Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Search For Northeast Md


Ryan Mahar

Recommended Posts

Ryan Mahar Newbie

Hey everyone. I am new to this site but plan to visit often. Anyways, the purpose for todays question is my 3 year old daughter was just diagnosed with celiac disease. We live in Vermont. WE traveld to Lebanon New Hampshire to Dartmouth Hitchcock Medical Center (an excellent hospital/staff), however they have only 1 pediatric gastointestinal MD who works with celiac disease. It is apparent she is over loaded with a regular pediatric case load plus the celiac disease clinic. She instructed us to go online and search for the latest information about treating celiac disease. This is fine, but my wife and I are a little stressed right now about the whole thing and at least want a second consultation. This is not to question the diagnosis of celiac disease but to get more information, "face to face" from an expert. WE are considering going to Columbia University in NYC or Boston. Does anyone have any suggestions. Thank you in advance for your reply! Ryan Mahar


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Ryan Mahar Newbie

why is this not on the main forum page?

jerseyangel Proficient

Hi Ryan,

I'm glad you found us here! I just pinned your thread--you can find it on the Doctor's Fourm, or you can go to "View New Posts" and see it there.

I apologize for the delay--not all mods are on the board at all times. :)

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      130,888
    • Most Online (within 30 mins)
      7,748

    Raymond Davison
    Newest Member
    Raymond Davison
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.3k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Zuma888
      I really recommend you go on AIP to heal your gut first, and then reintroduce foods one by one...
    • Rogol72
      Hey @annamarie6655, I think we've all glutened ourselves during the learning process of what it takes to be truly gluten free. Don't be hard on yourself. You're not glutening yourself purposefully ... it takes time to figure it all out. You should stand up for yourself and advocate for yourself at all times. The family dynamic can be very difficult for us Coeliacs. It may be worth mentioning that Coeliac Disease is genetic and runs in families. And any of them could develop Coeliac Disease in the future ... though that may be a difficult conversation to have. It was for me, but at least my conscience is clear! It's ok to be grateful but not overly so. I would tell them that it's a steep learning curve and I'm trying to figure out a major lifestyle adjustment to preserve my health now and into the future. If it makes you feel any better, I have a sibling who thinks the dinner table is their own personal buffet and dips into the food of whoever is sitting opposite or adjacent without asking for permission ... which is extremely rude. No regard for cross contamination or poisoning my food with gluten. Despite my diplomatic efforts in asking that sibling stop it and explaining the consequences of a crumb of gluten getting into my body, it keeps happening. At family dinners and at restaurants, I now sit at the opposite end of the table well out of arms reach of that sibling. At another siblings 60th BBQ birthday recently, I was trying to assess a safe place to cook my homemade burger having brought my own food .... I was attacked by an in-law who said "there's no place safe to cook just use the BBQ". I stood my ground and asked for a clean frying pan to cook my burger on the cooker. If you live in a city, you might be able to find a support group or make a new Coeliac buddy in a gluten-free Cafe of Breakfast Bar. There's lots of people on Instagram and Tiktok who are Coeliacs that arrange meet-ups. And there's several Coeliacs running podcasts on Spotify.
    • captaincrab55
      I can't eat DeGiorno's "gluten-free" pizza, because of being dairy intolerant, but I can have cheddar and mozzarella cheese.  I did the EVERLYWELL test to help eliminate foods that I can and can't have.  I but the CAULIPOWER crust at and use plain tomato sauce and mozzarella cheese. Quite often I top it with shrimp.  Good Luck                    i 
    • trents
      It can be almost anything for the individual but I would suggest getting in the habit of reading labels to see if there are patterns. The form of magnesium is very important. Go for magnesium glycinate. A lot of over the counter stuff puts the emphasis on shelf-life as opposed to bio-availability. Magnesium glycinate is very bioavailable, very absorbable and isn't likely to have a laxative effect like some of the high shelf-life stuff which isn't absorbed well and draws water into the colon. Oats and dairy also cause effects a lot like being glutened for many celiacs. 
    • annamarie6655
      Hi everyone,  I don’t mean to use you all as my personal dumping ground, but the support I’ve seen on this forum is unlike anything I’ve ever experienced.    So, my mother and I have always had a rocky relationship, but when I got diagnosed w celiacs, I thought we were now on the same team together. She started off saying things like “ We’re gonna figure this out together” or “I will always make sure you never have to worry about food with me” to telling my siblings that I’m not grateful enough and I don’t have a right to be upset when I get glutened bc I do so “purposefully”…   .. so I’m brand new to celiac and just learned I can’t just trust gluten-free labels unless it’s certified. I’ve been trying my best, and thanking everyone for being accommodating and trying to make things as painless as possible, so I just don’t understand. Should I be bending over backwards for people who accommodate me? Or just general gratefulness?    This whole diagnosis has further ostracized me from my family and friends, and it’s really hard not to feel completely alone. I seriously appreciate any advice you have to share!
×
×
  • Create New...