Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Should't I Be Feeling Better?


kdonov2

Recommended Posts

kdonov2 Contributor

i started a gluten free diet and i noticed that a few days into it, i felt absolutely awful. im so fatigued, and whats worse is that my stomach hurts so bad, its insane. in between the ribs, i feel like ive been punched. lower down near the intestines, my tummy feels very sore and the intestines feel inflamed and irritated. i no longer get the immense swollen belly that i used to get, but it is still a bit puffy. ive heard a lot of people mention that they feel great after going gluten free and they have this abundance of energy and increased appetites and such. i cannot relate. i used to exercise everyday, but right now im so tired and my stomach hurts far too much to consider it. does anyone know why this is happening? are there any herbal supplements i should take? any input would be greatly appreciated.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



GlutenWrangler Contributor

Many people go through a period of worsening symptoms when they start the gluten-free diet. Now that your body is no longer being assaulted by gluten on a daily basis, it has the opportunity to purge itself of all of the toxins that have built up over time. On top of that, many people also experience gluten "withdrawal". This process can make symptoms much worse for a brief period of time. Think of it as your body in recovery mode. Plus, your body no longer has to adapt to dealing with gluten, so if you do consume any gluten accidentally, your reactions will most likely be more severe than they used to be before you went on the gluten free diet. So overall, you're most likely experiencing a normal reaction to the gluten-free diet. If your symptoms continue for an extended period of time, you might want to check for hidden sources of gluten somewhere in your diet. Since you have just started the diet, hopefully someone can direct you to one of the "Newbie Kits" floating around here. Good luck,

-Brian

helgih88 Newbie
i started a gluten free diet and i noticed that a few days into it, i felt absolutely awful. im so fatigued, and whats worse is that my stomach hurts so bad, its insane. in between the ribs, i feel like ive been punched. lower down near the intestines, my tummy feels very sore and the intestines feel inflamed and irritated. i no longer get the immense swollen belly that i used to get, but it is still a bit puffy. ive heard a lot of people mention that they feel great after going gluten free and they have this abundance of energy and increased appetites and such. i cannot relate. i used to exercise everyday, but right now im so tired and my stomach hurts far too much to consider it. does anyone know why this is happening? are there any herbal supplements i should take? any input would be greatly appreciated.

Wow, I'm on the same side here. I started gluten free a week ago and so far my stomach is a lot better. But the downside is that I'm really tired the whole day just like before, even worse than usual. If I don't get any caffeine (which actually aggravates your intestine more) then I'm practically asleep. I think I've had this intolerance for my whole life without treatment so it's probably the reason I'm responding so slower than some. I don't get the extreme reactions like many others but since the stomach aches are gone (among with the big D) so this has to be it. Today I spent a lot of time lying on my bed because I was so tired, I felt like I hadn't slept at all the whole night. I hope we both get better, otherwise the problem may be bigger (it may take many weeks or months to clear up fatigue, even years for older people... see more posts). I'm seeing my doctor tomorrow to see If I have Crohn's disease like my mom but I'd rather have celiac and my symptoms fit celiac better :) . I was wondering, when you quit eating gluten, do you get more allergic reactions to your food (because of swollen intestine) since it stays there for a longer period of time? Could that be one of the reasons why fatigue sometimes get stronger? Sometimes when I just eat a banana it almost puts me to sleep. I also feel like milk shuts me down, just minutes after having it (why god, why? <_< ).

And regarding those foods that make me tired, blood test didn't show any allergies (then again, I don't know if my doctor checked every single thing).

GlutenWrangler Contributor

Blood tests are notoriously inaccurate for allergy testing. If you're feeling that tired after eating certain foods, you're most likely either allergic or intolerant. I have had the same exact reaction to foods that I'm allergic to. Skin prick testing is much more accurate for food allergies. If you haven't already, you might want to see an allergist. If you continue having these reactions to certain foods, you may want to consider eliminating those foods from your diet, at least for a little while. This will allow your system to calm itself down. Then you can re-introduce them one by one to see if you still have that reaction. Take care,

-Brian

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - knitty kitty replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    2. - Jane02 replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    3. - knitty kitty replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    4. 0

      Penobscot Bay, Maine: Nurturing Gluten-Free Wellness Retreat with expert celiac dietitian, Melinda Dennis

