Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Sometimes Dairy Issues...


Guest Leidenschaft

Recommended Posts

Guest Leidenschaft

Hi all, I'm wondering about my on again/off again relationship with dairy! I seem to have tolerance for some dairy, and not others. Milk is out of the question, whip cream and heavy cereal cream (in a soup for instance) will make me pay as well. Recently I had an immediate reaction to some potatoes fried in butter... :unsure: Even my beloved gluten-free shortbread cookies will give me gurgle guts! :(

I seem to be able to get away with hard cheese, cottage cheese and yogurt, although cream cheese is sometimes a problem.

Does anyone else have this love/hate relationship with dairy? Could it be the culture in cheese and yogurt that makes it more digestible?

Also, any thoughts on what if any damage I'm doing to my body by indulging?? Every once in awhile I crave a big glass of milk with my gluten-free pancakes... it's instant bloat, and gurgle gut for hours! :(

I never cheat on gluten because I know the damage I would do, but is the same true for dairy intolerance/allergy??

Thanks as always for any insight.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



tarnalberry Community Regular

It sounds fairly classic of lactose intolerance. Enteropathy causes by dairy is rather rare, so I wouldn't worry about damage so much as symptoms. Does lactaid help at all?

Guest Leidenschaft

I haven't had much success with lactaid... seems I always needed more than the dose I took... more pain and expense than it was worth. <_<

Just wondered why I could tolerate some dairy and have problems with others...

skbird Contributor

I am not sure if I have dairy problems or not. I love dairy, all kinds. Last fall I was advised by a naturapath to give up dairy, so I tried that for a month. It was one long hard month. At the end of that month I had some cheese and I actually felt a little better than I did before eating it, I had been cranky in fact and the cheese made me feel better. There was no obvious downside, either.

I regularly consume yogurt, sour cream, cheese of all kinds, and goat milk. I started drinking some organic cow milk recently as the store was out of goat milk and I have noticed a minor sour stomach after drinking it. When I gave up dairy last fall I had been suffering from a migraine from something else unrelated and was trying to find things to eat that would not make it worse. I had some cottage cheese and within minutes, I wasn't even finished, I felt this imflammation rush up my neck and wrap around my head. I haven't been interested in cottage cheese since then, when I used to always love it.

I tend to eat a lot of dairy because I am hypoglycemic and it is a good source of protein and fat that helps keep my blood sugars stable. I'm wondering if I am not noticing a lot of problems with it because I don't want to. But giving it up for a month didn't seem to change anything.

I am waiting on my Entero Lab test results to see if I am casein sensitive. My mom told me recently that when I was 2 that I'd had terrible diahrrea when we were in Europe on a trip for a month, because of the milk. They finally took me to a pharmacy in Germany and the pharmacist said it was the milk and gave me some kind of carrot powder and that stopped it. I've read that some sensitivities that are present in kids can go away and resurface. I'm wondering now if this is the case for me. Also wondering if some dairy is safer in some senses than others - like goat dairy, or cheese versus milk.

Anyway, I hope to learn more and hope I don't have an actual sensitivity but am beginning to think that I do... :(

Stephanie

Carriefaith Enthusiast
Just wondered why I could tolerate some dairy and have problems with others...

If you are lactose intolerant (which is common in celiacs)... There are different levels of lactose in different foods. I think milk has the highest amount of lactose, I had a list once from my GI doc telling me which dairy products have the most lactose, I think I lost it though. Lactaid may help, although it doesn't work for me, even in the highest doses. Personally, I am done with dairy products... They make me sick so I stay far away Blah :unsure:

Lynne Billington Newbie

Now, can anyone tell me the difference between lactose and casein?? Can you have a problem with one and not the other? How do you differentiate the two?

My husband has a gluten intolerance but something else out there is giving him additional problems now and he's wondering if it's dairy.

TIA,

Lynne :huh:

tarnalberry Community Regular

lactose is milk sugar, casein is milk protein. yes, you can have problems with either one and not the other, or both, or neither. additionally, just as is true with wheat, you can be intolerant or allergic to casein, or both (or neither).

the vast majority of peple in the world have some degree of lactose intolerance, because the body's production of lactase (the enzyme that breaks lactose into it's two simple sugars) starts decreasing after the weaning process. (for plenty of people - depending on the ethnic background - it decreases slowly enough that it's not noticeable for decades.) lactose intolernace will not damage your body - it just means that you don't digest the lactose molecule, and when it reaches certain bacteria in your intestine, they do - and produce gas as a byproduct of breaking it down. that can make you feel bloated and cause gas.

fewer people, but still a number, have problems with casein. it's one of the eight major food allergies - which means that the body produces an IgE-antibody mediated response to the protein. IgE allergies can cause hives, itchiness, red skin, headache, intestinal discomfort... all sorts of symptoms. in very serious, and rarer cases, it's possible to have an anaphylactic reaction to milk, which can be lifethreatening, must be brought to the attention of a physician, and requires that you carry an epi-pen around at all times.

