Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Children And Growth


julie13

Recommended Posts

julie13 Newbie

Hi I am new to this but feel like I need some advice. I have 2 boy 1 and 3yrs old. Both from newborns to 8 month were thriving and were in the 50 percentile. Both were breastfed. At 8 month of age they both began to plateau in weight and height. When this happen to my oldest the doctor said to start supplementing him with formula but nothing helped. Now he is 3 and is in the 10th percentile. When my youngest weight plateau the doctor said to do the same thing and nothing work. I thought maybe the problem was my milk production with both kids so at 9 mths (my youngest) I stopped breastfeeding and bottle-fed. Him weight began to increase but not a whole lot.

With that said the doctor has been worried about my oldest. She sent me to endocrine doctors, genetics doctors etc etc. And they all said that they couldn't find anything wrong. He got sick one night after having a big pasta dinner and was throwing up for 4 days not being able to hold down anything. My sister told me about celiac disease and I have been researching about it for weeks. He has had a lot of symptoms: bloated tummy, failure to thrive, pale floating BM, . and always complaining about a stomach ache (since the 4 days throwing up which was 4wk ago) and Both kids have Eczema. I told the doctor that I wanted him tested and the test was negative. They doctor said they will just monitor him but that is what they have been doing since he was 8 mth! A lot of the research I have been reading said that there is a lot of false negatives especially in toddlers. So I have had my oldest on the gluten-free diet for 2 days now.

Sorry this is so long I am just soooo frustrated with everything and if I should put my 1yr old on the diet also. I am also worried that the diet may not work because of cross contamination in my home. (I can't afford to throw everything out: Pot and pans,cleaners etc). What are the sign that the diet is working? He doesn't have any red flashing signs. Is there anyone out there that has had a similar experience?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



RiceGuy Collaborator

Welcome to the board! I'm sure you'll get plenty of answers here.

Many members have related similar stories, of themselves at a young age, and/or of their children. As you already know, false negatives are very common in young children, so I think you've done the right thing by putting your oldest child on a gluten-free diet. If it were me, I'd do the same for the younger one too. I think you'll know if it is working if they begin growing, and if you see the bloating, eczema, and/or other symptoms starting to go away.

As for cross-contamination, do the best you can. Wash pots and pans thoroughly, using gluten-free soap, and a separate dedicated sponge. Never use the same dish water used for dishes containing gluten, and wash down the sink before washing dished to be used to prepare gluten-free foods. Use stainless steel pans and such instead of cast iron, and avoid scratched pans. Keep gluten-free foods and snacks separate from gluten-containing items. Though it is best if there is no gluten in the home if you can do it. It doesn't have to cost a lot if you prepare meals from scratch, and avoid prepackaged "specialty" item, such as gluten-free breads and snacks. Look for things which are naturally gluten-free, such as veggies, fruits, nuts, legumes, grains, plain meats, etc.

Do watch for problems with dairy, as that is often a problem when the intestines are still damaged. Use rice or nut milk for awhile, and try dairy once there has been sufficient improvement.

I hope this is helpful. Please feel free to ask any questions. There are many knowledgeable members here.

Let us know how it goes!

Nicholasmommy Apprentice

Your children sound similiar to my son in some ways. My son dropped off the charts between 9-12 months and is FTT with a big old belly. Blood work came back positive and I decided to not do the biopsy. He has been gluten free for almost 2 weeks and has been eating up a storm. Going gluten free does you child no harm so try it! I don't know how long it will take to get results but I have heard about a month.

lizajane Rookie

my blood test was negative. and then i started throwing up. i had an endoscopy to look for signs of reflux or an ulcer. the GI did a biopsy "while he was there." and i had double the # of lymphocytes "required" to be above normal.

just do the diet. my son (as i just said in a different thread) does not have a diagnosis, we just took him gluten free. and i already see a change in him. he is not small- he is 50th %ile. but my other child is way off the chart tall. so the discrepancy has me wondering. and he has the GI issues, the sleep disturbances and the irritability i have read about.

  • 2 weeks later...
julie13 Newbie

Thank you all for the help! We are now on week two of the diet and it seem to be going well. My 3 yr has been having crazy days. For the most part the diet has calmed him down. But a couple of days ago he was throwing a HUGE tantrums all day. He has never been like that. Then he had a bowel movment that was soft and mucusy. Could it be a gluten reaction to something I wasn't aware of him eating?

The only thing I can remember that was different was he ate sweet potatoes the night before. The biggest change I've seen in my 3yr old is before the diet he would have a BM 2x a day. And now its every other day and its normal.

