Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Dh Or Molluscum On 7 Yr Old

sugarsue

By sugarsue
in Dermatitis Herpetiformis

Recommended Posts

sugarsue Enthusiast
sugarsue
Posted

Hi guys. I'm obsessed with trying to figure out what's going on so please forgive me.....

We see my dd's (age7) Peditrician on Tuesday. He's already seen the "rash" on her legs and thinks it's molluscum. I'm thinking it's DH. She's had her celiac panel but I don't know the results yet.

Her rash itches more in the morning and at night. It's on her inner thighs, behind her knees and her butt cheek on one side. The blisters look just like the molluscum pictures and the not-as-serious pictures I've seen of DH. The ones that get really bad get a HUGE pimple, very painful and then cause a purple mark that takes forever to go away. It just is not getting better with our molluscum treatment which got me on the DH thought path. She's been eating tons of gluten and I think it is affecting her mood and causing itchy'ness all over her body too.

She is not going to be happy about going gluten free. She likes the gluten-free food, just doesn't like Mom telling her what to do. <_<

I'm not sure what my question is.... Oh yeah, if her Pedi is not interested in seeing if her rash is DH, and her gluten intolerance test is negative, what type of doctor would I go to for a second oppinion? If it's DH, would her celiac panel be positive? Can Dh be diagnosed by a blood test like that or just a biopsy?

Thanks.....

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


ravenwoodglass Mentor
ravenwoodglass
Posted

You need to see a dermatologist. If your insurance permits you to make an appointment without a referral then I would do so. Molluscum does not itch nor will it leave the purple scar that you mention. One of the most distinctive features of DH is the color of the scar that is left and you have described it quite well. The derm will biopsy the area next to an active lesion, not the lesion itself, to look for the tell tale antibodies. If the biopsy is positive for those antibodies then no furthur testing is required as that would be a celiac diagnosis. Not all people with DH will have villi damage and not all will show up as a positive on a celiac panel. Not showing positive on those tests does not mean that the rash is not celiac related.

sugarsue Enthusiast
sugarsue
Posted
  • Author
You need to see a dermatologist. If your insurance permits you to make an appointment without a referral then I would do so. Molluscum does not itch nor will it leave the purple scar that you mention. One of the most distinctive features of DH is the color of the scar that is left and you have described it quite well. The derm will biopsy the area next to an active lesion, not the lesion itself, to look for the tell tale antibodies. If the biopsy is positive for those antibodies then no furthur testing is required as that would be a celiac diagnosis. Not all people with DH will have villi damage and not all will show up as a positive on a celiac panel. Not showing positive on those tests does not mean that the rash is not celiac related.

Thank you for the reply! We see her pedi on Tuesday and after that I'll look for a dermatologist if our pedi can't recommend one. We are lucky that we don't need a referral. Your post has me hopeful that maybe we will find the answer and worried that you are right and she will be diagnosed celiac.

  • 8 years later...
chrystal10 Newbie
chrystal10
Posted

Hi, sent you a message. I'm in your shoes right now. Totally obsessing over my daughter's situation. Sent you a PM to see if you have some tips for me. I'm desperate. :(

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      132,213
    • Most Online (within 30 mins)
      7,748
    MogwaiStripe
    Newest Member
    MogwaiStripe
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • trents
      Taking Probiotics but Still Getting Sick After Gluten – Advice?

      By trents · Posted

      NCGS does not cause damage to the small bowel villi so, if indeed you were not skimping on gluten when you had the antibody blood testing done, it is likely you have celiac disease.
    • Scott Adams
      Taking Probiotics but Still Getting Sick After Gluten – Advice?

      By Scott Adams · Posted

      I will assume you did the gluten challenge properly and were eating a lot of gluten daily for 6-8 weeks before your test, but if not, that could be the issue. You can still have celiac disease with negative blood test results, although it's not as common:  Clinical and genetic profile of patients with seronegative coeliac disease: the natural history and response to gluten-free diet: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5606118/  Seronegative Celiac Disease - A Challenging Case: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9441776/  Enteropathies with villous atrophy but negative coeliac serology in adults: current issues: https://pubmed.ncbi.nlm.nih.gov/34764141/  Approximately 10x more people have non-celiac gluten sensitivity than have celiac disease, but there isn’t yet a test for NCGS. If your symptoms go away on a gluten-free diet it would likely signal NCGS.
    • Xravith
      Taking Probiotics but Still Getting Sick After Gluten – Advice?

      By Xravith · Posted

      I'm very confused... My blood test came out negative, I checked all antibodies. I suppose my Total IgA levels are normal (132 mg/dl), so the test should be reliable. Still, I'm not relieved as I can't tolerate even a single biscuit. I need to talk to my doctor about whether a duodenal biopsy is necessary. But it is really possible to have intestinal damage despite having a seronegative results? I have really strong symptoms, and I don't want to keep skipping university lectures or being bedridden at home.
    • Scott Adams
      CT with contrast.

      By Scott Adams · Posted

      They may want to also eliminate other possible causes for your symptoms/issues and are doing additional tests.  Here is info about blood tests for celiac disease--if positive an endoscopy where biopsies of your intestinal villi are taken to confirm is the typical follow up.    
    • Scott Adams
      New labs are now very elevated

      By Scott Adams · Posted

      In the Europe the new protocol for making a celiac disease diagnosis in children is if their tTg-IgA (tissue transglutaminase IgA) levels are 10 times or above the positive level for celiac disease--and you are above that level. According to the latest research, if the blood test results are at certain high levels that range between 5-10 times the reference range for a positive celiac disease diagnosis, it may not be necessary to confirm the results using an endoscopy/biopsy: Blood Test Alone Can Diagnose Celiac Disease in Most Children and Adults TGA-IgA at or Above Five Times Normal Limit in Kids Indicates Celiac Disease in Nearly All Cases No More Biopsies to Diagnose Celiac Disease in Children! May I ask why you've had so many past tTg-IgA tests done, and many of them seem to have been done 3 times during short time intervals?    
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.