    5. - Scott Adams replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,327
    • Most Online (within 30 mins)
      7,748

    dnamutant
    Newest Member
    dnamutant
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • knitty kitty
      @Jane02, I hear you about the kale and collard greens.  I don't do dairy and must eat green leafies, too, to get sufficient calcium.  I must be very careful because some calcium supplements are made from ground up crustacean shells.  When I was deficient in Vitamin D, I took high doses of Vitamin D to correct the deficiency quickly.  This is safe and nontoxic.  Vitamin D level should be above 70 nmol/L.  Lifeguards and indigenous Pacific Islanders typically have levels between 80-100 nmol/L.   Levels lower than this are based on amount needed to prevent disease like rickets and osteomalacia. We need more thiamine when we're physically ill, emotionally and mentally stressed, and if we exercise like an athlete or laborer.  We need more thiamine if we eat a diet high in simple carbohydrates.  For every 500 kcal of carbohydrates, we need 500-1000 mg more of thiamine to process the carbs into energy.  If there's insufficient thiamine the carbs get stored as fat.  Again, recommended levels set for thiamine are based on minimum amounts needed to prevent disease.  This is often not adequate for optimum health, nor sufficient for people with absorption problems such as Celiac disease.  Gluten free processed foods are not enriched with vitamins like their gluten containing counterparts.  Adding a B Complex and additional thiamine improves health for Celiacs.  Thiamine is safe and nontoxic even in high doses.  Thiamine helps the mitochondria in cells to function.  Thiamine interacts with each of the other B vitamins.  They are all water soluble and easily excreted if not needed. Interesting Reading: Clinical trial: B vitamins improve health in patients with coeliac disease living on a gluten-free diet https://pubmed.ncbi.nlm.nih.gov/19154566/ Safety and effectiveness of vitamin D mega-dose: A systematic review https://pubmed.ncbi.nlm.nih.gov/34857184/ High dose dietary vitamin D allocates surplus calories to muscle and growth instead of fat via modulation of myostatin and leptin signaling https://pubmed.ncbi.nlm.nih.gov/38766160/ Safety of High-Dose Vitamin D Supplementation: Secondary Analysis of a Randomized Controlled Trial https://pubmed.ncbi.nlm.nih.gov/31746327/ Vitamins and Celiac Disease: Beyond Vitamin D https://pmc.ncbi.nlm.nih.gov/articles/PMC11857425/ Investigating the therapeutic potential of tryptophan and vitamin A in modulating immune responses in celiac disease: an experimental study https://pubmed.ncbi.nlm.nih.gov/40178602/ Investigating the Impact of Vitamin A and Amino Acids on Immune Responses in Celiac Disease Patients https://pmc.ncbi.nlm.nih.gov/articles/PMC10814138/
    • Jane02
      Thank you so much @knitty kitty for this insightful information! I would have never considered fractionated coconut oil to be a potential source of GI upset. I will consider all the info you shared. Very interesting about the Thiamine deficiency.  I've tracked daily averages of my intake in a nutrition software. The only nutrient I can't consistently meet from my diet is vitamin D. Calcium is a hit and miss as I rely on vegetables, dark leafy greens as a major source, for my calcium intake. I'm able to meet it when I either eat or juice a bundle of kale or collard greens daily haha. My thiamine intake is roughly 120% of my needs, although I do recognize that I may not be absorbing all of these nutrients consistently with intermittent unintentional exposures to gluten.  My vitamin A intake is roughly 900% (~6400 mcg/d) of my needs as I eat a lot of sweet potato, although since it's plant-derived vitamin A (beta-carotene) apparently it's not likely to cause toxicity.  Thanks again! 
    • knitty kitty
      Hello, @Jane02,  I take Naturewise D 3.  It contains olive oil.   Some Vitamin D supplements, like D Drops, are made with fractionated coconut oil which can cause digestive upsets.  Fractionated coconut oil is not the same as coconut oil used for cooking.  Fractionated coconut oil has been treated for longer shelf life, so it won't go bad in the jar, and thus may be irritating to the digestive system. I avoid supplements made with soy because many people with Celiac Disease also react to soy.  Mixed tocopherols, an ingredient in Thornes Vitamin D, may be sourced from soy oil.  Kirkland's has soy on its ingredient list. I avoid things that might contain or be exposed to crustaceans, like Metagenics says on its label.  I have a crustacean/shellfish/fish allergy.  I like Life Extension Bioactive Complete B Complex.  I take additional Thiamine B 1 in the form Benfotiamine which helps the intestines heal, Life Extension MegaBenfotiamine. Thiamine is needed to activate Vitamin D.   Low thiamine can make one feel like they are getting glutened after a meal containing lots of simple carbohydrates like white rice, or processed gluten free foods like cookies and pasta.   It's rare to have a single vitamin deficiency.  The water soluble B Complex vitamins should be supplemented together with additional Thiamine in the form Benfotiamine and Thiamine TTFD (tetrahydrofurfuryl disulfide) to correct subclinical deficiencies that don't show up on blood tests.  These are subclinical deficiencies within organs and tissues.  Blood is a transportation system.  The body will deplete tissues and organs in order to keep a supply of thiamine in the bloodstream going to the brain and heart.   If you're low in Vitamin D, you may well be low in other fat soluble vitamins like Vitamin A and Vitamin K. Have you seen a dietician?
    • Scott Adams
      I do not know this, but since they are labelled gluten-free, and are not really a product that could easily be contaminated when making them (there would be not flour in the air of such a facility, for example), I don't really see contamination as something to be concerned about for this type of product. 
    • trents
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.