Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Gluten Intolerance Or Ibs?


browneyedsue

Recommended Posts

browneyedsue Newbie

Hello Everyone,

I am new to this site. I have had digestive issues for the past 15 years. I have had every test known to man (except for celiac testing) and all have come back normal. My doctor diagnosed me with IBS and told me to try and control stress, excersie, drink plenty of water and eat a lot of fibre.

I have done all these things for years and years but am unable to get relief. My biggest complaint is Bloating, distention, pressure and constipation with no urge.

Does my history sound familiar to any of you that are gluten sensitive? I'm not convinced I have celiac disease but am thinking I may be sensitive to gluten. Any information you could give me would be helpful, I have begun trying to eliminate gluten but as you know it lurks in just about everything. Some getting started tips would be nice.

Thank you in advance for all who respond. I just want to feel better!!!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



rinne Apprentice

Hi. :) If you have had the same doctor for fifteen years and they have done every test except Celiac then I would suggest finding another doctor.

The simplest thing to do to see if changing your diet will make you feel better is to change it radically for a period of time. Bloating and C say that your digestion is challenged and so many foods are challenging to digest, dairy, nightshades, soy and corn to mention a few. I suggest going to a very basic diet (meat, chicken, fish and veggies) for a week and then introducing foods back in and seeing how you react to them. If you google elimination diets or paleo diets lots of information will come up.

My feeling is that unless we take responsibility for our health we won't have it. Doctors know very little about diet and the real impact it has on our health. They are trained to run tests and if the tests don't show anything they have nothing to offer. Stop! They have antidepressants!

I too had tests run that didn't show anything but in my case I have a sister and brother diagnosed with Celiac by endoscopy and so going gluten free was a no-brainer. Plus, I always knew I had a problem with wheat and mostly avoided it.

I think many people may be suffering digestive disorders today because of antibiotic use years ago, I think it takes time for the bad bacteria to over run the gut. That may be true for you rather than Celiac but in either case a gluten free diet will bring relief and that is a good place to start. :)

Fiddle-Faddle Community Regular

IBS is a syndrome (that's what the "S" stands for--"Syndrome). A syndrome is a collection of symptoms whose cause is not yet known or understood.

If you compare the symptoms of IBS and the symptoms of celiac disease/gluten intolerance, you'll find that the symptoms are identical. Not similar. IDENTICAL.

Unfortunately, your experience is the norm--the doctor diagnoses IBS and prescribes medication to mask the symptoms. Not to address the cause, mind you, but to mask the symptoms.

Now, this doesn't mean that ALL cases of IBS are caused by gluten. Some are caused by other food intolerances. Some are caused by vaccines making the immune system go crazy. Some are caused by intestinal parasites, bacterial infections, or Lyme disease.

But a whopping number are caused by GLUTEN. And doctors ought to lose their jobs for failing to rule it out, as it's the easiest one to rule out. You don't even need blood work to rule it out. You can just try the diet and see if it works.

But be aware that, if you DO want blood work or a biopsy to "prove" on paper that you have celiac, you do need to be eating gluten up until the test, as being gluten-free makes you stop producing the antibodies to gluten.

On the other hand, some here have opted out of a written diagnosis, as the insurance companies have been known to use a diagnosis of celiac disease to deny coverage.

browneyedsue Newbie

Once beginning a gluten free diet how long before I should see a change in my gut?

Also, I worry about inadvertently consuming gluten in products that I am unaware it is lurking in like maybe gum, breath mints, coffee creamer, etc. I know label reading will become second nature and the gluten ingredients will jump out at me, I guess practice will make perfect.

Any suggestions on big NO NO items that I may fall prey to without knowing it? Thanks

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Scott Adams replied to klmgarland's topic in Dermatitis Herpetiformis
      1

      Help I’m cross contaminating myself,

    2. - Scott Adams replied to Jmartes71's topic in Coping with Celiac Disease
      1

      My only proof

    3. - Scott Adams replied to Colleen H's topic in Related Issues & Disorders
      1

      Methylprednisone treatment for inflammation?

    4. - Scott Adams replied to ElenaM's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      I think I am gluten intolerant

    5. - klmgarland posted a topic in Dermatitis Herpetiformis
      1

      Help I’m cross contaminating myself,


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,905
    • Most Online (within 30 mins)
      7,748

