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Hello

ohritz

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ohritz Newbie
ohritz
Posted

Just wanted to take a minute and say hi and introduce myself. I'm Onna, my DS is 2.5 years old and went through allergy testing a few months ago. He was diagnosed with wheat, dairy and egg allergies. Thankfully, I have a co-worker who is allergic to all of those and more, as is her young daughter. She was able to help through and continues to help me with all of this. Just looking to extend my network. So, hi, happy to be here and be able to connect with other parents dealing with similar issues.

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Mother of Jibril Enthusiast
Mother of Jibril
Posted

Welcome to the group! :)

My son has a severe intolerance to casein (cow's milk)... turns out he got it from me.

I'm learning a lot of good things here!

sugarsue Enthusiast
sugarsue
Posted
Just wanted to take a minute and say hi and introduce myself. I'm Onna, my DS is 2.5 years old and went through allergy testing a few months ago. He was diagnosed with wheat, dairy and egg allergies. Thankfully, I have a co-worker who is allergic to all of those and more, as is her young daughter. She was able to help through and continues to help me with all of this. Just looking to extend my network. So, hi, happy to be here and be able to connect with other parents dealing with similar issues.

Hi, my daughter is 6 and is gluten intolerant and we are also trying casein and soy free for now. She has improved a lot since going gluten free 1 1/2 months ago but we are still learning and she's still healing. I hope you are seeing improvement after removing your son's allergens. Good luck to you!

purple Community Regular
purple
Posted

Hi and welcome! I have 2 teenager dd's. Oldest is gluten-free (intolerant) and the younger not tested is mostly gluten-free, df and egg free, by choice. If you need help with recipes, I have a few. Watch for vegan recipes and web sites. This is a great place to learn and share.

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    • trents
      Medication

      By trents · Posted

      I don't see how cornstarch could alter the test results. Where did you read that?
    • knitty kitty
      Medication

      By knitty kitty · Posted

      For pain relief I take a combination of Thiamine (Benfotiamine), Pyridoxine B 6, and Cobalamine B12.  The combination of these three vitamins has analgesic effects.  I have back pain and this really works.  The B vitamins are water soluble and easily excreted.   Hope this helps!  Keep us posted on your results!
    • knitty kitty
      Taking Probiotics but Still Getting Sick After Gluten – Advice?

      By knitty kitty · Posted

      Welcome to the forum, @Xravith. I experienced similar symptoms before my diagnosis.  Mine were due to the loss of vitamins and minerals, essential nutrients we must get from our food.  With Celiac Disease, the intestinal lining, made up of thousands of villi, gets damaged and cannot absorb essential vitamins and minerals, especially the eight B vitamins.  The loss of Thiamine B 1 can cause muscle loss, inability to gain weight, edema (swelling), fatigue, migraines and palpitations.  Low thiamine can cause Gastrointestinal Beriberi with symptoms of nausea, abdominal pain and bloating.   Thiamine is only stored for a couple of weeks, so if you don't absorb enough from food daily, as the thiamine deficiency worsens physical symptoms gradually worsen.  If you're eating lots of carbs (like gluten containing foods usually do), you need more thiamine to process them (called high calorie malnutrition).  Thiamine works with all the other B vitamins, so if you're low in one, you're probably getting low in the others, too, and minerals like iron, magnesium, zinc, and calcium, as well as Vitamin D..  Talk to your doctor about checking for nutritional deficiencies.  Most doctors rarely recognize vitamin deficiency symptoms, especially in thiamine. Get a DNA test to see if you carry any Celiac genes.  If you do not have genetic markers for Celiac, it's probably IBS.  If you do have genetic markers for Celiac, it's probably Celiac.  I was misdiagnosed with IBS for years before my Celiac diagnosis.   Keep us posted on your progress. P. S. Deficiency in thiamine can cause false negatives on antibody tests, as can diabetes and anemia.  
    • Julie 911
      Medication

      By Julie 911 · Posted

      No she didn't because if I want to ask I have to pay 700$ for 1 hour appointment so I couldn't even ask. I read that fillers like cornstash can alter the result and tylenol contains it so that's why I tried to find someone who can answer. 
    • trents
      Medication

      By trents · Posted

      Did the GI doc give you any rational for stopping the Tylenol during the gluten challenge? I have never heard of this before and I can't imagine a good reason for it. Ibuprofen, maybe, because it is an anti inflammatory but acetaminophen?  I don't see that it would have any impact on the test results to take Tylenol.
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