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Recent Activity
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- Scott Adams replied to MMeade's topic in Coping with Celiac Disease1Gluten Allergy
Welcome to the forum--and you are absolutely not alone in your experience with a non-celiac gluten sensitivity that presents with severe constipation and profound inflammatory consequences. While the more commonly discussed symptoms are diarrhea-centric, your reaction is a valid and documented, though less common, manifestation. It is completely understandable... -
- Scott Adams commented on Jefferson Adams's article in Gluten-Free Foods & Beverages8
Are Cheetos and Other Top Cheese Puff Brands Gluten-Free?
These are on the list and don't contain gluten: Cheetos Crunchy Flamin' Hot Cheese Flavored Snacks Cheetos Crunchy Flamin' Hot Chipotle Ranch Cheese Flavored Snacks Cheetos Crunchy Flamin' Hot Limón Cheese Flavored Snacks- celiac
- celiac disease
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- Rogol72 replied to Rejoicephd's topic in Coping with Celiac Disease1Draft gluten-free ciders… can they be trusted ?
I've never had an issue this side of the pond. If I'm out I drink Bulmers Cider. Sometimes draft and sometimes bottled. The draft cider lines are for Cider only. -
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- Rejoicephd posted a topic in Coping with Celiac Disease1Draft gluten-free ciders… can they be trusted ?
Hi everyone do you know whether when you get a draft cider if there is a chance that it runs through the same tubing as a beer did sometime prior? the reason I’m asking is that I’m trying to eliminate a source of hidden gluten that I think hits me about once a month. And I have a suspicion it might be cider from the draft at certain bars. When I a...
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By Scott Adams · Posted
Welcome to the forum--and you are absolutely not alone in your experience with a non-celiac gluten sensitivity that presents with severe constipation and profound inflammatory consequences. While the more commonly discussed symptoms are diarrhea-centric, your reaction is a valid and documented, though less common, manifestation. It is completely understandable to feel isolated, especially after moving to an area with less familiarity with this specific presentation, but your vigilance in protecting your remaining colon is not just justified, it is critically important. Your history of autoimmune disease (Hashimoto's) further supports the likelihood of your body mounting a significant inflammatory response to gluten. Many in this community share similar frustrations with a skeptical medical community and the social challenges of maintaining a strict diet, so please know you have found a place where your condition is believed and understood. Staying gluten-free to prevent further damage is the safest path for your health, and we are here to support you in that crusade. -
I've never had an issue this side of the pond. If I'm out I drink Bulmers Cider. Sometimes draft and sometimes bottled. The draft cider lines are for Cider only.
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By Rejoicephd · Posted
Hi everyone do you know whether when you get a draft cider if there is a chance that it runs through the same tubing as a beer did sometime prior? the reason I’m asking is that I’m trying to eliminate a source of hidden gluten that I think hits me about once a month. And I have a suspicion it might be cider from the draft at certain bars. When I am out, if I decide to drink, I usually order a cider brand that I know is gluten free. what I’ve noticed is that a couple times when I got a draft cider, I got symptoms of being glutened that night and the day after. This doesn’t seem to happen with all times I drink cider. I had a draft at a very clean brewery and I didn’t react from that, which is what made me start to wonder. Does anyone know if this is a possible source of getting glutened? I am like 99% sure that this is the cause and I think I’ll switch to bottle/can only from here on out, but would be interested if others experienced the same thing (or work in a bar and know how this works). Thanks! -
Hello everyone, I am at struggling finding gluten-free food for my 17-year-old daughter who has celiac disease. she finds things that she thinks she would like she takes a bite and ends up in the trash gluten-free food happens to be very expensive. I collect Foodstamps and I contacted the county to see if I could get extra Foodstamps due to her, so the ex disease, considering the food cost more. I am running out of options. Most stores don’t carry gluten-free stuff and we spend majority of our time looking at the ingredients and get frustrated because everybody’s looking at us, wondering what we’re doing and what we’re looking for so I’m struggling as a mom to find the best options for my daughter that she would like, and I didn’t know that he could also affect her mental health she does get a check up every six months, but our biggest thing is getting her on a good vitamin one that the doctor can call in because we have insurance and just trying to find food that she could eat and not waste we waste almost $200 a month and just gluten-free food that she just throws in the trash or that to sit on the shelf and go to wasteso if you have any ideas, please feel free to contact me with any ideas
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Hello, I am new to your forum. I was diagnosed with multiple food allergies including gluten, 20 years ago. I do not have celiac disease. I have been gluten free for over 15 years. My symptoms seem to be very different than others and my doctors have always been skeptical about my condition. When I would accidentally eat gluten, the inflammation would cause my GI system to stop- i.e severe constipation. This eventuality led to diverticulitis which, due to numerous factors, led to abscesses and removal of my sigmoid colon 3 years ago. Biopsies were done and confirmed that I do not have celiac disease. I do have other autoimmune diseases- Hashimotos hypothyroiditis. I remain gluten free for fear of damaging the remaining colon I have left. My question to this group is- am I alone in this odd scenario? Does anyone else have this condition? When I lived in Seattle, many naturopaths understood my symptoms and condition but after moving to Kentucky, I can find no one that seems to understand or even believe my condition exists. I sometimes feel like maybe I could eat gluten again because it is so hard to avoid it in this part of the country - choices are much more limited- but again, I am fearful of injuring my remaining, colon. Any insight from others who may have experienced similar symptoms is greatly appreciated since I am feeling vey alone in my crusade to stay healthy. As an aside, while the sigmoid colon removal left me diverticulitis/diverticulosis free, it also left me with less muscle control, so I now take magnesium supplements (oxygenated magnesium oxides) to maintain regular bowel function and avoid constipation. Thank you- I appreciate the kindness and support this group brings to people.
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