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So Confused.....

mltjq

By mltjq
in Food Intolerance & Leaky Gut

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mltjq Newbie
mltjq
Posted

Okay - I am still desperate for any type of help. I am going to put all this out there for any and all ideas.

This all started out of nowhere last Feb. Returned from Disney with a stomach virus that lasted 2 weeks. Had gas constantly for a month after that. The 10 months prior to that I had lost 70 pounds working out 2-3 hours a day and eating (what I thought) was good. I have no realized that one of the shakes (Ultramet Light by Champion Nutrition) had MSG in it. I also had been eating a ton of sashimi during this time for protein (parasite? metals?).

The entire two weeks at Disney I gorged on bagels and such...after not having an ounce of stuff like that for almost a year. (gluten?)Feb 14th I ate a box of tagalongs/girl scout cookies with the kids thinking....I had been out of the gym for my first break in a year.

Feb18th I had a panic attack?heart racing at the gym. I had been working out and was abnormally tired still from that stomach virus. The night before I had met witha personal trainer that specialized in nutrition for body builders and she encouraged me to eat oatmeal. The night before I had had barley. Went to doctor and bloodwork was normal, CT scan of heart was normal, sono of veins was normal, Xray of lungs was normal.

The last week of Feb I felt like my brain couldn't think. I kept telling my husband that my brain was broken. My body felt afraid/fear though I had nothing to be afraid of...wasn't thinking fear but felt "fright!". Things were Louder. Body had startle reflex. Things were smellier (suffocatingly smelly). Often just shook for no reason like I was freezing but it wasn't cold. Food sensitivities. Hives. Feeling like my heart was going to stop beating or it was beating too hard or too fast (like when trying to fall asleep it felt like I was running on a treadmill).

Doctors kept encouraging me to take anxiety pills and SSRI's. Tried anxiety medication XANAX and it made me stay awake for 2 nights. Doctor wouldn't believe that this was true. Tried it again and stayed awake for 2 nights again. Hydroxyzine (an antihistamine finally helped). Didn't think this was depression so didn't take the SSRI's. Kept thinking that those might in fact help (bandaid) but weren't solving what was wrong.

Continued taking hydroxyzine (1/5'th of a teaspoon...any more was too strong) or 1/2 teaspoon of baby benedryl would help (but both make me feel SUPER droggy the next day to day and 1/2 afterwards.

Went to a acupuncture girl who said something about a liver meridian. But I felt uncomfortable with her.

Then in a yoga position (pigeon) that opened up the liver - I burst out crying. Finally. I hadn't been able to even cry in months. (stress from all this?). Could this be something liver related?? is my liver not detoxing my body?

Met a compounding pharmacist who suggested I do a saliva test. Did that and it came back that I had low morning cortisol and practically no progesterone. He put me on Adrenal Support Vitamins. One of them has a bit of 5-HTP in it that does seem to help the lack of serotonin being produced in my gut.

He put me in contact with a holistic medical doctor. She ran all her tests.

Came back barely positive for rocky mtn spotted fever but she thought this was a false positive since it was antibody test and it could have jus tpicked up that I had had MONO in my life. I didn't know it at the time but it was also going around my gym. I could have had this and not known it last spring. Took 3 weeks of 2X day doxycycline as a precaution. Second follow up test came back clear. Lyme negative both times. We talked about Lyme and she's friends with a LLMD and decided that this wasn't lyme but "gut" related.

Blood test/Cell tests also showed D3 deficiency, copper deficiency, defeciency in the compund in eggs (though I was eating a ton of egg whites), some more deficiencies. Allergies to cow milk, egg, tree nuts, cheddar chz, gluten.

She put me on Vit D3, ton of vit C, n-acetyl cystein, Vit E,

This led us to diagnoses of leaky gut.

Her next step is to want to do a parasite cleanse and detox and some enzymes and a stool test (starting ASAP).

I started SCD this week (trying to atleast but failing miserably) to try and clear up Candida from a long list of life long puzzles that fit Candida (interstitial cystitis. frequent uti feeling but no bacteria but high wbc???, and more...). I end up not eating because I cant figure out what to eat and that makes me feel hypoglycemic and probably isn't good for the adrenals so that leads to a vicious cycle of increased adrenaline/cortisol and painful nerve endings/things too loud/too smelly.

I have been researching MSG (and it's many other names). I am trying to eliminate that. But didn't realize that boiled meat with veggies = hydrolyzed protein aka MSG. I have been poisoning myself. ACK!

Some incredibly smart girl on here mentioned methylation cycle. My doctor mentioned that too :)

Okay so am I overlooking anything else? anyone have any other directions to point me toward? My doctor is so awesome and open for all ideas.

Can anyone related with the nerve damage - like feeling?

Have had allergy type reactions to shrimp, potatoes, mushrooms, zithromycin, dry beans/soup. Was starting to feel better recently and drank a Kombucha (fermeted mushroom drink thinking the probiotics would help) and felt HORRIBLE since. (3 days ago). Today was accidentally MSG'd by frozen Birdseye veggies (asian mix). Dumb mistake.

Thank you for reading........

I know many of you have felt awful for a lot longer than I have. My 3 young kids miss me :( being myself. Their laughter and squeals which I should enjoy right now absolutely pierce my ears :(

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ShayFL Enthusiast
ShayFL
Posted

Your adrenals sound completely shot (startle reflex and constant fear feeling) is a dead giveaway. Vitamins might not be enough. Ask about a very small physiologic dose of Hydrocortisone. This wouldnt be for life, just to let them heal. Ask your doctor.

Have they tested your thyroid? TSH, Free T4, Free T3 and both antibodies.

You sound pretty much like me 13 years ago.

I needed to rest my adrenals and supplement them to get them back on track. I also needed thyroid medication. B12. Iron (have them test your Ferritin if they have not already).

gluten-free was the final piece to the puzzle for me.

mltjq Newbie
mltjq
Posted
  • Author

Okay Shay so that is what my doctor originally thought.

So I started on B12 shots in Sept (one every 2-6 weeks as needed) and also she gaveme some cortisone. I took 1/2 of one a day (prescribed was 1/2 3 times a day) and it felt so strong to me. One day after I hd been taking them for about 2 weeks I took one with a sublingual B12 and I had a terrible niacin rush and my heart was thumping hard.

I wonder if it wasthe sublingual B12? if I should give the cortisone another chance.

The B12 shots do help.

Doc mentioned thyroid last visit. Hmm.. dh (dear husband) mentioned this too as I have no tolerance for cold anymore. We moved from Mi to Nc and I am complaining about the cold here and always shivery.

Thank you for your help. I'll let you all know how it turns out next week. This is such a puzzle.

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