Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

I Had My Test Done Today


Nadia2009

Recommended Posts

Nadia2009 Enthusiast

Hi everyone,

I had the blood tests done today. It was about time because since I switched back to gluten containing food for the last weeks I was feeling bad. Especially the last two weeks were sooooooo bad. My nose is clocked and I can't breathe well. I am coughing and that even makes it worst to breathe. I didn't have a good sleep either and I am more stressed out. I don't know if it is all due to the gluten but I know everytime I go back to gluten/wheat products, it accumulates and the first week is fine the second week is ok third week starts with problems and in the fourth week, I have many symptoms.

I stayed away from Milk during a period of two months (just had a few times maximum 3 caffeinated drinks with cream) and I am starting to think that milk isn't my problem. For me, it must be gluten or just wheat. Anyway, checking for lactose and fructose intolerance is the second step.

I went back to the gluten food to help the diagnostic if I had celiac but now my blood tests are done, I want to eat much less gluten to start with and eventually to stop eating it at all.

So, what kind of food do you eat when you have celiac? I think I am going to be Ms Rice very soon...rice potatoes rice potatoes rice potatoes.

The nice thing is that I will be losing the few pounds I gained lately. I know they will be melting down once I stop eating wheat products. I have already had the experience.

Ciao,

Rice Potatoe Girl


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



JW88 Newbie

Nadia:

There are sooooo many things you CAN eat.

When I first went gluten-free a little over a year ago, I wondered the same thing, though. What can I eat? Just start doing research. You can find lists of ingredients to avoid and lists of which ones are safe. I took my lists with me to the store, as well as a gluten-free grocery guide and had to read the labels on EVERYTHING for a few months, but finally got to a point where I knew what I could and could not eat.

And there's TONS of recipes all over the Internet for gluten-free food. Yes, you will have to start cooking if you don't already. You just can't trust restaurants and there's not a humongous variety of prepped meals that are gluten-free.

If you have a Whole Foods Market near you, they carry a lot of gluten-free food and ingredients, and they offer gluten-free cooking classes (at least the one near me does). You can also buy gluten-free cookbooks at (Company Name Removed - They Spammed This Forum and are Banned) or other websites.

I have an incredible gluten-free salad dressing recipe. Email me and I will send it to you. Salads and vegetables have become a staple in my diet now that I'm gluten-free. That's another way you can get healthier and lose the weight the wheat threw on you. ;)

I have a ton of food allergies (so it's not just wheat I have to avoid), so if I can manage to get variety in my diet, anyone can! :D It just might take a lot of work on the front end. Do google searches for "gluten-free food" or "celiac disease" and you'll get lots of links and sublinks to browse through. Oh, and another trick I use is when I find a food I'm not sure is gluten-free, I'll do a google search, "Is Daisy sour cream gluten-free?" or "Is Oscar Meyer smoked ham gluten-free?" or "What Ben & Jerry's Ice Creams are gluten-free?" I usual get an instant answer.

Good luck.

  • 2 weeks later...
Nadia2009 Enthusiast
Nadia:

There are sooooo many things you CAN eat.

When I first went gluten-free a little over a year ago, I wondered the same thing, though. What can I eat? Just start doing research. You can find lists of ingredients to avoid and lists of which ones are safe. I took my lists with me to the store, as well as a gluten-free grocery guide and had to read the labels on EVERYTHING for a few months, but finally got to a point where I knew what I could and could not eat.

And there's TONS of recipes all over the Internet for gluten-free food. Yes, you will have to start cooking if you don't already. You just can't trust restaurants and there's not a humongous variety of prepped meals that are gluten-free.

If you have a Whole Foods Market near you, they carry a lot of gluten-free food and ingredients, and they offer gluten-free cooking classes (at least the one near me does). You can also buy gluten-free cookbooks at (Company Name Removed - They Spammed This Forum and are Banned) or other websites.

