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Complete Recovery?


Anthony22

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Wonka Apprentice
My son was diagnosed at age 10. He used to beat up his sister constantly, He was very ill humored. He couldn't do his school work. He couldn't remember to bring his homework home. He didn't write his assignments in his planner. Teachers kept coming down on me because I wasn't making him do his homework, but I neither of us even knew he had homework. He was a complete air head. He was also totally skinny even though he would eat a ton. Then he started having bad chest pain and throwing up 10 times a day. Fortunately he has a wonderful doctor who diagnosed him quickly.

Now a year and a half later he has gained a ton of weight, grown a ton. He has stopped hitting his sister and is great humored and a joy to be around. He is doing great in school and handles all his homework himself. He hasn't thrown up for about a year. He does get a bit grumpy from time to time when I think he picks up a bit of gluten at school. He is coping with celiac disease wonderfully. It can be done.

My daughter was diagnosed this year at 13. I noticed a similar pattern that you described. She no longer torments her sister, so there is less fighting, she is less absent minded about school work (she actually had a pretty good student phone and ask HER some homework questions this weekend). Her exzema has cleared up completely (her hand used to look like raw hamburger) and her disposition is just happy now instead of sullen. It's so nice to have my daughter back.


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thleensd Enthusiast
Hi everyone,

Not to be too negative, but it's getting a bit depressing for me to keep reading about people who have been gluten-free for so many month and years and are still having symptoms and all sorts of other problems. Is there anyone out there who can say that they've had complete cessation of all their symptoms after going on a gluten-free diet? I keep reading the "official" line that 99% of people with Celiac are able to live normal, healthy, symptom free lives after going gluten-free for a while. This certainly doesn't seem to be the case around here. After 2 1/2 months, I'm suffering worse than I was before, and I eat nothing processed, cook everything from scrarch, and have checked every last little thing possible from pet food to shampoo to old pots and pans etc. etc. etc. etc. etc. etc. etc. etc. It would be awfully nice to hear some uplifting stories and to know there is light at the end of the tunnel.

Anthony

Thank you for posting this. I totally understand...and it's nice to have this community to tell us to hang in there. I trust it will get better. It is definitely tough to be in a tunnel when you have no idea how long it is or is there is light on the other end (thanks for that analogy!)

Best of luck. Hang in there.

Anthony22 Rookie

I just wanted to post to thank the large number of you that have posted replies and sent private messages. Your stories, questions, and support is very encouraging and much appreciated. I hope we'll keep hearing from people who've recovered in the future . . .

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      Welcome to the celiac.com communiuty, @Matthias! Yes, we have been aware that this can be an issue with mushrooms but as long as they are rinsed thoroughly it should not be a problem since the mushrooms don't actually incorporate the gluten into their cellular structure. For the same reason, one needs to be careful when buying aged cheeses and products containing yeast because of the fact that they are sometimes cultured on gluten-containing substrate.
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      The one kind of food I had been buying and eating without any worry for hidden gluten were unprocessed veggies. Well, yesterday I discovered yet another pitfall: cultivated mushrooms. I tried some new ones, Shimeji to be precise (used in many asian soup and rice dishes). Later, at home, I was taking a closer look at the product: the mushrooms were growing from a visible layer of shredded cereals that had not been removed. After a quick web research I learned that these mushrooms are commonly cultivated on a cereal-based medium like wheat bran. I hope that info his helpful to someone.
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      I might suggest you consider buckwheat groats. https://www.amazon.com/Anthonys-Organic-Hulled-Buckwheat-Groats/dp/B0D15QDVW7/ref=sr_1_4_pp?crid=GOFG11A8ZUMU&dib=eyJ2IjoiMSJ9.bk-hCrXgLpHqKS8QJnfKJLKbKzm2BS9tIFv3P9HjJ5swL1-02C3V819UZ845_kAwnxTUM8Qa69hKl0DfHAucO827k_rh7ZclIOPtAA9KjvEEYtaeUV06FJQyCoi5dwcfXRt8dx3cJ6ctEn2VIPaaFd0nOye2TkASgSRtdtKgvXEEXknFVYURBjXen1Nc7EtAlJyJbU8EhB89ElCGFPRavEQkTFHv9V2Zh1EMAPRno7UajBpLCQ-1JfC5jKUyzfgsf7jN5L6yfZSgjhnwEbg6KKwWrKeghga8W_CAhEEw9N0.eDBrhYWsjgEFud6ZE03iun0-AEaGfNS1q4ILLjZz7Fs&dib_tag=se&keywords=buckwheat%2Bgroats&qid=1769980587&s=grocery&sprefix=buchwheat%2Bgroats%2Cgrocery%2C249&sr=1-4&th=1 Takes about 10 minutes to cook. Incidentally, I don't like quinoa either. Reminds me and smells to me like wet grass seed. When its not washed before cooking it makes me ill because of saponins in the seed coat. Yes, it can be difficult to get much dietary calcium without dairy. But in many cases, it's not the amount of calcium in the diet that is the problem but the poor uptake of it. And too much calcium supplementation can interfere with the absorption of vitamins and minerals in general because it raises gut pH.
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