Seizure/sugar Connection With Celiac Disease

[Debbi]

Hello! My son has had petit mal seizures since he was 5 and he is almost 12. Seizures were never really controlled by medicines.. I am praying that my sons out grows the seizures, but his case is not a normal one.

He has a sugar problem and I believe gluten problem (which I think celiac disease) but he has not been diagnosed. I have tried to have him on a natural diet...with no preservatives. This has helped...but still searching for more answers. (Doctors always said that diet didn't matter....and I have proven them wrong!) I have been doing further research and have found that celiac disease...could have caused the seizures...and sugar problems. I would like to correspond with anyone that has info on this.

Thanks Debbi

dsprang@dbscorp.net

[missy'smom]

What kind of sugar problems does he have? Diabetes is often associated with Celiac. Has he been tested for diabetes? If so, what kind of testing? There is a slow progressing form of type 1 called LADA that is autoimmune, celiac disease is also autoimmune. To test for LADA they do a blood test that checks for certain antibodies(GAD). The A in LADA stands for adult but from the stories I've read of people who have it it seems that they had issues since they were relatively young and by the time they were adults they had progressed to type 1. Many having been undiagnosed for a long time. My sister had seizures and is now seizure free but still on meds. I think she's afraid to try to get off because of bad experiences but at the least, the healing of the villi that takes place on a gluten-free diet, has helped her absorb the meds now(previously they weren't being absorbed due to damaged villi) and now they are working and keeping her seizure free.

Good luck in finding the answers you are looking for.

[chatycady]

Hello! My son has had petit mal seizures since he was 5 and he is almost 12. Seizures were never really controlled by medicines.. I am praying that my sons out grows the seizures, but his case is not a normal one.

He has a sugar problem and I believe gluten problem (which I think celiac disease) but he has not been diagnosed. I have tried to have him on a natural diet...with no preservatives. This has helped...but still searching for more answers. (Doctors always said that diet didn't matter....and I have proven them wrong!) I have been doing further research and have found that celiac disease...could have caused the seizures...and sugar problems. I would like to correspond with anyone that has info on this.

Thanks Debbi

dsprang@dbscorp.net

My sister has had seizures before going gluten free. We both struggle with hypoglycemia too.

I have read a number of articles about this issue. You may want to read the book Breaking the Vicious Cycle. The author believes toxins are released into the blood stream and pass through the blood brain barrier causing all sorts of brain disorders. Her diet elimintes sugar, all starch, dairy, grains and focuses on monosaccharides. You can get the book at Amazon or check it out at the library. She states thatmost people are cured within one year, if one strictly follows the diet.

I have been on the diet for 6 months and the hypoglcemia has improved greatly. I'm getting better!

And I love the homemade yogurt which is full of good bacteria - healing me.

Has your son been on a lot of antibiotics? This may be the trigger.

[Debbi]

What kind of sugar problems does he have? Diabetes is often associated with Celiac. Has he been tested for diabetes? If so, what kind of testing? There is a slow progressing form of type 1 called LADA that is autoimmune, celiac disease is also autoimmune. To test for LADA they do a blood test that checks for certain antibodies(GAD). The A in LADA stands for adult but from the stories I've read of people who have it it seems that they had issues since they were relatively young and by the time they were adults they had progressed to type 1. Many having been undiagnosed for a long time. My sister had seizures and is now seizure free but still on meds. I think she's afraid to try to get off because of bad experiences but at the least, the healing of the villi that takes place on a gluten-free diet, has helped her absorb the meds now(previously they weren't being absorbed due to damaged villi) and now they are working and keeping her seizure free.

Good luck in finding the answers you are looking for.

Hello! The doctor called it pre-diabetes. Years ago I would see him eat something that would cause the blood sugar to rise and he would go into a seizure. We started on artificical sweetners and seizures were horrible so stopped that immediately. I found a group (Weston Price) that taught me how to make yogurt, keifer, and how to soak my bread (sourdough,etc) I also found a wonderful supplement (glyconutrients) that has helped him. He hasn't been to a family doctor in 4 years (which is amazing...he was always, always sick) (seizure doctor once a year)....so everything is working...probodics and the supplements really help the body.