I have an incredible gluten-free salad dressing recipe. Email me and I will send it to you. Salads and vegetables have become a staple in my diet now that I'm gluten-free. That's another way you can get healthier and lose the weight the wheat threw on you. ;)

I have a ton of food allergies (so it's not just wheat I have to avoid), so if I can manage to get variety in my diet, anyone can! :D It just might take a lot of work on the front end. Do google searches for "gluten-free food" or "celiac disease" and you'll get lots of links and sublinks to browse through. Oh, and another trick I use is when I find a food I'm not sure is gluten-free, I'll do a google search, "Is Daisy sour cream gluten-free?" or "Is Oscar Meyer smoked ham gluten-free?" or "What Ben & Jerry's Ice Creams are gluten-free?" I usual get an instant answer.

Good luck.

Thank you JW,

My test came negative. But I am staying away from most gluten containing food. I still have a bit here and there. But I am not eating pasta, bread and pastries (oh I had half a croissant yesterday! A quiet cheater) I eat more veggies and I eat potatoes, sweet potatoes and rice as carbs.

You are right there must a lot to eat but I am just lazy and miss my easy found bread from the supermaket.

Nadia

ravenwoodglass Mentor
Thank you JW,

My test came negative. But I am staying away from most gluten containing food. I still have a bit here and there. But I am not eating pasta, bread and pastries (oh I had half a croissant yesterday! A quiet cheater) I eat more veggies and I eat potatoes, sweet potatoes and rice as carbs.

You are right there must a lot to eat but I am just lazy and miss my easy found bread from the supermaket.

Nadia

Hi Nadia, If you want to see if the diet will help with your issues you really do need to be strict on the diet. Being gluten light just won't do. It may help make your gut reactions less frequent but it will not stop the antibody reaction that leads to lots of other issues. Those antibodies can invade any organ of your body from joints and muscles to gallbladder, liver, brain and can have a negative impact if you should decide you want to have children.

There is a lot of gluten-free food available and not all of it is a hassle to prepare. One of my favorite lazy day meals is Thai Kitchen thin rice noodles smothered in single ingredient frozen peas, corn, broccoli and either frozen shrimp or left over meat of some kind that has been 'sauteed' in butter and olive oil. The whole thing takes less than 5 minutes to fix when using frozen veggies. If you use fresh maybe 10 minutes so you can wash and cut them up. You can also prepare large quantities of many things that can be frozen and reheated when time or energy are tight. When you get down to it fixing stuff at home is not only cheaper but also takes less time than running to a fast food shop or restaurant.

Nadia2009 Enthusiast
Hi Nadia, If you want to see if the diet will help with your issues you really do need to be strict on the diet. Being gluten light just won't do. It may help make your gut reactions less frequent but it will not stop the antibody reaction that leads to lots of other issues. Those antibodies can invade any organ of your body from joints and muscles to gallbladder, liver, brain and can have a negative impact if you should decide you want to have children.

There is a lot of gluten-free food available and not all of it is a hassle to prepare. One of my favorite lazy day meals is Thai Kitchen thin rice noodles smothered in single ingredient frozen peas, corn, broccoli and either frozen shrimp or left over meat of some kind that has been 'sauteed' in butter and olive oil. The whole thing takes less than 5 minutes to fix when using frozen veggies. If you use fresh maybe 10 minutes so you can wash and cut them up. You can also prepare large quantities of many things that can be frozen and reheated when time or energy are tight. When you get down to it fixing stuff at home is not only cheaper but also takes less time than running to a fast food shop or restaurant.

Thanks for the reminder. I am so stubborn I know. But I am not sure I have celiac though...my doctor's office called me on Friday and I missed the call but I think he may be sending me for the colonscopy. If I really have celiac I will go cold turkey otherwise I will give up gluten progressively. I already dont eat it as a main dish neither as bread to accompany dishes. I dont have bread in the morning 3/4 of the time. I have rice :lol: my Asian friends would be proud of me if they knew I had rice in the morning. I want to buy a bread machine and learn how to make "bread that doesnt hurt" at home. I have never been a cookie person...usually snacks on fruits and dry fruits etc. but only in the last couple of years my moods is down specially in the winter and then I buy comford food. I learned I am low on vit D...dont know how low but the nurse told me on the phone I shouldnt be at 62...and I googled the symptoms of a low vit D and found it was fatigue, depression and migraines with bones hurting.

Thanks for your recipe. I am actually happy because I love eating rice and meat and my newly found love is potatoes/sweet potatoes.

