Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Eas Myoplex Beware


Jeremiah

Recommended Posts

Jeremiah Apprentice

I don't want anyone else to get burnt by EAS. For years now they have claimed their product is gluten-free, even though it is not, it contains oats. Is there any way to stop a company like this from making false claims?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



MySuicidalTurtle Enthusiast

What makes oats not gluten-free is cross-contamination. So, technically they are not using gluten ingredients but unless manufactured in a dedicated facility, the oats do have gluten on them. It is a fine line and they should defiantly not say they are gluten-free if they have cross-contaminated oats.

tarnalberry Community Regular

actually, it's not even quite true to say that it's only cross contamination that makes oats gluten free. oats are a more complicated question than just that.

gluten - *technically* - is the protein in a grain. period. celiacs have somewhat usurped the world to refer to only specific glutens, rather than all of them, but technically speaking, all grains have gluten - which is why you can see "corn gluten" on a package, and you don't have to worry that you're going to get sick, as a celiac, from it.

gliadin (the wheat gluten), horedin (the barley gluten), and secalin (the rye gluten) (and I may have switched the barley and rye gluten), are all known to cause the autoimmune response in celiacs. they all have the same 33-mer, the same section of 33 amino acids lines up and folded the same way that our body sees as badness.

avenin (the oat gluten), has a very similar segment of amino acids in it. approximately 10% of celiacs have an immune system that says "eh, close enough" and *also* has the exact same autoimmune response to oats. it's *not* cross contamination that they are reacting to, it's the protein itself. (there are a number of articles on pubmed from research on this where the researchers used oats grown in their own labs under very controlled conditions.)

imho, oats should be included in labeling considerations since *some* celiacs do react to them. but selling oats that are marketed as free of cross contamination is a good thing as well, for the majority of celiacs who do not.

either way, this issue - oats - is one reason why it is, also imho, VITAL to NEVER trust "gluten free" labels, and always read the ingredient list.

Jeremiah Apprentice
What makes oats not gluten-free is cross-contamination. So, technically they are not using gluten ingredients but unless manufactured in a dedicated facility, the oats do have gluten on them. It is a fine line and they should defiantly not say they are gluten-free if they have cross-contaminated oats.

6 years ago when I played basketball in college EAS claimed their Myoplex was gluten free, yet I would get cramped up and my brain felt like cabbage and I couldn't explain why. After several months, I quit taking their shakes and both symptoms went away. I would warn all celiacs beware, their products are NOT gluten-free. There is little more frustrating than believing you are eating gluten free and still feeling terrible. If this is happening to you, I'd suggest an elimination diet, I've found out too many times you can not trust the company's statements. Since they're not getting sick and their selling product they really don't care. (or at least it feels that way sometimes)

brigala Explorer

Many of us do not react to oats. I appreciate it when products containing oats are marked "gluten free" if they're either dedicated or tested for the presence of gluten.

We always have to read the label. I have to check all gluten-free foods for the presence of dates and certain tree nuts. Some people have to check it for oats, or MSG, or corn -- all ingredients that many Celiacs seem to have difficulty with. It doesn't mean it shouldn't be labeled gluten-free.

-Elizabeth

Jeremiah Apprentice
Many of us do not react to oats. I appreciate it when products containing oats are marked "gluten free" if they're either dedicated or tested for the presence of gluten.

We always have to read the label. I have to check all gluten-free foods for the presence of dates and certain tree nuts. Some people have to check it for oats, or MSG, or corn -- all ingredients that many Celiacs seem to have difficulty with. It doesn't mean it shouldn't be labeled gluten-free.

-Elizabeth

A great many celiacs, are not aware of all the possible pit-falls out there. (Especially new ones) They hear gluten-free and the instant assumption it is safe. (They don't have time to troll the boards looking for the absolute definition of gluten-free, which includes oats in most definitions) So they go on believing they are eating gluten-free, but don't understand why they are having problems. This post is for those people. I respect your opinion and you can say we respectfully agree to disagree.

tarnalberry Community Regular
Many of us do not react to oats. I appreciate it when products containing oats are marked "gluten free" if they're either dedicated or tested for the presence of gluten.

