Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Add/adhd Medication & Gluten-free Diet


lucy-Q

Recommended Posts

lucy-Q Newbie

I'm new to this whole "gluten-free" living situation. I'm currently waiting to hear back on my blood test results to find out what my IgA & IgG levels are later this week. After I find out my test results and find out if I'm to do any further testing, I'm going on a gluten-free diet.

I was diagnosed in my late 20's with ADD. Finding out that diagnosis was a huge helpful revelation in my life as it explained a lot of my behaviors and thought patterns. It also allowed me to seek help for my "all over the place" thinking and start to get my life more organized. I have found ADD meds to be very helpful for me... though I had to go through a few that weren't so helpful to get to a good one.

As I have been reading up on gluten intolerance, several sources have talked about a relationship to ADD (though most of them talk about children with ADD). I'm curious to know several things:

1) Do lots of people with Celiac have ADD?

2) Do people (adults!) with ADD who go gluten-free experience relief from their ADD symptoms/behaviors?

3) Has anyone with ADD who has gone gluten-free been able to reduce their use of ADD meds?

If anyone who has ADD (or "brain fog") wants to chime in with their experience in going gluten-free... I would love to hear your experiences and input. I'm absolutely facinated to hear more about how these two conditions are related or interact....


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



AliB Enthusiast

Although I have not had a major problem with 'brain-fog', my husband did. When I went gluten-free after my digestion collapsed last Jan, he (not wanting to be left out! :D ) decided to do it with me.

After a few weeks it was quite clear to me that the gluten-free diet was having a quite radical effect not only on his brain-fog but also his Fibromyalgia. He didn't think it was making much difference and had a couple episodes where he had gluten only to wake up three days later in a lot of pain and in the blackest pit of brain-fog and depression all over again.

He didn't think it was such a bad idea after that! It has been like having a different husband. He is happier, he plays with, and enjoys the company of our grandsons rather than being shut away in his room in pain and in fear of being touched. He now remembers the right routes to take when we are out in the car (which saves me from having to give him directions all the time - and means less arguments and frustration for me!).

He doesn't generally have to have the days in bed like he did - usually at least 3 or 4 days every fortnight, and he is able to join in with us all and participate in our outings as a family.

I didn't think that he is now as reactive to gluten as he was, but about 4 weeks ago he went down with a bad chesty cough, verging on bronchitis. He just can't seem to shake it. He is very headachey, has little energy or motivation, is still coughing a bit and just can't seem to get out of it. Interestingly he has had some gluten over the last 2 weeks or so.

Not to say that the gluten caused it, but I am now wondering whether the gluten has knocked his immune system off course and is distracting it from getting him better!

Although I have been around him all the time I did not go down with it at all, which is amazing as I always caught everything going, but I am sure that being not only gluten-free but, unlike my husband, dairy-free and on the SCD along with the probiotic backup may well have given my immune system enough boost to fight it off.

I really wish I could get our son and daughter to do gluten-free and SCD. Our daughter who is 30 suffers with depression verging on Bipolar only held at bay by St Johns Wort, and our son was very bad with ADD, brain-fog and tics, all of which have improved somewhat as he has grown (28) but I am sure could be very much improved on on the diet if my husbands' experience is anything to go by.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,930
    • Most Online (within 30 mins)
      7,748

    Mhp
    Newest Member
    Mhp
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Who's Online (See full list)

    • There are no registered users currently online
  • Upcoming Events

  • Posts

    • Wheatwacked
      Definitely get vitamin D 25(OH)D.  Celiac Disease causes vitamin D deficiency and one of the functions of vitamin D is modulating the genes.  While we can survive with low vitamin D as an adaptation to living in a seasonal environment, the homeostasis is 200 nmol/L.  Vitamin D Receptors are found in nearly every cell with a nucleus,while the highest concentrations are in tissues like the intestine, kidney, parathyroid, and bone.  A cellular communication system, if you will. The vitamin D receptor: contemporary genomic approaches reveal new basic and translational insights  Possible Root Causes of Histamine Intolerance. "Low levels of certain nutrients like copper, Vitamins A, B6, and C can lead to histamine build up along with excess or deficient levels of iron. Iodine also plays a crucial role in histamine regulation."  
    • AnnaNZ
      I forgot to mention my suspicion of the high amount of glyphosate allowed to be used on wheat in USA and NZ and Australia. My weight was 69kg mid-2023, I went down to 60kg in March 2024 and now hover around 63kg (just after winter here in NZ) - wheat-free and very low alcohol consumption.
    • AnnaNZ
      Hi Jess Thanks so much for your response and apologies for the long delay in answering. I think I must have been waiting for something to happen before I replied and unfortunately it fell off the radar... I have had an upper endoscopy and colonoscopy in the meantime (which revealed 'minor' issues only). Yes I do think histamine intolerance is one of the problems. I have been lowering my histamine intake and feeling a lot better. And I do think it is the liver which is giving the pain. I am currently taking zinc (I have had three low zinc tests now), magnesium, B complex, vitamin E and a calcium/Vitamin C mix. I consciously think about getting vitamin D outside. (Maybe I should have my vitamin D re-tested now...) I am still 100% gluten-free. My current thoughts on the cause of the problems is some, if not all, of the following: Genetically low zinc uptake, lack of vitamin D, wine drinking (alcohol/sulphites), covid, immune depletion, gastroparesis, dysbiosis, leaky gut, inability to process certain foods I am so much better than late 2023 so feel very positive 🙂    
    • lehum
      Hi and thank you very much for your detailed response! I am so glad that the protocol worked so well for you and helped you to get your health back on track. I've heard of it helping other people too. One question I have is how did you maintain your weight on this diet? I really rely on nuts and rice to keep me at a steady weight because I tend to lose weight quickly and am having a hard time envisioning how to make it work, especially when not being able to eat things like nuts and avocados. In case you have any input, woud be great to hear it! Friendly greetings.
    • Hmart
      I was not taking any medications previous to this. I was a healthy 49 yo with some mild stomach discomfort. I noticed the onset of tinnitus earlier this year and I had Covid at the end of June. My first ‘flare-up’ with these symptoms was in August and I was eating gluten like normal. I had another flare-up in September and then got an upper endo at the end of September that showed possible celiac. My blood test came a week later. While I didn’t stop eating gluten before I had the blood test, I had cut back on food and gluten both. I had a flare-up with this symptoms after one week of gluten free but wasn’t being crazy careful. Then I had another flare-up this week. I think it might have been caused by Trader Joe’s baked tofu which I didn’t realize had wheat. But I don’t know if these flare-ups are caused by gluten or if there’s something else going on. I am food journaling and tracking all symptoms. I have lost 7 pounds in the last 10 days. 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.