    Croissantl0v3r
    Newest Member
    Croissantl0v3r
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Scott Adams
      It is difficult to do the detective work of tracking down hidden sources of cross-contamination. The scenarios you described—the kiss, the dish towel, the toaster, the grandbaby's fingers—are all classic ways those with dermatitis herpetiformis might get glutened, and it's a brutal learning curve that the medical world rarely prepares you for. It is difficult to have to deal with such hyper-vigilance. The fact that you have made your entire home environment, from makeup to cleaners, gluten-free is a big achievement, but it's clear the external world and shared spaces remain a minefield. Considering Dapsone is a logical and often necessary step for many with DH to break the cycle of itching and allow the skin to heal while you continue your detective work; it is a powerful tool to give you back your quality of life and sleep. You are not failing; you are fighting an incredibly steep battle. For a more specific direction, connecting with a dedicated celiac support group (online or locally) can be invaluable, as members exchange the most current, real-world tips for avoiding cross-contamination that you simply won't find in a pamphlet. You have already done the hardest part by getting a correct diagnosis. Now, the community can help you navigate the rest. If you have DH you will likely also want to avoid iodine, which is common in seafoods and dairy products, as it can exacerbate symptoms in some people. This article may also be helpful as it offers various ways to relieve the itch:  
    • Scott Adams
      It's very frustrating to be dismissed by medical professionals, especially when you are the one living with the reality of your condition every day. Having to be your own advocate and "fight" for a doctor who will listen is an exhausting burden that no one should have to carry. While that 1998 brochure is a crucial piece of your personal history, it's infuriating that the medical system often requires more contemporary, formal documentation to take a condition seriously. It's a common and deeply unfair situation for those who were diagnosed decades ago, before current record-keeping and testing were standard. You are not alone in this struggle.
    • Scott Adams
      Methylprednisolone is sometimes prescribed for significant inflammation of the stomach and intestines, particularly for conditions like Crohn's disease, certain types of severe colitis, or autoimmune-related gastrointestinal inflammation. As a corticosteroid, it works by powerfully and quickly suppressing the immune system's inflammatory response. For many people, it can be very effective at reducing inflammation and providing rapid relief from symptoms like pain, diarrhea, and bleeding, often serving as a short-term "rescue" treatment to bring a severe flare under control. However, experiences can vary, and its effectiveness depends heavily on the specific cause of the inflammation. It's also important to be aware that while it can work well, it comes with potential side effects, especially with longer-term use, so it's typically used for the shortest duration possible under close medical supervision. It's always best to discuss the potential benefits and risks specific to your situation with your gastroenterologist.
    • Scott Adams
      Based on what you've described, it is absolutely possible you are dealing with non-celiac gluten sensitivity (NCGS).  Approximately 10x more people have non-celiac gluten sensitivity than have celiac disease, but there isn’t yet a test for NCGS. If your symptoms go away on a gluten-free diet it would likely signal NCGS.   Your situation is a classic presentation: a negative celiac panel but a clear, recurring pattern of symptoms triggered by gluten. The symptoms you listed—particularly the extreme fatigue, bloating, neurological-psychiatric symptoms like depression and anxiety, and even the skin manifestations like facial flushing—are all well-documented in research on NCGS. It's important to know that you are not alone in experiencing this specific combination of physical and emotional reactions. The only way to know for sure is to commit to a strict, 100% gluten-free diet under the guidance of a doctor or dietitian for a period of several weeks to see if your symptoms significantly improve. It is also crucial to rule out other potential causes, so discussing these symptoms with a gastroenterologist is a very important next step.
    • klmgarland
      It took three years and several doctors and many tests, and lots of steroids and other bad medicine that didn’t do anything to finally find a competent doctor to get diagnosed with dermatitis herpetiformis.  I am meticulous about a completely gluten free diet now for more than a year and things were finally getting better until they weren’t.  Who knew that if I fed my dear invalid cousin a hamburger and used the same hand to eat a couple of her gluten free fries that I was cross contaminating myself.  Who knew that if my husband makes a sandwich and leaves crumbs on the counter which I sweep away with a dish towel then wash my hands and dry them on this same dish towel and then touch my lips that I potentially cross contaminated myself.  Who knew that just wiping off the table crumbs could still leave gluten on the table that has to be washed off with soap and water.  Who knew when my husband heats a tortilla by draping it over the toaster that gluten residue is possibly left behind.   Who knew that if my husband eats a gluten product and I kiss him on the lips that I was cross contaminating myself.  Who knew that if I should walk into the bakery to get my gluten free cupcake if they have been mixing up a batch of flour batter and there could be flour particles in the air I could inhale and contaminate myself.  Who knew I needed to be careful that my grand baby shouldn’t put there fingers in my mouth because they just ate a biscuit and I was cross contaminating myself.   Eating gluten free is the easy part.  But know one tells me how to live in the real world filled with gluten contamination just waiting to happen!   There I feel better getting all that off my chest but I feel isolated and alone in this journey. I sleep with a back scratcher, stand in my freezing cold pool, glob on tons of triamcinolone for the rash on my knees, back, bottom, elbows and ankles.  I use bottles of Scalpicine for the extensive rash on my scalp.  All my make up, medications, soaps, shampoos, cleaners, detergents are all gluten free.  But I still have a rash and I fear I will gouge and claw holes in my head and body before I can’t figure out how I am exposing myself to gluten.  I don’t even want to leave the house anymore.  I never eat any food or drink offered me at anyone’s home ever.  I can drink wine and eat potato chips!  Hurray for me, I finally agreed to try Dapsone even though I read it’s hard on your body but if I don’t get some relief am going to have a nervous breakdown from lack of sleep and high anxiety. Can anyone point me in the right direction? Thank you,  Helpless but Hopeful
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.