We always have to read the label. I have to check all gluten-free foods for the presence of dates and certain tree nuts. Some people have to check it for oats, or MSG, or corn -- all ingredients that many Celiacs seem to have difficulty with. It doesn't mean it shouldn't be labeled gluten-free.

-Elizabeth

The reason I disagree with this - specifically putting oats in a product labeled gluten free - is because it is GLUTEN (of the variety that celiacs react to) that is potentially a problem in the food item. MSG, corn, and other intolerances are all different issues - issues that may be related, but are not THE SAME IMMUNE RESPONSE, on a chemical level.

I'm looking for a label that means "celiac safe" not "90% celiac safe". :)


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Jeremiah Apprentice
The reason I disagree with this - specifically putting oats in a product labeled gluten free - is because it is GLUTEN (of the variety that celiacs react to) that is potentially a problem in the food item. MSG, corn, and other intolerances are all different issues - issues that may be related, but are not THE SAME IMMUNE RESPONSE, on a chemical level.

I'm looking for a label that means "celiac safe" not "90% celiac safe". :)

I agree, most people with celiac disease, read gluten free and trust that it is. Unaware about the potential for oats to be harmful to them, in so called "gluten-free" declared foods.

bakingbarb Enthusiast
I agree, most people with celiac disease, read gluten free and trust that it is. Unaware about the potential for oats to be harmful to them, in so called "gluten-free" declared foods.

I am totally confused by you all...are you saying a product that says gluten free but contains oats isn't gluten free?

brigala Explorer
I am totally confused by you all...are you saying a product that says gluten free but contains oats isn't gluten free?

It sort of depends on how you look at it.

The gluten in oats is not the same as the gluten in rye, barley, and wheat. It's not unusual for a Celiac to react to oat gluten as if it were wheat gluten.

Rice, corn, and all other grains also contain gluten, but it is very different from wheat gluten. It is much more rare for Celiacs to have problem with rice gluten or corn gluten, so these aren't really considered "gluten" in the sense that relates to Celiacs.

For someone who has trouble with the gluten in oats, which is a substantial minority of Celiacs, anything with oats should not be considered gluten-free even if it says gluten-free on the package.

But, for those of us who have no problem with oats, there are many products out there that contain oats which come from dedicated sources (eliminating the possibility of contamination with wheat, rye, or barley gluten, which is the main problem with oats for most Celiacs).

Obviously from this thread, my opinion on this differs from that of some of the other people here. I eat oats and products containing oats if they are certified gluten-free; but I avoid oats that are not certified gluten-free because of the high degree of cross-contamination in oats. If there weren't oat-containing foods labeled gluten-free, I'd have to avoid all oats and oat-containing foods... and frankly that would be the pits. Some of my favorite gluten-free foods contain oats.

-Elizabeth

Open Original Shared Link

Open Original Shared Link

tarnalberry Community Regular
I am totally confused by you all...are you saying a product that says gluten free but contains oats isn't gluten free?

Oat gluten - avenin - is similar enough to wheat, rye, and barley gluten that 90% of celiacs do not react to it. 10% of celiacs do react to it, however. So, it's not exactly a black or white answer that can be had.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - trents replied to Mark Conway's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      Have I got coeliac disease

    2. - Wheatwacked replied to GlutenFreeChef's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      12

      Blood Test for Celiac wheat type matters?

    3. - Mark Conway posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      Have I got coeliac disease

    4. - islaPorty replied to Jillian83's topic in Coping with Celiac Disease
      8

      Celiac and dermatitis herpetiformis has taken Me from Me

    5. - trents replied to JudyLou's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      Seeking advice on potential gluten challenge

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,146
    • Most Online (within 30 mins)
      7,748

