Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Additional Allergy With celiac disease?


David

Recommended Posts

David Explorer

Hi All:

I


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Voss Newbie

Lactose intolerance can give you bad GI symptoms yes.

Lot of celiac have it, because when the gut gets messed up by gluten, the gut loses its ability to digest lactose bacause the gut can no longer make lactase.

If you are gluten free for a while, your gut restores and is again able to make lactase and therefor digest lactose.

How long that takes on average I dont know.

Kraft Cheese has a lot of lactose in it, I reckon.

There are supplements with lactase in it so you can eat lactose after taking such a supplement, but those supplements have sometimes maltodextrin in it, which can come from wheat and therefor cause problems for very sensitive celiacs.

David Explorer

Voss:

Thank you so much for your reply. Do you know of any good, reliable websites that deal with Lactose Intolerance? Sometimes doing a random search on the web turns up unreliable information.

Thanks again for your help!

Sincerely,

David

Voss Newbie
Voss:

Thank you so much for your reply. Do you know of any good, reliable websites that deal with Lactose Intolerance? Sometimes doing a random search on the web turns up unreliable information.

Thanks again for your help!

Sincerely,

David

My pleasure,

there is always Wikipedia with a lot of info:

Open Original Shared Link

And there are a lot of topics on this celiac.com forum about lactose too, because a lot of celiac have it:

https://www.celiac.com/gluten-free/index.ph...t=0&start=0

https://www.celiac.com/gluten-free/index.ph...&hl=lactose

If you have more questions, just ask. :)

Voss Newbie

Also if avoiding milk, cheese and everything else with lactose in it doesnt help you,

you might consider histamine-intolerance.

That can cause bad GI symptoms too.

I have this too and Im 100% sure its because of celiac hurting my gut over the years when I didnt know I had celiac and ate gluten.

Histamine is found in:

Cheese, Processed Meats, Bananas, Tomatoes, Tuna, Smoked Fish,Wine, Beer and other things.

Have a look at this website:

Open Original Shared Link

Open Original Shared Link

Open Original Shared Link

Open Original Shared Link

Its a commercial site for a anti-histamine supplement, but it has good info on it.

I used that suppelment and although it gives realy good relief after eating something rich in histamine it isnt a miracle pill.

Plus its quite expensive in my opinion.

So first try eating lactose-intolerant, if thats not enough try eating histamine-low foods for a while to see if that works.

No need for the expensive supplement if you avoid the foods that have a lot of histamine in them.

David Explorer

Voss:

I can

Voss Newbie
Voss:

I can’t tell you how much I appreciate your replies and you help with this. Its just been a little overwhelming, I feel also though I’ve already put so much effort into researching celiac disease. Though I’ve learned a lot, I got frustrated when I realized I’d have to research a whole new area to feel healthy again. Thanks for pointing me in the right direction!

Thanks again,

David

You're welcome, I know the feeling. :D

I have access to doctors (I live in the Netherlands), but they suck at everything which they cant give you some pill for. :angry:

So I had to diagnose myself, and the results tell me I am correct. :)

There is another intolerance you can have. This is an intolerance for salicylates and benzoates. This too has to do with Celiac.

But this is a very rare intolerance, if both avoiding lactose and histamine dont work 100%, you can take a look at that.

Lots of histamine-rich foods are rich in salicylates/benzoates too by the way. So histamine-low eating will take care of salicylates/benzoates for a great deal already.

But maybe going lactose-free is enough for you. :)


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



  • 2 months later...
BBadgero Newbie

David and Voss, great discussion here! I've been gluten-free for about 5 years and still am looking into 2ndary allergies or intolerances. I have just heard about Histame and plan on buying it for sure... I just got blood work done and both soy and yeast are culprits for me... I decided to just eat the caveman diet (www.thepaleodiet.com) and when I can muster the will power to do so, I feel well beyond 100% for very long periods of time.... I truly believe a true elimination diet is the only way to find out what it is... it is tough to stick to, but after 3 or 4 days it is easy to find out what you are not suppose to eat, etc.....

I'll try to share if Histame works for me or not.... cheers! B

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,699
    • Most Online (within 30 mins)
      7,748

    RelievedP
    Newest Member
    RelievedP
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • deanna1ynne
      Thank you both very much. I’m pretty familiar with the various tests, and my older two girls with official dxs have even participated in research on other tests as well. I just felt overwhelmed and shocked that these recent results (which I found pretty dang conclusive after having scott clean labs just six months ago) would still be considered inconclusive. Doc said we could biopsy in another six weeks because my daughter was actually way more upset than I anticipated about the idea of eating it for years before doing another biopsy. It doesn’t hurt her, but she’s afraid of how it may be hurting her in ways she can’t feel. She’s currently eating mini wheats for breakfast, a sandwich with lunch, and a side of pasta along with every dinner, so I’m hoping we’re meeting that 10g benchmark mentioned in that second article!
    • knitty kitty
      Have you tried a genetic test to look for Celiac genes?  No gluten challenge required.  
    • knitty kitty
      Hello, @ElisaAllergiesgluten, Have you tried going on a low histamine Paleo diet like the Autoimmune Protocol diet?  A low histamine AIP diet would help your body rid itself of the extra histamine it's making in response to allergies.  Are you Celiac as well?   Since we need more thiamine when we're stressed, adding Benfotiamine, a form of Thiamine Vitamin B 1, can help the body calm down it's release of histamine.  Benfotiamine improves Sailors' asthma.  
    • knitty kitty
      Don't skimp on the gluten daily while undergoing the gluten challenge!  
    • RDLiberty
      So, I've been using a gluten free labeled toothpaste since being diagnosed with celiac. No big deal, the toothpaste seems to work. Question is, I just realized it contains hydrated silica.  Now, I've heard that silicon dioxide can cause issues in some people with celiac (was that ever confirmed though?), so to be safe, I cut it out of my diet entirely. But, as I understand it, hydrated silica is related to silicon dioxide. Is that something to worry about, or is the hydrated form not known to cause issues like the silicon dioxide form?  I've never seen it in food, but nearly every toothpaste I look at contains hydrated silica?  Issue or not?  Any scientific research (Not opinion pieces, not health bloggers, you get my gist), but actual science, that says it's an issue? I have a hard time believing 99% of what I read on random internet searches.    Thanks so much, Renee. 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.