Last year going to Cleveland Clinic..they repeated his EEG...it is better..only on one part of the brain...last time it was everywhere. So we are going to the right way. It bothers me so much as he gets older...that I want him to out grow the seizures. His seizures are still at night.....and first thing in the morning.... the eye will twitch and seizures usually last 40 seconds are so. You ususally don't see the seizures during the day unless he gets upset. (which years ago they were all the time) He is on just one seizure med (which the doctors are trying to change) But more meds doesnt make it better....it almost killed his liver and him (he was on 1000 mg depakote and another med...he was only 65 pds.) I will only do one med for now on.

I really think celiac or a gluten problem started this all. I remember when he was 2 we went to a Waffle House..he had a waffle and chocolate milk and he was sick within a short time vomiting. His seizures started at 5 after a battle of flu...(it was horrible he vomited in his sleep)....and he was never the same. I believe my side of the family has celiac or gluten problems, I also had seizures but only had one big seizure and was on meds and never seen another seizure. So his case is a different one. What you eat does make a difference. I had a doctor tell me years ago....that it didnt....boy I know he is wrong.

I just want to keep getting him better...

thanks Debbi

[missy'smom]

I too am a firm believer in the healing power of dietary measures. Keep an eye on that blood sugar. If the doc. is using just a fasting BG to diagnose and check his progress, I would be testing after meals over time to see how he is doing. Keep a good balance with plenty of protein and control on the carbs. I hope you'll find the following to be a good resource. Open Original Shared Link

[chatycady]

Hello! The doctor called it pre-diabetes. Years ago I would see him eat something that would cause the blood sugar to rise and he would go into a seizure. We started on artificical sweetners and seizures were horrible so stopped that immediately. I found a group (Weston Price) that taught me how to make yogurt, keifer, and how to soak my bread (sourdough,etc) I also found a wonderful supplement (glyconutrients) that has helped him. He hasn't been to a family doctor in 4 years (which is amazing...he was always, always sick) (seizure doctor once a year)....so everything is working...probodics and the supplements really help the body.

Last year going to Cleveland Clinic..they repeated his EEG...it is better..only on one part of the brain...last time it was everywhere. So we are going to the right way. It bothers me so much as he gets older...that I want him to out grow the seizures. His seizures are still at night.....and first thing in the morning.... the eye will twitch and seizures usually last 40 seconds are so. You ususally don't see the seizures during the day unless he gets upset. (which years ago they were all the time) He is on just one seizure med (which the doctors are trying to change) But more meds doesnt make it better....it almost killed his liver and him (he was on 1000 mg depakote and another med...he was only 65 pds.) I will only do one med for now on.

I really think celiac or a gluten problem started this all. I remember when he was 2 we went to a Waffle House..he had a waffle and chocolate milk and he was sick within a short time vomiting. His seizures started at 5 after a battle of flu...(it was horrible he vomited in his sleep)....and he was never the same. I believe my side of the family has celiac or gluten problems, I also had seizures but only had one big seizure and was on meds and never seen another seizure. So his case is a different one. What you eat does make a difference. I had a doctor tell me years ago....that it didnt....boy I know he is wrong.

I just want to keep getting him better...

thanks Debbi

You mentioned you make yogurt. Are you letting it ferment 24 hours so there is no lactose remaining? I'm not real familiar with kefir but doesn't it have a lot of alcohol in it? That wouldn't be good for someone with blood sugar problems. That is why I stay away from it. I too was told I have pre-diabetes.

You appear to have a really good handle on this and are doing a great job for your son. I vote with you. Diet is a big deal!

have you read much about the toxic by-products a damaged gut produces that pass into the blood stream and affect the brain?