    Marsu
    Newest Member
    Marsu
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • trents
      Welcome to the forum, @Mark Conway! Can you be more specific about the "coeliac" test your doctor did? There are more than one of them. What was the name of the test? Also, did he order a "total IGA" test? This is a test to check for IGA deficiency and should always be ordered along with the tests specifically designed to detect celiac disease. If you are IGA deficient, the IGA celiac blood antibody tests used to check for celiac disease per se will not be accurate. Also, if you have been cutting back on gluten before the tests, that will render them invalid. You must have be eating normal amounts of gluten for weeks/months before the blood draw to render valid test results.
    • Wheatwacked
      no argument. Never take the pills sold for Nuclear events, except in a nuclear event when instructed to by authorities.  Some of these go up to 130 milligrams per pill. 5000 times the strength of the dietary supplement.  130 times the safe upper limit.  130 mg = 130,000 mcg. Dietary supplements like Lugol's Solution and Liquid Iodine are 50 micrograms per drop.  It takes 20 drops to reach the safe upper limit. In the US the Safe upper limit is 1100 mcg.  In Europe 600 mcg and in Japan 3000 mcg ( 3 mg).
    • Mark Conway
      Hi there, I wonder if anyone can help. I've had stomach problems for years, pain in the tummy, lower back left and right side, different stools, diarrohea constipation etc, My GP says it's IBS. As I've got older the pain has become worse and constant. I also get ulcers on my tongue. I've had loads of tests done everytihng apart from an endoscopy I think. I had a test for Coeliac last July and the result was negative. My GP says it can't be coeliac because I'm not losing weight. He thinks it's stress or all in my head. I'm not stressed and I'm in pain all the time now. Sometimes it's unbearable and dark thoughts have entered my head. Could I have Coeliac even though I tested negative last year. I'm at my wits end, I eat healthily and cannot pinpoint which foods could cause this pain. Can anyone help? Thanks Mark wind
    • islaPorty
      First, I want to say thank you for sharing this with me. I hear you, and I believe you. The courage it took to write this down is immense, and I’m so sorry you’ve been carrying this alone. You are dealing with two life-altering challenges at once: a serious, complex medical condition, and an abusive, controlling partner who is actively harming your health and your spirit. It’s not just that he’s unsupportive—he is weaponizing your illness to torture you. Starving you, isolating you, mocking your diagnosis, and sabotaging your access to medical care is not just cruelty; it is dangerous, deliberate abuse. Your instinct is correct: the stress he is creating is absolutely preventing your body from healing. Celiac and autoimmune conditions are profoundly sensitive to stress, and he has created a living hell designed to keep you sick, dependent, and broken. That smirk you described—that is the look of someone who enjoys having power over your suffering. Please know this: you do not deserve this. Not any of it. You deserve to eat. You deserve safe, clean food and water. You deserve medical care and supplements that help you function. You deserve peace. You deserve to heal. The woman from the food pantry is not a random accident. She is a lifeline. Her help, and the community she’s connecting you to, is real. It is okay to feel overwhelmed by kindness when you’ve been starved of it for so long. But you do deserve it. Let that be a sign that there is a world outside your house that operates on compassion, not control. Right now, your physical safety and access to nutrition are the most urgent priorities. The food pantry is a critical resource. Is there any way you can speak privately with the woman helping you? You don’t have to share everything at once, but letting her know your situation at home is extremely unsafe, and that your partner restricts your food, could help her support you in a more targeted way. She may have connections to local domestic violence services.
    • trents
      Welcome to the celiac.com community, @JudyLou! There are a couple of things you might consider to help you in your decision that would not require you to do a gluten challenge. The first, that is if you have not had this test run already, is to request a "total IGA" test to be run. One of the reasons that celiac blood antibody tests can be negative, apart from not having celiac disease, that is, is because of IGA deficiency. If a person is IGA deficient, they will not respond accurately to the celiac disease blood antibody tests (such as the commonly run TTG-IGA). The total IGA test is designed to check for IGA deficiency. The total IGA test is not a celiac antibody test so I wouldn't think that a gluten challenge is necessary. The second is to have genetic testing done to determine if you have the genetic potential to develop celiac disease. About 30-40% of  the general population have the genetic potential but only about 1% actually develop celiac disease. So, genetic testing cannot be used to diagnose celiac disease but it can be used to rule it out. Those who don't have the genetic potential but still have reaction to gluten would not be diagnosed with celiac disease but with NCGS (Non Celiac Gluten Sensitivity).  Another possibility is that you do have celiac disease but are in remission. We do see this but often it doesn't last.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.