Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Additional Allergy With celiac disease?


David

Recommended Posts

David Explorer

Hi All:

I


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Voss Newbie

Lactose intolerance can give you bad GI symptoms yes.

Lot of celiac have it, because when the gut gets messed up by gluten, the gut loses its ability to digest lactose bacause the gut can no longer make lactase.

If you are gluten free for a while, your gut restores and is again able to make lactase and therefor digest lactose.

How long that takes on average I dont know.

Kraft Cheese has a lot of lactose in it, I reckon.

There are supplements with lactase in it so you can eat lactose after taking such a supplement, but those supplements have sometimes maltodextrin in it, which can come from wheat and therefor cause problems for very sensitive celiacs.

David Explorer

Voss:

Thank you so much for your reply. Do you know of any good, reliable websites that deal with Lactose Intolerance? Sometimes doing a random search on the web turns up unreliable information.

Thanks again for your help!

Sincerely,

David

Voss Newbie
Voss:

Thank you so much for your reply. Do you know of any good, reliable websites that deal with Lactose Intolerance? Sometimes doing a random search on the web turns up unreliable information.

Thanks again for your help!

Sincerely,

David

My pleasure,

there is always Wikipedia with a lot of info:

Open Original Shared Link

And there are a lot of topics on this celiac.com forum about lactose too, because a lot of celiac have it:

https://www.celiac.com/gluten-free/index.ph...t=0&start=0

https://www.celiac.com/gluten-free/index.ph...&hl=lactose

If you have more questions, just ask. :)

Voss Newbie

Also if avoiding milk, cheese and everything else with lactose in it doesnt help you,

you might consider histamine-intolerance.

That can cause bad GI symptoms too.

I have this too and Im 100% sure its because of celiac hurting my gut over the years when I didnt know I had celiac and ate gluten.

Histamine is found in:

Cheese, Processed Meats, Bananas, Tomatoes, Tuna, Smoked Fish,Wine, Beer and other things.

Have a look at this website:

Open Original Shared Link

Open Original Shared Link

Open Original Shared Link

Open Original Shared Link

Its a commercial site for a anti-histamine supplement, but it has good info on it.

I used that suppelment and although it gives realy good relief after eating something rich in histamine it isnt a miracle pill.

Plus its quite expensive in my opinion.

So first try eating lactose-intolerant, if thats not enough try eating histamine-low foods for a while to see if that works.

No need for the expensive supplement if you avoid the foods that have a lot of histamine in them.

David Explorer

Voss:

I can

Voss Newbie
Voss:

I can’t tell you how much I appreciate your replies and you help with this. Its just been a little overwhelming, I feel also though I’ve already put so much effort into researching celiac disease. Though I’ve learned a lot, I got frustrated when I realized I’d have to research a whole new area to feel healthy again. Thanks for pointing me in the right direction!

Thanks again,

David

You're welcome, I know the feeling. :D

I have access to doctors (I live in the Netherlands), but they suck at everything which they cant give you some pill for. :angry:

So I had to diagnose myself, and the results tell me I am correct. :)

There is another intolerance you can have. This is an intolerance for salicylates and benzoates. This too has to do with Celiac.

But this is a very rare intolerance, if both avoiding lactose and histamine dont work 100%, you can take a look at that.

Lots of histamine-rich foods are rich in salicylates/benzoates too by the way. So histamine-low eating will take care of salicylates/benzoates for a great deal already.

But maybe going lactose-free is enough for you. :)


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



  • 2 months later...
BBadgero Newbie

David and Voss, great discussion here! I've been gluten-free for about 5 years and still am looking into 2ndary allergies or intolerances. I have just heard about Histame and plan on buying it for sure... I just got blood work done and both soy and yeast are culprits for me... I decided to just eat the caveman diet (www.thepaleodiet.com) and when I can muster the will power to do so, I feel well beyond 100% for very long periods of time.... I truly believe a true elimination diet is the only way to find out what it is... it is tough to stick to, but after 3 or 4 days it is easy to find out what you are not suppose to eat, etc.....

I'll try to share if Histame works for me or not.... cheers! B

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - trents replied to Larzipan's topic in Related Issues & Disorders
      42

      Has anyone had terrible TMJ/ Jaw Pain from undiagnosed Celiac?

