Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Newly Gluten-free


tantalus

Recommended Posts

tantalus Newbie

Hello!

I have been gluten-free for just under a week now. I just thought I'd try it out because I had recently developed a few symptoms like bloating, insomnia, trouble concentrating and a general bad mood.

I'm a bit of a hypochondriac so it's entirely likely I'm not, in fact, gluten intolerant, but I have to say I feel much better. My bloating's still there but it's gone down a bit. I am in a better mood in general, I think. But the weirdest thing would have to be my sleeping. I get tired at, like, 7 and sleep for 10 hours every night. In the last few months my average has been about 6 hours a night so it's quite a big change!

Do you think I am really gluten intolerant? I've gone from feeling constantly alert and never wanting to sleep to getting unbelievably exhausted in the early evening, and sleeping very deeply. I'm not sure I like how tired I am, actually. Maybe it's just my body 'catching up' with my lost sleep - I'm just not sure. Could you please help? Are all my changes normal for a gluten-intolerant giving up gluten? I would be really grateful for any advice.

Thank you,

Tantalus


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



RiceGuy Collaborator

Welcome to the board! I'm sure you'll get plenty of helpful advice here.

The symptoms you've mentioned have been linked to Celiac Disease, so it is entirely possible that you are gluten intolerant or have Celiac Disease. Do keep in mind however, that if you intend to see a doctor for any testing, you shouldn't maintain the gluten-free diet for more than maybe a week or so. This is because the antibodies and intestinal damage typically (but not always) begins to diminish at about two weeks. Since the tests rely on the presence of antibodies, and the damage to the intestine, they have to be there for the tests to be meaningful. Even then, the tests are very often falsely negative. That's why it is recommended that no matter what the outcome of tests, to give the gluten-free diet a try. Just something to keep in mind.

Many have reported similar changes once gluten-free. For many, there is a period of withdrawal too. As the body acclimates itself, you should feel better and better. Many of the members here also find it necessary to take supplements. It just depends on the individual, and how much damage has been done, etc. If you are only gluten intolerant, and have no intestinal damage, then you're fortunate to have caught it in time.

sydneysmommy Apprentice

it is entirely possible to be celiac or gluten intolerant, but you wont know for sure without being tested. (and you wont get true results if you test while on a gluten-free diet).

your symptoms are linked to celiac disease, but keep in mind, there are SO many symptoms and the one biggest indicator is gut problems. (but i also have had insomnia since I was 10 yo).

even if you DONT have celiac or an intolerance to wheat etc... you could have solved something on your own. could be you're not celiac but are just sensitive to wheat products (or oats, barley etc). maybe not all of it. but its possible and there are people out there that have problems bc they are only intolerant of wheat.

even still... cutting out gluten from your diet has been a big study for some years now. especially with children who have mood disorders or people with sleeping problems. it was shown that when gluten was cut out of the diet, their problems improved.

tantalus Newbie

Thank you both very much.

I will follow your advice and go off the diet before having a test. And if I go back to feeling terrible, even if the test is negative I will probably stay gluten-free.

I will try to let you know how everything's going in the future!

Tantalus

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,995
    • Most Online (within 30 mins)
      7,748

    Naner4
    Newest Member
    Naner4
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • knitty kitty
      @sleuth, Has your son been checked for nutritional deficiencies?  All of those symptoms can be caused by malnutrition.  I had severe malnutrition that went unrecognized by my doctors.  Intense fatigue, brain fog, depression, anxiety, and gastrointestinal distress are symptoms of deficiencies in the eight essential B vitamins, especially Thiamine B1, which becomes low first because the demand is higher when we're sick.     Celiac Disease causes inflammation and damage of the intestinal lining which inhibits absorption of essential nutrients.  Checking for nutritional deficiencies is part of proper follow up care for people with celiac disease.   Is your son taking any vitamin supplements?  Most supplements contain thiamine mononitrate which in not readily absorbed and utilized by the body.  Benfotiamine is a form of thiamine that is shown to promote intestinal healing.  Benfotiamine is available over the counter.  Benfotiamine is safe and nontoxic.   Is your son eating processed gluten-free foods?  Gluten-free processed foods are not required to be enriched with vitamins like their gluten containing counterparts.   Is your son following a low histamine diet?  Histamine is released as part of the immune response to gluten and other foods high in histamine.  High levels of histamine in the brain can cause anxiety, insomnia, and depression.  The body needs the B vitamins to make the enzyme Diamine Oxidase (DAO) to break down and clear histamine.  DAO supplements are available over the counter.  Vitamin C helps clear histamine as well.  Some people find over the counter antihistamines helpful as well, but they're not for long term use.   Nicotine has antihistamine-like properties, but can also irritate the gut.  Tobacco, from which nicotine is derived, is a nightshade (like tomatoes, potatoes, peppers and eggplant).  Nightshades contain alkaloids which affect gastrointestinal permeability, causing leaky gut syndrome.  Nicotine can cause gastrointestinal irritation and alter for the worse the microbiome. Safer alternatives to Nicotine that have antihistamine properties include Lemon Balm (Sweet Melissa),  Passion Flower, Chamomile, and Bilberry.  They can be taken as supplements, extracts, or tea.  These will help with the anxiety, insomnia and depression in a much safer way. Oolong tea is also helpful.  Oolong tea contains the amino acid L-Theanine which helps the digestive tract heal.  (L -Theanine supplements are available over the counter, if not a tea drinker.)  Tryptophan, a form of Niacin B3, also helps calm digestive symptoms.  Another amino acid, L-Lysine, can help with anxiety and depression.  I've used these for years without problems.   What ways to cope have you tried in the past?
    • Scott Adams
      They are a sponsor here, and I did noticed a free shipping coupon: GFships
    • Scott Adams
      In general if it is labelled gluten-free then it should be ok for most celiacs, however, those who are super sensitive (which is most who have dermatitis herpetiformis) may want to eat only certified gluten-free items, which are supposed to test down to 10ppm (but don't always!).
    • Wheatwacked
      Have faith, you will survive. I get mine from Pipingrock.com.  500 capsules of 10,000 IU for $22.  That is almost two years worth for me.  250 caps 5000 IU for $6.69 if you only take 5,000 a day.  It's like half the price of Walmart.
    • Wheatwacked
      Testing can't alone be trusted.  Else why would it take so many years of testing and retesting and misdiagnosis to finally be told, yes you have Celiac Disease. As to what to eat, I like pre 1950 style food.  Before the advent of TV dinners.  Fresh food is better for you, and cooking from scratch is cheaper.  Watch Rachel Ray's 30 Minute Meals for how to cook.  Keep in mind that she is not gluten free, but her techniques are awesome.  Just use something else instead of wheat, barley, rye. Dr Fuhrman is a ex cardiologist.  His book Eat to Live and Dr Davis' book Wheatbelly were instrumental in my survival.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.