Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Searching For Answers


yellowlilax

Recommended Posts

yellowlilax Rookie

For years now, I have had random pains right below my ribcage on my left side (back). Nothing serious at all, just slight pain and probably happened once a year and sometimes not even that. Fast forward to now, I am 27 years old and had this stabbing/twisting pain in my lower left side and was having spotting or a light period that was entirely too early (2 weeks) The pain was just to the left of my pubic bone. From there, I had a gyno appt with an ultrasound for an eptopic pregnancy (negative), bloodwork for pregnancy (negative), saw no cysts, fluid, or abnormalties. I've been to several doctors and had stool samples, hormone levels checked, more pelvic exams, a CT scan and an MRI. Everything is negative and normal.

My period is messed up still, but I could very well chock that up to stress over this whole ordeal. I will say it's been VERY light and I havent had a "normal" period since December. My body is going through the motions like it always has with my cycle though - diarrhea, cramps, broke out face, mood swings. Right now, I am taking a probiotic because I've had loose stools, not necessarily diarrhea every morning lately. At first, I thought it was just because I was having my period so often (and i've always had diarrhea with that), that it was that. So I got on a very good probiotic and have been taking peppermint oil capsules as well. My stools are very soft and I guess I'd say loose, but not watery diarrhea or anything. I also go every day now and never did before (which is from the probiotic I'm sure).

My iron levels were fine and always have been, I do not have mucus or blood in my stools. No skin problems, weakness, tiredness, malnutrition or weight loss. As of the last few weeks, the sharp pain in my lower left side has subsided, but its now 3 months later and I still have days that the left side of my pubic bone is burning. I also have been to a massage therapist, who said that the muscle that runs across there is not abnormally tight or strained. I've also had a gyno check for a hernia as well. I have myself worked up (and have googled too much) that it could be celiac. The GI dr I've gone to says its nothing to worry about and since the pain hasnt bothered me lately, I really dont know where to go next. I've racked up 12,000 in medical bills over this. I really cant afford, nor do I know what to do next.

Sorry for going on and on, but does this sound like celiac to you? I eat organically for the most part, no processed foods, a good amount of fruits and veggies, whole grains and no red meat. I have no history that I know of celiac in my family, but from being on here I see that it goes undiagnosed a lot. I'm terrified I might have celiac, but the only symptom I would have I guess is loose stools in the morning and whatever that pain was I had for a couple of months (and the burning pain on my pubic bone that hasnt seemed to go away). I have a food journal, but can't see to make sense of any one thing that makes that pain flair up. I'll stop rambling. Thank you if you even made it this far!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Scott Adams replied to MauraBue's topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Have Tru Joy Sweets Choco Chews been discontinued??

    2. - Scott Adams replied to chrish42's topic in Doctors
      5

      Doctors and Celiac.com

    3. - trents replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      5

      how much gluten do I need to eat before blood tests?

    4. - MauraBue posted a topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Have Tru Joy Sweets Choco Chews been discontinued??

    5. - catnapt replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      5

      how much gluten do I need to eat before blood tests?

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,259
    • Most Online (within 30 mins)
      7,748

    MauraBue
    Newest Member
    MauraBue
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • Scott Adams
      Some of the Cocomels are gluten and dairy-free: https://cocomels.com/collections/shop-page
    • Scott Adams
      Thank you for the kind words! I keep thinking that things in the medical community are improving, but a shocking number of people still post here who have already discovered gluten is their issue, and their doctors ordered a blood test and/or endoscopy for celiac disease, yet never mentioned that the protocol for such screening requires them to be eating gluten daily for weeks beforehand. Many have already gone gluten-free during their pre-screening period, thus their test results end up false negative, leaving them confused and sometimes untreated. It is sad that so few doctors attended your workshops, but it doesn't surprise me. It seems like the protocols for any type of screening should just pop up on their computer screens whenever any type of medical test is ordered, not just for celiac disease--such basic technological solutions could actually educate those in the medical community over time.
    • trents
      The rate of damage to the villous lining of the SB and the corresponding loss of nutrient absorbing efficiency varies tremendously from celiac to celiac. Yes, probably is dose dependent if, by dose dependent you mean the amount of exposure to gluten. But damage rates and level of sensitivity also seem to depend on the genetic profile. Those with both genes HLA-DQ2 and HLA-DQ8 seem to be more sensitive to minor amounts of gluten exposure than those with just one of those genes and those with only DQ2 seem to be more sensitive than those with only DQ8. But there are probably many factors that influence the damage rate to the villi as well as intensity of reaction to exposure. There is still a lot we don't know. One of the gray areas is in regard to those who are "silent" celiacs, i.e. those who seem to be asymptomatic or whose symptoms are so minor that they don't garner attention. When they get a small exposure (such as happens in cross contamination) and have no symptoms does that equate to no inflammation? We don't necessarily know. The "sensitive" celiac knows without a doubt, however, when they get exposure from cross contamination and the helps them know better what food products to avoid.
    • MauraBue
      Help!  My 5 year old daughter just stopped eating dairy and gluten due to her EoE and Celiac.  Her favorite candy in the world is tootsie rolls.  I did some research, and it sounds like these are the only options for finding something similar, but I can't find them anywhere to actually purchase.  Have they been discontinued??  Does anyone have another recommendation for a gluten-free/DF tootsie roll option?
    • catnapt
      I wonder how long it usually takes and if it is dose dependent as well... or if some ppl have a more pronounced reaction to gluten than others   thanks again for all the great info    
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.