Also, my 3 yr old is always waking up in the night, It just started when he had that 4 days of throwing up about a month ago. And it hasn't changed since the diet.

I put my 1 yr old on the diet too. I can't believe his change in eating. He has always been a big eater but now I can't keep him full. Also I took him off milk and I saw a night and day difference with in a DAY! He was happy again. No more fussyness. YEAH!

You Guys are the best!!! Thanks for all the support. I didn't get any from the doctor.

Nicholasmommy Apprentice
Thank you all for the help! We are now on week two of the diet and it seem to be going well. My 3 yr has been having crazy days. For the most part the diet has calmed him down. But a couple of days ago he was throwing a HUGE tantrums all day. He has never been like that. Then he had a bowel movment that was soft and mucusy. Could it be a gluten reaction to something I wasn't aware of him eating?

The only thing I can remember that was different was he ate sweet potatoes the night before. The biggest change I've seen in my 3yr old is before the diet he would have a BM 2x a day. And now its every other day and its normal.

Also, my 3 yr old is always waking up in the night, It just started when he had that 4 days of throwing up about a month ago. And it hasn't changed since the diet.

I put my 1 yr old on the diet too. I can't believe his change in eating. He has always been a big eater but now I can't keep him full. Also I took him off milk and I saw a night and day difference with in a DAY! He was happy again. No more fussyness. YEAH!

You Guys are the best!!! Thanks for all the support. I didn't get any from the doctor.

Glad to hear that it is going well! I recommend this book "kids with Celiac disease" by Danna Korn. It is really helpful. I know there is a list on here of ingrednets that are not safe. Print it out and have it with you always! Gluten its in the most random stuff.

My little one has been having a tough time too with the tantrums. We are going into week three of the diet and I can't figure out why.

swalker Newbie

We see tantrums from gluten, dairy, corn and soy in our four year old. Dairy and soy are the worst.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,726
    • Most Online (within 30 mins)
      7,748

    Ruth C
    Newest Member
    Ruth C
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Scott Adams
      Do you have the results of your endoscopy? Did you do a celiac disease blood panel before that?  Here is more info about how to do a gluten challenge for a celiac disease blood panel, or for an endoscopy: and this recent study recommends 4-6 slices of wheat bread per day:    
    • Scott Adams
      It is odd that your Tissue Transglutaminase (TTG) IgA level has bounced from the "inconclusive" range (7.9, 9.8) down to a negative level (5.3), only to climb back up near the positive threshold. This inconsistency, coupled with your ongoing symptoms of malabsorption and specific nutrient deficiencies, is a strong clinical indicator that warrants a more thorough investigation than a simple "satisfactory" sign-off. A negative blood test does not definitively rule out celiac disease, especially with such variable numbers and a classic symptomatic picture. You are absolutely right to seek a second opinion and push for a referral to a gastroenterologist. A biopsy remains the gold standard for a reason, and advocating for one is the most direct path to getting the answers you need to finally address the root cause of your suffering. Here is more info about how to do a gluten challenge for a celiac disease blood panel, or for an endoscopy: and this recent study recommends 4-6 slices of wheat bread per day:    
    • Scott Adams
      There is a distinction between gluten itself and the other chemicals and processing methods involved in modern food production. Your experience in Italy and Greece, contrasted with your reactions in the U.S., provides powerful anecdotal evidence that the problem, for some people, may not be the wheat, but the additives like potassium bromate and the industrial processing it undergoes here. The point about bromines displacing iodine and disrupting thyroid function is a significant one, explaining a potential biological mechanism for why such additives could cause systemic health issues that mimic gluten sensitivity. It's both alarming and insightful to consider that the very "watchdog" agencies meant to protect us are allowing practices banned in many other developed countries. Seeking out European flour and your caution about the high-carb, potentially diabeticgenic nature of many gluten-free products are excellent practical takeaways from your research, but I just want to mention--if you have celiac disease you need to avoid all wheat, including all wheat and gluten in Europe.
    • Rejoicephd
      @Scott Adams That's actually exactly what I ended up asking for— vodka tonic with Titos.  I saw on their website that Tito's is certified gluten-free (maybe many of the clear vodkas are, I don't know, I just happened to look up Tito's in advance). I should have actually specified the 'splash' though, because I think with the amount of tonic she put in there, it did still end up fairly sweet.  Anyway, I think I've almost got this drink order down!
    • Wends
      Be interesting to see the effects of dairy reintroduction with gluten. As well as milk protein sensitivity in and of itself the casein part particularly has been shown to mimic gluten in about 50% of celiacs. Keep us posted!
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.