Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Increased Sensitivity To Gluten


mikehall117

Recommended Posts

mikehall117 Rookie

I have been gluten-free for 14 days now and the transformation has been quite remarkable. However I accidentally consumed Gluten at the weekend while visiting my parents. My father cooked a meal and added Soy Sauce which contains Wheat Extracts and Wheat Dextrose. He was convinced that a small amount wouldn't do me any harm and didn't bother to tell me about it. I then rather stupidly had a very small glass of beer, thinking that I would be ok. Within a few hours I was feeling tired and uncomfortable and it's now 36 hours later I now feel very unwell with bloating, Big D, Migraine, Irritability, muscle aches and fatigue. The strange thing is that I feel much much worse than I would normally do when I was eating Gluten every day! :(

What I would like to know is whether staying gluten-free for two weeks now means that when I eat even the smallest amount of Gluten I am going to feel like this - i.e. considerably worse than when I ate Gluten every day. Could it be that my stomach and intestines have started to heal and so are now far more sensitive?

How sensitive am I going to get? Am I going to have to avoid sharing a toaster and cookware? My doctor didn't tell me any of this and I am confused and upset and would really appreciate any support and advice I can find.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



RiceGuy Collaborator

Yes, it is common to have an increased sensitivity once you've been gluten-free for a while. Last I read, there didn't seem to be solid research to explain why. Many suggest that the body is simply more capable of reacting, rather than being overwhelmed.

Yes, you'll need to get a dedicated gluten-free toaster. Many on this board choose to keep separate cookware as well. How much you have to replace depends somewhat on how diligent and careful you are about cleaning them. Scratched pans, wooden utensils, cast iron, or anything with a surface to which gluten can cling is asking for trouble. I'd suggest checking the dish soap you use, and be sure to keep a separate dish sponge. Wash the utensils you use separately, though many say their dishwasher does well enough.

Also, it's a good idea to keep boxed gluten-free things in a separate cabinet/drawer/area, so they don't get contaminated. If someone is using wheat flour, stay out of the kitchen. Make sure everyone in your home understands how important it is to clean up after themselves.

samcarter Contributor

I think what happens is that while we're still eating gluten, the problems are our "normal". I know I thought everybody else had pain when they used the bathroom, or felt incredibly lethargic by 5 pm, and had no motivation to be active.

once I went off gluten, I felt so different! Then when I get glutened, what used to be my "normal" is now obviously not. If that makes sense. The symptoms you get after being glutened are more pronounced partly because you're noticing the difference between being well and being on gluten.

Also, yes, we get more sensitive because our bodies know what it's like to feel good! I think our bodies have a natural defense mechanism against substances that are bad for us individually, and once we clear the system that mechanism can work better.

I would supply your dad with wheat-free, gluten free cooking ingredients (LaChoy soy sauce is gluten free!) next time he wants to make you a meal. And try to impress upon him that yes, small amounts of gluten is STILL gluten. It's not about quantity.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - lizzie42 posted a topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      0

      Son's legs shaking

    2. - trents replied to Paulaannefthimiou's topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Bob red mill gluten free oats

    3. - trents replied to jenniber's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      10

      Disaccharide deficient, confusing biopsy results, no blood test

    4. - Paulaannefthimiou posted a topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Bob red mill gluten free oats

    5. - jenniber replied to jenniber's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      10

      Disaccharide deficient, confusing biopsy results, no blood test

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      132,849
    • Most Online (within 30 mins)
      7,748

    Jadelucia
    Newest Member
    Jadelucia
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Who's Online (See full list)

  • Upcoming Events

  • Posts

    • lizzie42
      My 5yo was diagnosed with celiac last year by being tested after his sister was diagnosed. We are very strict on the gluten-free diet, but unsure what his reactions are as he was diagnosed without many symptoms other than low ferritin.  He had a school party where his teacher made gluten-free gingerbread men. I almost said no because she made it in her kitchen but I thought it would be ok.  Next day and for a few after his behavior is awful. Hitting, rude, disrespectful. Mainly he kept saying his legs were shaking. Is this a gluten exposure symptom that anyone else gets? Also the bad behavior? 
    • trents
      Not necessarily. The "Gluten Free" label means not more than 20ppm of gluten in the product which is often not enough for super sensitive celiacs. You would need to be looking for "Certified Gluten Free" (GFCO endorsed) which means no more than 10ppm of gluten. Having said that, "Gluten Free" doesn't mean that there will necessarily be more gluten than "Certified Gluten" in any given batch run. It just means there could be. 
    • trents
      I think it is wise to seek a second opinion from a GI doc and to go on a gluten free diet in the meantime. The GI doc may look at all the evidence, including the biopsy report, and conclude you don't need anything else to reach a dx of celiac disease and so, there would be no need for a gluten challenge. But if the GI doc does want to do more testing, you can worry about the gluten challenge at that time. But between now and the time of the appointment, if your symptoms improve on a gluten free diet, that is more evidence. Just keep in mind that if a gluten challenge is called for, the bare minimum challenge length is two weeks of the daily consumption of at least 10g of gluten, which is about the amount found in 4-6 slices of wheat bread. But, I would count on giving it four weeks to be sure.
    • Paulaannefthimiou
      Are Bobresmill gluten free oats ok for sensitive celiacs?
    • jenniber
      thank you both for the insights. i agree, im going to back off on dairy and try sucraid. thanks for the tip about protein powder, i will look for whey protein powder/drinks!   i don’t understand why my doctor refused to order it either. so i’ve decided i’m not going to her again, and i’m going to get a second opinion with a GI recommended to me by someone with celiac. unfortunately my first appointment isn’t until February 17th. do you think i should go gluten free now or wait until after i meet with the new doctor? i’m torn about what i should do, i dont know if she is going to want to repeat the endoscopy, and i know ill have to be eating gluten to have a positive biopsy. i could always do the gluten challenge on the other hand if she does want to repeat the biopsy.    thanks again, i appreciate the support here. i’ve learned a lot from these boards. i dont know anyone in real life with celiac.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.