I dont want to get used to manufactured snacks that are gluten free. But it is good to know where I can find them in case of craving. And you are absolutely right fixing things at home once we passed the laziness is cheaper and healthier. I think I am going to learn to make my own snacks gluten free. It is a new world to me and it is kinda exciting! You know maybe there is a good reason I never really learned to bake pastries. My sixth sense was telling me to be careful to flour but now is the time to learn using good flour and making bread with rice, corn and potatoes.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,636
    • Most Online (within 30 mins)
      7,748

    Elaine Rhoda
    Newest Member
    Elaine Rhoda
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Scott Adams
      I agree, there can be contamination at many points--milling is another possible source of contamination for any flours.
    • trents
      Keep in mind that with manufactured food products, "gluten free" doesn't equate to no gluten. Things that are naturally gluten free can be cross-contaminated with gluten in the field, in shipping and in processing. In the U.S. companies can use the gluten free label as long as the product doesn't exceed 20ppm of gluten. That amount still may cause a reaction in some people.
    • deanna1ynne
      Dd10 was tested for celiac four years ago bc two siblings were dx’d (positive labs and biopsies). Her results at the time were positive ema  and ttg (7x the UL), but a negative biopsy. We checked again three months later and her ttg was still positive (4x the UL), but ema and biopsy were negative. Doc said it was “potential celiac” and to keep eating gluten, but we were concerned about harming her growth and development while young and had her go gluten-free because we felt the labs and ema in particular were very suggestive of early celiac, despite the negative biopsies. She also had stomach aches and lethargy when eating it. We just felt it’d be better to be safe than sorry. Now, four years later, she doesn’t want to be gluten-free if she doesn’t “have to be,” so underwent a 12 week gluten challenge. She had labs done before starting and all looked great (celiac panel all negative, as expected.) Surprisingly, she experienced no noticeable symptoms when she began eating gluten again, which we felt was a positive sign. However, 12 weeks in, her labs are positive again (ttg 4x the UL and ema positive again as well). Doc says that since she feels fine and her previous two biopsies showed nothing, she can just keep eating gluten and we could maybe biopsy again in two years. I was looking up the ema test and the probability of having not just one but two false positives, and it seems ridiculously low.  Any advice? Would you biopsy again? She’s old enough at this point that I really feel I need her buy-in to keep her gluten-free, and she feels that if the doc says it’s fine, then that’s the final word — which makes me inclined to biopsy again and hope that it actually shows damage this time (not because I want her to have celiac like her sisters, but because I kind of think she already does have it, and seeing the damage now would save her more severe damage in the long run that would come from just continuing to eat gluten for a few more years before testing again.)  Our doc is great - we really like him. But we are very confused and want to protect her. One of her older sibs stopped growing and has lots of teeth problems and all that jazz from not catching the celiac disease sooner, and we don’t want to get to that point with the younger sis. fwiw- she doesn’t mind the biopsy at all. It’s at a children’s hospital and she thinks it’s kind of fun. So it’s not like that would stress her out or anything.
    • Inkie
      Thanks for the replies. I already use a gluten-free brand of buckwheat flakes I occasionally get itchy bumps. I'm still reviewing all my food products. I occasionally eat prepackaged gluten-free crackers and cookies, so I'll stop using those. I use buckwheat flakes and Doves Farm flour as a base for baking. Would you recommend eliminating those as well? It's a constant search.
    • Wheatwacked
      Gluten free food is not fortified with vitamins and minerals as regular food is.  Vitamin deficiencies are common especially in recently diagnosed persons,  Get a 25(OH)Vitamin D blood test. And work on raising it.  The safe upper blood level is around 200 nmol/L.    "Low serum levels of 25(OH)D have been associated with increased risk of autoimmune disease onset and/or high disease activity. The role of vitamin D in autoimmune diseases   🏋️‍♂️Good job!   I find the commercial milk will give me mild stomach burn at night, while pasture/grassfed only milk does not bother me at all.  While you are healing, listen to your body.  If it hurts to eat something, eat something else.  You may be able to eat it later, or maybe it is just not good for you.  Lower your Omega 6 to 3 ratio of what you eat.  Most omega 6 fatty acids are inflammation causing.    The standard american diet omega 6:3 ratio is estimated at upward of 14:1.  Thats why fish oil works
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.