Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Mouth Reactions?


Laura Wesson

Recommended Posts

Laura Wesson Apprentice

I tried allergy drops and I got sick rather quickly from an allergy drop. I washed my mouth out with water after holding the drop under my tongue, to swallow as little as possible.

I have many food intolerances and I figured that if I swallowed the allergy drop it would make me very sick.

But I got sick anyway, even though I washed out my mouth without swallowing.

Has anyone had food reactions that seem to be in the mouth? I know after I eat a food I have a reaction to (which includes gluten but many other foods also), I start to get sick afterwards within half an hour or so.

And I didn't guess it before, but maybe I get sick so quickly because there's a reaction going on in my mouth.

It isn't oral allergy syndrome, my mouth doesn't itch or anything like that. I get this woozy feeling coming on. When it's from eating a food, it gets a lot worse about 4.5 hours after eating. That's probably because my stomach empties into my small intestine then.

But with the allergy drop that didn't happen. I just got a woozy sort of feeling and the next day I was somewhat sick.

My food reactions seem to be getting less intense, so in a couple of years maybe I won't have to live on an exotic-foods diet any more.

Laura


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



ravenwoodglass Mentor

Your not trying to ease celiac symptoms with allergy drops are you? Celiac isn't an allergy and the drops won't work. Were those drops made with a gluten vehicle? Some of us will react to even distilled gluten grains and gluten oils. Gluten crosses the mucosal barriers really quickly gets into the bloodstream fast and from there to the brain.

Laura Wesson Apprentice
Your not trying to ease celiac symptoms with allergy drops are you? Celiac isn't an allergy and the drops won't work. Were those drops made with a gluten vehicle? Some of us will react to even distilled gluten grains and gluten oils. Gluten crosses the mucosal barriers really quickly gets into the bloodstream fast and from there to the brain.

I have lots of allergies. What they put in the drop were things I'm allergic to, like cat and dust and molds etc. etc. The drops are gluten-free.

But I have reactions to a huge # of foods besides gluten, and there was something in the drops that made me sick. I get sick from tiny amounts of the foods, like a small fraction of a milligram of protein. A few drops of sunflower oil, a tiny smidgen of peanut butter under my fingernail, that kind of thing.

I had heard years ago from somebody on a celiac mailing list, who said she'd tried allergy drops and they made her very sick.

I started to feel off, like woozy and sick, pretty soon after taking the drop, so I think it was a reaction in my mouth. I think it couldn't be "oral allergy syndrome" because that has symptoms like itching, classic allergic symptoms.

And other people might have mouth reactions too to foods.

Laura

  • 2 weeks later...
Yoekie Apprentice

I don't know if you're still here

but I wanted to let you know, I have a similar experience. It's a lot better now but the first 5 years after my foodpoisoning (which is when all the trouble started) I would feel sick after everything I ate. And it's a feeling that took place in my mouth. I remember going to the doctor (I was a teen at the time) and telling him I felt sick in my mouth and not in my stomach and he would look at me like :rolleyes: . I felt misunderstood and I couldn't explain. The only way it went away was by brushing my teeth with a very strong mintflavoured toothpaste, as if that would 'paralyse' my tongue for a while. But then the feeling would kick in again 10 min later.

As I said, it got better, but it's still there sometimes. I only just found out that I have foodintolerances and started thinking I might have a 'mouth-reaction' to the foods I can't cope with. But as I hadn't read anything alike until your post now, I thought I was just one of my crazy thoughts. You're not alone!!

Yoekie

RiceGuy Collaborator

Those allergy drops sound like a homeopathic remedy, which is essentially a very diluted form of the very things which can make you sick. From what I've read, it sounds to me like the ill person is expected to "build up a tolerance". But that IMHO is similar to the experiences many of us have had with gluten intolerance. Specifically, our symptoms are often less noticeable when we're eating gluten all the time. Then when we go gluten-free, the slightest amount of gluten can make us sicker than we used to get. I personally do not believe in this type of treatment, considering how so many people become more sensitive once they are completely gluten-free. It sounds like getting glutened all the time, and expecting that you'll just learn to live with it, and not notice so much. Maybe I'm incorrect, but until I see proof of otherwise, I won't be trying such things.