it's also possible to be intolerant to casein - which generally manifests in the form of IgG-antibody mediated responses, much like gluten intolerance. there are very few cases (per the medical literature) of dairy induced enteropathy of the intestines, so it generally doesn't cause any significant physical damage, but can still cause a whole host of quality-of-life damaging symptoms. headaches, intestinal discomfort, ... I don't know I could begin to remember the list! others may be more helpful there!

differentiating between them _usually_ isn't too hard, but sometimes can be tricky. in the case of lactose intolerance, the problem is an underproduced enzyme, so you can take something like lactaid, which supplies your body with the enzyme, when you start consuming the dairy product, and shouldn't have a problem with dairy. in the case of casein issues, lactaid won't change your reaction. separating between an allergy and an intolerance generally requires you to, at least, get an allergy test, if there are not obvious histamine-related symptoms (like rashes, itchiness, or sneezing). more research is being done on IgG intolerance testing, but many doctors don't accept the results from blood tests like that just yet.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Binks Newbie

I had problems with dairy before I ever suspected anything was wrong intestinally. I figured out it was casein after switching to soy cheese with casein in it; lactose does not seem to be the problem for me. My symptoms progressed from gas and discomfort to sinus pain and congestion to (after a few years) suicidal ideation without physical symptoms. Just like clockwork, a few hours after eatting dairy until it cleared my system, I would be plagued with consuming, irrational, morbid depression. Enzymes don't help so I avoid dairy except for butter which seems to be okay.

I found out through testing that I have an IgG sensitivity to MANY foods. This was even before suspecting celiac. My doctor explained that in celiac disease since the intestinal brush border is damaged where enzymes are produced for digesting dairy, that dairy is one of the first things to cause digestive disturbances.

This is my first post and I haven't figured out how to list that I have been gluten-free since July of 2002, had inconclusive blood tests, refused the biopsy because I totally responded to dietary modification (IBS of 8 years gone within one week). I had already stopped wheat a year before which resolved chronic FMS so gluten was minimal...still battling food sensitivities and increased intestinal permeability.

stef-the-kicking-cuty Enthusiast

Hello Tiffany,

what is this lactaid? Where can I get it?

Hugs, Stef

Guest Leidenschaft

Hey Stef, lactaid is a digestive enzyme and can be found at most drug stores on the shelf (or perhaps over the counter)... I haven't had much success with it although some swear by it!

Just had my morning bagel with cream cheese while reading the last two days' posts, and have gurgle guts this morning! :( Guess today isn't a good dairy day! :unsure:

Binks, you can add all that info in your "signature" which you create by selecting "My Controls" to the right of your name where it shows you "Logged in as:" then select "Edit Profile" under the "Personal Profile" section, third topic down on the left margin. There you can play around with different font types, sizes and colours, you can also add an avitar! Also, please tell us where you're from, since geographic location is so helpful when sharing resources! :) Good luck, enjoy the forum! Neat and friendly people hang out here! :D

Guest Leidenschaft
then select "Edit Profile" under the "Personal Profile"

Sorry Binks, I should have said "Edit Signature"! :rolleyes:

stef-the-kicking-cuty Enthusiast

Thanks a lot Tammy :D ,

I will keep that in mind and try it one day. However not now...

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - knitty kitty replied to JudyLou's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      11

      Seeking advice on potential gluten challenge

    2. - JudyLou replied to JudyLou's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      11

      Seeking advice on potential gluten challenge

    3. - knitty kitty replied to JudyLou's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      11

      Seeking advice on potential gluten challenge

    4. - trents replied to Mark Conway's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      5

      Have I got coeliac disease

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,154
    • Most Online (within 30 mins)
      7,748

    Kathy N
    Newest Member
    Kathy N
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Who's Online (See full list)

