regular gluten free diet, the blisters went away....took about a week.

Have any of you had this problem?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



fedora Enthusiast

lots of people get skin reactions. I get litte water filled blisters on my hands

  • 1 month later...
isabelle Rookie
Hi all. I haven't been on here for a while but had a question about my skin. I was diagnosed celiac based on a biopsy. Then after a couple months the doctor sent the same biopsy off to another pathologist who said it wasn't positive. Needless to say, I'm much better going gluten free and with the unclear diagnosis, have remained gluten free. No more vomiting, no more nausea, much less stomach pains, etc.

Anyways, I had dinner at my son's house the other night. My DIL made a lovely dinner but I asked her to cook my pork without breadcrumbs. I wasn't aware she had cooked it in the same pan as the breaded meat until it was on my plate. Not wanting to be the nasty mother-in-law, I kept quiet and ate it. It was really delicious!

I was nauseaus that night and

the very next day I had these blistery things on my face. I haven't had these since giving up gluten. They're almost always around my mouth and last for a few days. Definitely not cold sores. I've suffered from them and know exactly how they feel and their appearance. After going back to my regular gluten free diet, the blisters went away....took about a week.

Have any of you had this problem?

Hi there,

you are not alone ... this happen to me but under my eyes ... i look like a racoon ... itchy, dry and

red ...it's kind of frustrating it's so hard not to have a little contamination ...

isabelle

  • 2 weeks later...
Kurzemiete Explorer

This is comforting for me to read that you also have skin reaction to gluten. As for myself, my blood test was negative to celiac. However, when I go off (most) gluten and then reintroduce it to my diet, I also get reaction of the skin. Reddish blotches appear on my face , they are dry and a little itchy, not blistery or wet in any way.

This is a bit off topic but I will mention it. For many years (maybe 10+) occassionally after I am done with teeth brushing and propell that first big gob of spit into the sink, I would see just a hint of blood in it. I know it is not from my gums. When I told my GP about this she brushed it off and gave me some answer which did nothing to satisfy me. Well this last summer for almost a month I did not eat gluten (very small amounts) and no blood at all was in my spit. For the last while I have been pretty much pigging out on it (the usual diet prior to my being aware, the NA diet :S) and in my spit voila: The was a bit more than a bit of blood. I am assuming that it must be gluten related , due to the damage to my insides. I am just wondering if it is damage from my stomach or intestines?

Liya.

caek-is-a-lie Explorer
lots of people get skin reactions. I get litte water filled blisters on my hands

Oh my gosh me too. And they itch. They happen on the tops of my fingers, mostly on my pinky between the 2nd and 3rd knuckle, or on the top of my thumb in sort of the same place. Sometimes it swells up like a red welt with water blisters on the top. Like a raised coin on my finger. And I scratch and scratch ... I can't help it! Then I have dry peeling skin there for a week or two. I have to put Carmex on it to soothe it...lotion just doesn't help at all. The Naturopath was stumped when I showed her but lately I've been wondering...maybe it's gluten. The last one happened kind of close to the last gluten attack. I'll keep closer track of it related to my accidental glutening to see if it happens again. Gawd I hate accidental glutening. Why can't this be easier??

I really don't know if I'm an "official" Celiac because I don't want to eat gluten for 3 months to find out, but the more I read, the more I think there's really no doubt. I can't even eat a single crumb.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      129,567
    • Most Online (within 30 mins)
      7,748

    Silver82
    Newest Member
    Silver82
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.2k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Scott Adams
      Your genetic test results confirm that you carry the highest-risk markers for celiac disease, specifically the HLA-DQ2 haplotype (while being negative for HLA-DQ8). The fact that both HLA-DQA1*05 and HLA-DQB1*0201 appear twice means you inherited identical copies from each parent, making you homozygous for these genes. This double dose of the DQ2.5 haplotype is significant because it indicates an even stronger genetic predisposition to celiac disease compared to those who only inherit one copy. Research suggests that people with this homozygous pattern may have a higher likelihood of developing the disease, potentially more severe immune responses to gluten, and a stronger association with dermatitis herpetiformis (which aligns with your diagnosis). While this genetic profile doesn’t guarantee worse symptoms, it does reinforce why strict gluten avoidance is critical for you. Since you’re already diagnosed, the main takeaway is that your results explain your biological susceptibility—no further genetic counseling is needed unless you have family planning questions. The repeating variants simply mean both parents passed you the same high-risk alleles, which is why your body reacts so strongly to gluten. Ultimately, your diagnosis and management remain the same, but this insight helps underscore the importance of lifelong dietary diligence.
    • Scott Adams
      It sounds like you and your daughter are navigating celiac disease with a lot of care and dedication, and it’s wonderful that you’re prioritizing her health and growth during this critical time. Since her antibody levels and growth have plateaued, tightening up her diet by avoiding eating out (except at dedicated gluten-free places) is a smart move—even if it’s challenging socially. Many parents of celiac kids report significant growth spurts once gluten exposure is minimized, so there’s hope she’ll catch up if her levels improve. As for the future, while her growth window closing may reduce some risks, celiac is lifelong, and staying as strict as possible will likely always be best to avoid long-term complications, even if occasional cautious outings become manageable later. Navigating this with a teenager is tough, especially with spontaneous social events. For unplanned outings, keeping safe snacks (like GF protein bars, nuts, or fruit) in her bag or your car can help. To boost nutrition, try sneaking in variety where you can—like lentil or chickpea pasta instead of rice pasta, or adding veggies and proteins to her favorite dishes. Involving her in meal planning might help with pickiness, and connecting with other celiac families or support groups could provide social strategies and emotional support. It’s exhausting, but you’re doing an amazing job—your efforts now will set her up for a healthier future. Hang in there!
    • Scott Adams
      This is good news--I hope we can get this done on a national level!
    • Scott Adams
      I use a blender and have made various juice recipes over the years. 
    • captaincrab55
      Pharmacies personnel need training to prevent cross contamination.     
×
×
  • Create New...