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Good Q's To Ask The Belly Doctor?


nix's gfgf

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nix's gfgf Rookie

Hello everyone!

I am going to see a new GI in a few days. As mentioned before in previous posts, I am not 100% sure what the problem is in my guts but I grew up eating gluten-free and then entered a "honeymoon" phase. Recently everything has started to come back three fold. I would love to go into this somewhat prepare. Can anyone refer me to some info to ask about this disease? I get white coat syndrome easily and don't want to leave without getting all questions answered. Thanks a bunch.

Traci

  • 2 weeks later...

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teemaree Apprentice

Its a shame noone has answered this as yet....................because I too am going to see my doctor, and wanted some good question to ask, so I would leave more informed...

But I guess it's hard to answer this post due to everyone having different ailments, and what is a suitable question for one person may not be suitable for someone else?

pele Rookie
Its a shame noone has answered this as yet....................because I too am going to see my doctor, and wanted some good question to ask, so I would leave more informed...

But I guess it's hard to answer this post due to everyone having different ailments, and what is a suitable question for one person may not be suitable for someone else?

When I read your question, I remembered my own GI Doc experience. I had a list of celiac related questions and he did not want to talk about it at all. Just wanted to schedule a colonoscopy at the first visit and get rid of me at the second. And this was a self-proclaimed celiac specialist.

So I hope you have a more positive experience.

If your new doctor does listen and answer questions, I would ask about testing for malabsorption, kidney and liver funtion, adrenal and thyroid function, Vitamin D, and bone density.

You may get some more responses if you expand on your question a bit. Why are you going to this doctor and what do you hope to find out?

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  • Posts

    • Rogol72
      Hey @Butch68, I also have dermatitis herpetiformis but don't suffer from it anymore. I used to drink Guinness too but I drink Cider now when out on social occasions. I assume you are in Ireland or the UK. If it's any good to you ... 9 White Deer based in Cork brew a range of gluten-free products including a gluten-free Stout. I'm not sure if they are certified though. https://www.9whitedeer.ie/ I haven't come across any certified gluten-free stouts this side of the pond.
    • Scott Adams
      This is a very common question, and the most important thing to know is that no, Guinness is not considered safe for individuals with coeliac disease. While it's fascinating to hear anecdotes from other coeliacs who can drink it without immediate issues, this is a risky exception rather than the rule. The core issue is that Guinness is brewed from barley, which contains gluten, and the standard brewing process does not remove the gluten protein to a level safe for coeliacs (below 20ppm). For someone like you who experiences dermatitis herpetiformis, the reaction is particularly significant. DH is triggered by gluten ingestion, even without immediate gastrointestinal symptoms. So, while you may not feel an instant stomach upset, drinking a gluten-containing beer like Guinness could very well provoke a flare-up of your skin condition days later. It would be a gamble with a potentially uncomfortable and long-lasting consequence. Fortunately, there are excellent, certified gluten-free stouts available now that can provide a safe and satisfying alternative without the risk.
    • MogwaiStripe
      Interestingly, this thought occurred to me last night. I did find that there are studies investigating whether vitamin D deficiency can actually trigger celiac disease.  Source: National Institutes of Health https://pmc.ncbi.nlm.nih.gov/articles/PMC7231074/ 
    • Butch68
      Before being diagnosed coeliac I used to love Guinness. Being made from barley it should be something a coeliac shouldn’t drink. But taking to another coeliac and they can drink it with no ill effects and have heard of others who can drink it too.  is this everyone’s experience?  Can I drink it?  I get dermatitis herpetiformis and don’t get instant reactions to gluten so can’t try it to see for myself. 
    • trents
      NCGS does not cause damage to the small bowel villi so, if indeed you were not skimping on gluten when you had the antibody blood testing done, it is likely you have celiac disease.
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