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Now I Know I Am Celiac

Gerri

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Gerri Explorer
Gerri
Posted

I couldn't understand until I fired my doctor, and got my lab work back, why my ex doctor told me to stay off Gluten the rest of my life.

Tissue transgluaminase IgA *normal is less than 5*, my reading was 5. This number is the lowest level for Celiac, but the blood work was done during a time I was watching the amount of gluten and cutting back (had totally been off gluten for 4 weeks). Then I was back on gluten. The six weeks of forcing myself to eating gluten, nearly killed myself doing it. I landed in hospital twice. I was so very sick, but doctors still didn't hear me and went ahead with small intestine biopsy. It showed I had hiatus hernia, ongoing inflamation of my esophogus, a duodenal diverticulum, all signs of celiac damage. Still I wasn't diagnosed with Celiac. This was on report dated December 2008.

It's now February 24th my observations and why I will get a doctor to diagnose me with celiac:

1: Diabetes brought totally under control following a Celiac diet, that I started right after the biopsy.

2: My severe sleep apnea, seems to be brought totally under control, to a point I may not need my CPAP. (7 years of CPAP use for severe obstructed sleep apnea, with Central Apnea, and then nothing)

3: Lastly as the pressure of my CPAP was brought down, with help of sleep doctor, I am finally started to loose weight. I lose 2 lbs overnight.

I am so in shock, since yesterday when the doctor said I would have to have another sleep study (this coming Saturday), but at the moment he would say, from the numbers he seen, I didn't have sleep apnea. He also said he would not say I didn't have sleep apnea because he didn't have base numbers as I moved from Sarnia area to Kitchener. He did ask the technician to put pressure down to 11 from 15.

Last night and this morning, I had more optical migraines. I still have lots of swelling around eyes, and hands, my RF value is high. I think Celiac has caused lots of damage to my health.

Hugs

Gerri

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oceangirl Collaborator
oceangirl
Posted

It's great you are getting to the bottom of your ills. Keep reading here and good luck with continued health.

lisa

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