Are you taking any nutritional supplements? Addressing vitamin/mineral deficiencies can go a long way.

However, have you considered the possibility of an intestinal yeast (candida) overgrowth? From my experience, it sounds like you may be suffering from that. There are a number of candida killers to choose from, including caprylic acid capsules, and products containing a combination of ingredients. Just keep in mind, that it can make you feel a bit off for a week or two, from what many refer to as "die-off". This is when the yeast begins to die, and can cause you to feel not so well, and/or have cravings for things like sugar. This is why it is important to start slow, taking a single capsule at first, and work up to the recommended dose over a period of a week or two. In addition to taking the supplement, it is very advisable to avoid all sugars, yeasts (including yeast breads), vinegars (including ketchup), and fruits. You should know within a few weeks whether it is working.

Other than that, probiotics and/or digestive enzymes can be extremely helpful. Two other things which are said to help a lot are betaine HCL, and raw, unfiltered, unpasteurized Apple Cider Vinegar.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Jsingh replied to lizzie42's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      1

      Son's legs shaking

    2. - lizzie42 posted a topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      1

      Son's legs shaking

    3. - trents replied to Paulaannefthimiou's topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Bob red mill gluten free oats

    4. - trents replied to jenniber's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      10

      Disaccharide deficient, confusing biopsy results, no blood test

    5. - Paulaannefthimiou posted a topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Bob red mill gluten free oats

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      132,857
    • Most Online (within 30 mins)
      7,748

    Pam Ward
    Newest Member
    Pam Ward
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • Jsingh
      Hi,  My 7 year daughter has complained of this in the past, which I thought were part of her glutening symptom, but more recently I have come to figure out it's part of her histamine overload symptom. This one symptom was part of her broader profile, which included irritability, extreme hunger, confusion, post-nasal drip. You might want to look up "histamine intolerance". I wish I had known of this at the time of her diagnosis, life would have been much easier.  I hope you are able to figure out. 
    • lizzie42
      My 5yo was diagnosed with celiac last year by being tested after his sister was diagnosed. We are very strict on the gluten-free diet, but unsure what his reactions are as he was diagnosed without many symptoms other than low ferritin.  He had a school party where his teacher made gluten-free gingerbread men. I almost said no because she made it in her kitchen but I thought it would be ok.  Next day and for a few after his behavior is awful. Hitting, rude, disrespectful. Mainly he kept saying his legs were shaking. Is this a gluten exposure symptom that anyone else gets? Also the bad behavior? 
    • trents
      Not necessarily. The "Gluten Free" label means not more than 20ppm of gluten in the product which is often not enough for super sensitive celiacs. You would need to be looking for "Certified Gluten Free" (GFCO endorsed) which means no more than 10ppm of gluten. Having said that, "Gluten Free" doesn't mean that there will necessarily be more gluten than "Certified Gluten" in any given batch run. It just means there could be. 
    • trents
      I think it is wise to seek a second opinion from a GI doc and to go on a gluten free diet in the meantime. The GI doc may look at all the evidence, including the biopsy report, and conclude you don't need anything else to reach a dx of celiac disease and so, there would be no need for a gluten challenge. But if the GI doc does want to do more testing, you can worry about the gluten challenge at that time. But between now and the time of the appointment, if your symptoms improve on a gluten free diet, that is more evidence. Just keep in mind that if a gluten challenge is called for, the bare minimum challenge length is two weeks of the daily consumption of at least 10g of gluten, which is about the amount found in 4-6 slices of wheat bread. But, I would count on giving it four weeks to be sure.
    • Paulaannefthimiou
      Are Bobresmill gluten free oats ok for sensitive celiacs?
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.