  • Upcoming Events

  • Posts

    • JudyLou
    • knitty kitty
      I have osteopenia and have cracked three vertebrae.  Niacin is connected to osteoporosis! Do talk to your nutritionist and doctor about supplementing with B vitamins.  Blood tests don't reveal the amount of vitamins stored inside cells.  The blood is a transportation system and can reflect vitamins absorbed from food eaten in the previous twenty-four to forty-eight hours.  Those "normal limits" are based on minimum amounts required to prevent disease, not levels for optimal health.   Keep us posted on your progress.   B Vitamins: Functions and Uses in Medicine https://pmc.ncbi.nlm.nih.gov/articles/PMC9662251/ Association of dietary niacin intake with osteoporosis in the postmenopausal women in the US: NHANES 2007–2018 https://pmc.ncbi.nlm.nih.gov/articles/PMC11835798/ Clinical trial: B vitamins improve health in patients with coeliac disease living on a gluten-free diet https://pubmed.ncbi.nlm.nih.gov/19154566/   Nutritional Imbalances in Adult Celiac Patients Following a Gluten-Free Diet https://pmc.ncbi.nlm.nih.gov/articles/PMC8398893/ Nutritional Consequences of Celiac Disease and Gluten-Free Diet https://www.mdpi.com/2036-7422/15/4/61 Simplifying the B Complex: How Vitamins B6 and B9 Modulate One Carbon Metabolism in Cancer and Beyond https://pmc.ncbi.nlm.nih.gov/articles/PMC9609401/
    • JudyLou
      Thank you so much for the clarification! Yes to these questions: Have you consulted dietician?  Have you been checked for nutritional deficiencies?  Osteoporosis? Thyroid? Anemia?  Do you take any supplements, or vitamins? I’m within healthy range for nutritional tests, thyroid and am not anemic. I do have osteopenia. I don’t take any medications, and the dietician was actually a nutritionist (not sure if that is the same thing) recommended by my physician at the time to better understand gluten free eating.    I almost wish the gluten exposure had triggered something, so at least I’d know what’s going on. So confusing!    Many thanks! 
    • knitty kitty
      @JudyLou,  I have dermatitis herpetiformis, too!  And...big drum roll... Niacin improves dermatitis herpetiformis!   Niacin is very important to skin health and intestinal health.   You're correct.  dermatitis herpetiformis usually occurs on extensor muscles, but dermatitis herpetiformis is also pressure sensitive, so blisters can form where clothing puts pressure on the skin. Elastic waist bands, bulky seams on clothing, watch bands, hats.  Rolled up sleeves or my purse hanging on my arm would make me break out on the insides of my elbows.  I have had a blister on my finger where my pen rested as I write.  Foods high in Iodine can cause an outbreak and exacerbate dermatitis herpetiformis. You've been on the gluten free diet for a long time.  Our gluten free diet can be low in vitamins and minerals, especially if processed gluten free foods are consumed.  Those aren't fortified with vitamins like gluten containing products are.  Have you consulted dietician?  Have you been checked for nutritional deficiencies?  Osteoporosis? Thyroid? Anemia?  Do you take any supplements, medicine, or vitamins? Niacin deficiency is connected to anemia.  Anemia can cause false negatives on tTg IgA tests.  A person can be on that borderline where symptoms wax and wane for years, surviving, but not thriving.  We have a higher metabolic need for more nutrients when we're sick or emotionally stressed which can deplete the small amount of vitamins we can store in our bodies and symptoms reappear.   Exposure to gluten (and casein in those sensitive to it) can cause an increased immune response and inflammation for months afterwards. The immune cells that make tTg IgA antibodies which are triggered today are going to live for about two years. During that time, inflammation is heightened.  Those immune cells only replicate when triggered.  If those immune cells don't get triggered again for about two years, they die without leaving any descendents programmed to trigger on gluten and casein.  The immune system forgets gluten and casein need to be attacked.  The Celiac genes turn off.  This is remission.    Some people in remission report being able to consume gluten again without consequence.   However, another triggering event can turn the Celiac genes on again.   Celiac genes are turned on by a triggering event (physical or emotional stress).  There's some evidence that thiamine insufficiency contributes to the turning on of autoimmune genes.  There is an increased biological need for thiamine when we are physically or emotionally stressed.  Thiamine cannot be stored for more than twenty-one days and may be depleted in as little as three during physical and emotional stresses. Mitochondria without sufficient thiamine become damaged and don't function properly.  This gets relayed to the genes and autoimmune disease genes turn on.  Thiamine and other B vitamins, minerals, and other nutrients are needed to replace the dysfunctional mitochondria and repair the damage to the body.   I recommend getting checked for vitamin and mineral deficiencies.  More than just Vitamin D and B12.  A gluten challenge would definitely be a stressor capable of precipitating further vitamin deficiencies and health consequences.   Best wishes!    
    • trents
      And I agree with Wheatwacked. When a physician tells you that you can't have celiac disease because you're not losing weight, you can be certain that doctor is operating on a dated understanding of celiac disease. I assume you are in the UK by the way you spelled "coeliac". So, I'm not sure what your options are when it comes to healthcare, but I might suggest you look for another physician who is more up to date in this area and is willing to work with you to get an accurate diagnosis. If, in fact, you do not have celiac disease but you know that gluten causes you problems, you might have NCGS (Non Celiac Gluten Sensitivity). There is no test available yet for NCGS. Celiac must first be ruled out. Celiac disease is an autoimmune disorder that damages the lining of the small bowel. NCGS we is not autoimmune and we know less about it's true nature. But we do know it is considerably more common than celiac disease.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.