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What Is Wrong?


minton

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minton Contributor

Yes, the candies are dyed. 3 different colors are listed in ingredients. That is a good idea and I will pay close attention to that... on a happier note, the canker sores are FINALLY healing and no new ones have appeared!


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minton Contributor

Great, I just got sick in school. According to school rules, they sent me home. This indigestion hasnow caused me to throw up! And I'm pretty sure I saw blood in that vomit. I have an appointment at 2:40 with my favorite doctor. I have a list of all the medicines I've taken in the last 4 weeks and my symptoms. And just watch, He will have a simple explanation for it all. He always does. My doctor is a genius.

rinne Apprentice

I'm glad you'll be seeing your doctor, I hope you get some answers and are feeling better soon. :)

minton Contributor

Doctor seemed a bit stumped to me, but he did help some and ordered some tests for more...

The rash is not DH or psoriasis in his opinion. He prescribed a cream, but the rash is going away on its own as well.

He thinks my balance is ear related and told me a few exercises to try. They seem to have helped. (My dad also returned the railings to the stairway finally...that was a 3 week paintjob!)

My energy is no better, but I have begun drinking Acai juice and it has allowed me to stay awake. I am watching for further improvement.

The doc ordered a CBC, thyroid levels, another test I don't remember, and, JUST IN CASE, a pregnancy test. We both agree we don't trust the pill or at home tests. Pregnancy is likely NOT the issue.

He gave me some ideas for my indigestion as well and told me we need to wait for the blood results for more information.

On a lighter note, my older, married friend and I were messing around yesterday (she is pregnant) with a fetal heartbeat monitor and other than hearing her baby's heartbeat (no heartbeat for ME!), we also found out that I have rusty hinges for joints! HAHAHA, actually that's a planned discussion next appointment... Some joints creaked horribly, others sounded like they popped out of place when I moved them. It was a bit scary.

ravenwoodglass Mentor
Doctor seemed a bit stumped to me, but he did help some and ordered some tests for more...

The rash is not DH or psoriasis in his opinion. He prescribed a cream, but the rash is going away on its own as well.

He thinks my balance is ear related and told me a few exercises to try. They seem to have helped. (My dad also returned the railings to the stairway finally...that was a 3 week paintjob!)

My energy is no better, but I have begun drinking Acai juice and it has allowed me to stay awake. I am watching for further improvement.

The doc ordered a CBC, thyroid levels, another test I don't remember, and, JUST IN CASE, a pregnancy test. We both agree we don't trust the pill or at home tests. Pregnancy is likely NOT the issue.

He gave me some ideas for my indigestion as well and told me we need to wait for the blood results for more information.

On a lighter note, my older, married friend and I were messing around yesterday (she is pregnant) with a fetal heartbeat monitor and other than hearing her baby's heartbeat (no heartbeat for ME!), we also found out that I have rusty hinges for joints! HAHAHA, actually that's a planned discussion next appointment... Some joints creaked horribly, others sounded like they popped out of place when I moved them. It was a bit scary.

Did your doctor refer you to an ear, nose and throat doctor to confirm that your balance issues are ear related? There is a disorder called gluten ataxia that effects balance. If the ENT says your ears are fine you might want to see a neuro if this doesn't resolve. A neurologist can diagnose gluten ataxia with an MRI which will show distinct white spots similar to the ones in MS. Of course the only thing they can do is tell you to be gluten free and sometimes a referral to a physical therapist who can help with balance issues.

In addition a doctor usually can't tell just by looking if a rash is DH. If it should come back a visit to a derm and a biopsy of the tissue next to the sores will tell you for sure.

Don't be too concerned about the creaky joints that you heard with the scope. You have a fluid inside your joints that lubricates them and will sometimes cause a popping noise. Like when someone cracks their knuckles. Go ahead and check it out but it is likley to be pretty normal.

I hope you start to feel better soon.

minton Contributor

He did not refer me to any doctors, but I will ask him next time about that. He did not biopsy the rash at all but he looked at the spots and told me that he has never seen DH or psoriasis act the way this rash has. The rash had begun to heal when he saw it and he said if it wasn't gone on its own or with the cream we would investigate further. So far no new spots!

Apparently the test he ordered that I don't recall included a vitamin D test (i think it was called a complete chem or something?) but they have to send the D test out to california and said it will take a minimum of ten days to recieve the results. They said all of the test results will be sent to them when all the tests are complete. And they will call me when they have the results. That will be February 2nd at the earliest. *waits anxiously* I will post the results as soon as I get them!

minton Contributor

Wow... test results cvame back. All my levels were normal except two. My potassium was low. it was 3.7 when it should be 3.8 at minimum (but its always been 3.7). And my vitamin D levels were 33, apparently my doctor wants them at 50. So tomorrow I am going hunting for a supplement (he wrote down the dose for me). And, since I mentioned it before, I should tell you all the blood pregnancy test was negative. Yay!


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      Thank you so much for having the courage to share this incredibly vivid and personal experience; it's a powerful reminder of how physical ailments can disrupt our fundamental sense of self. What you're describing sounds less like a purely psychological body dysmorphia and more like a distinct neurological event, likely triggered by the immense physical stress and inflammation that uncontrolled celiac disease can inflict on the entire body, including the nervous system. It makes complete sense that the specific sensory input—the pressure points of your elbows on your knees—created a temporary, distorted body map in your brain, and the fact that it ceased once you adopted a gluten-free diet is a crucial detail. Your intuition to document this is absolutely right; it's not "crazy" but rather a significant anecdotal data point that underscores the mysterious and far-reaching ways gluten can affect individuals. Your theory about sensory triggers from the feet for others is also a thoughtful insight, and sharing this story could indeed be validating for others who have had similar, unexplainable sensory disturbances, helping them feel less alone in their journey.
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