    2. - Scott Adams replied to Larzipan's topic in Related Issues & Disorders
      42

      Has anyone had terrible TMJ/ Jaw Pain from undiagnosed Celiac?

    3. - Wheatwacked commented on Scott Adams's article in Latest Research
      6

      Study Estimates the Costs of Delayed Celiac Disease Diagnosis (+Video)

    4. - Wheatwacked replied to Larzipan's topic in Related Issues & Disorders
      42

      Has anyone had terrible TMJ/ Jaw Pain from undiagnosed Celiac?

    5. - trents replied to Ginger38's topic in Related Issues & Disorders
      1

      Shingles - Could It Be Related to Gluten/ Celiac


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,386
    • Most Online (within 30 mins)
      7,748

    TByrd
    Newest Member
    TByrd
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • trents
      Thanks for the thoughtful reply and links, Wheatwacked. Definitely some food for thought. However, I would point out that your linked articles refer to gliadin in human breast milk, not cow's milk. And although it might seem reasonable to conclude it would work the same way in cows, that is not necessarily the case. Studies seem to indicate otherwise. Studies also indicate the amount of gliadin in human breast milk is miniscule and unlikely to cause reactions:  https://www.glutenfreewatchdog.org/news/gluten-peptides-in-human-breast-milk-implications-for-cows-milk/ I would also point out that Dr. Peter Osborne's doctorate is in chiropractic medicine, though he also has studied and, I believe, holds some sort of certifications in nutritional science. To put it plainly, he is considered by many qualified medical and nutritional professionals to be on the fringe of quackery. But he has a dedicated and rabid following, nonetheless.
    • Scott Adams
      I'd be very cautious about accepting these claims without robust evidence. The hypothesis requires a chain of biologically unlikely events: Gluten/gliadin survives the cow's rumen and entire digestive system intact. It is then absorbed whole into the cow's bloodstream. It bypasses the cow's immune system and liver. It is then secreted, still intact and immunogenic, into the milk. The cow's digestive system is designed to break down proteins, not transfer them whole into milk. This is not a recognized pathway in veterinary science. The provided backup shifts from cow's milk to human breastmilk, which is a classic bait-and-switch. While the transfer of food proteins in human breastmilk is a valid area of study, it doesn't validate the initial claim about commercial dairy. The use of a Dr. Osborne video is a major red flag. His entire platform is based on the idea that all grains are toxic, a view that far exceeds the established science on Celiac Disease and non-celiac gluten sensitivity. Extraordinary claims require extraordinary evidence, and a YouTube video from a known ideological source is not that evidence."  
    • Wheatwacked
      Some backup to my statement about gluten and milk. Some background.  When my son was born in 1976 he was colicky from the beginning.  When he transitioned to formula it got really bad.  That's when we found the only pediactric gastroenterologist (in a population of 6 million that dealt with Celiac Disease (and he only had 14 patients with celiac disease), who dianosed by biopsy and started him on Nutramegen.  Recovery was quick. The portion of gluten that passes through to breastmilk is called gliadin. It is the component of gluten that causes celiac disease or gluten intolerance. What are the Effects of Gluten in Breastmilk? Gliaden, a component of gluten which is typically responsible for the intestinal reaction of gluten, DOES pass through breast milk.  This is because gliaden (as one of many food proteins) passes through the lining of your small intestine into your blood. Can gluten transmit through breast milk?  
    • trents
      I don't know of a connection. Lots of people who don't have celiac disease/gluten issues get shingles.
    • Ginger38
      I’m 43, just newly diagnosed with a horrible case of shingles last week . They are all over my face , around my eye, ear , all in my scalp. Lymph nodes are a mess. Ear is a mess. My eye is hurting and sensitive. Pain has been a 10/10+ daily. Taking Motrin and Tylenol around the clock. I AM MISERABLE. The pain is unrelenting. I just want to cry.   But Developing shingles has me a bit concerned about my immune system which also has me wondering about celiac and if there’s a connection to celiac / gluten and shingles; particularly since I haven't been 💯 gluten free because of all the confusing test results and doctors advice etc., is there a connection here? I’ve never had shingles and the gluten/ celiac  roller coaster has been ongoing for a while but I’ve had gluten off and on the last year bc of all the confusion  
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.