Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Additional Allergy With celiac disease?


David

Recommended Posts

David Explorer

Hi All:

I


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Voss Newbie

Lactose intolerance can give you bad GI symptoms yes.

Lot of celiac have it, because when the gut gets messed up by gluten, the gut loses its ability to digest lactose bacause the gut can no longer make lactase.

If you are gluten free for a while, your gut restores and is again able to make lactase and therefor digest lactose.

How long that takes on average I dont know.

Kraft Cheese has a lot of lactose in it, I reckon.

There are supplements with lactase in it so you can eat lactose after taking such a supplement, but those supplements have sometimes maltodextrin in it, which can come from wheat and therefor cause problems for very sensitive celiacs.

David Explorer

Voss:

Thank you so much for your reply. Do you know of any good, reliable websites that deal with Lactose Intolerance? Sometimes doing a random search on the web turns up unreliable information.

Thanks again for your help!

Sincerely,

David

Voss Newbie
Voss:

Thank you so much for your reply. Do you know of any good, reliable websites that deal with Lactose Intolerance? Sometimes doing a random search on the web turns up unreliable information.

Thanks again for your help!

Sincerely,

David

My pleasure,

there is always Wikipedia with a lot of info:

Open Original Shared Link

And there are a lot of topics on this celiac.com forum about lactose too, because a lot of celiac have it:

https://www.celiac.com/gluten-free/index.ph...t=0&start=0

https://www.celiac.com/gluten-free/index.ph...&hl=lactose

If you have more questions, just ask. :)

Voss Newbie

Also if avoiding milk, cheese and everything else with lactose in it doesnt help you,

you might consider histamine-intolerance.

That can cause bad GI symptoms too.

I have this too and Im 100% sure its because of celiac hurting my gut over the years when I didnt know I had celiac and ate gluten.

Histamine is found in:

Cheese, Processed Meats, Bananas, Tomatoes, Tuna, Smoked Fish,Wine, Beer and other things.

Have a look at this website:

Open Original Shared Link

Open Original Shared Link

Open Original Shared Link

Open Original Shared Link

Its a commercial site for a anti-histamine supplement, but it has good info on it.

I used that suppelment and although it gives realy good relief after eating something rich in histamine it isnt a miracle pill.

Plus its quite expensive in my opinion.

So first try eating lactose-intolerant, if thats not enough try eating histamine-low foods for a while to see if that works.

No need for the expensive supplement if you avoid the foods that have a lot of histamine in them.

David Explorer

Voss:

I can

Voss Newbie
Voss:

I can’t tell you how much I appreciate your replies and you help with this. Its just been a little overwhelming, I feel also though I’ve already put so much effort into researching celiac disease. Though I’ve learned a lot, I got frustrated when I realized I’d have to research a whole new area to feel healthy again. Thanks for pointing me in the right direction!

Thanks again,

David

You're welcome, I know the feeling. :D

I have access to doctors (I live in the Netherlands), but they suck at everything which they cant give you some pill for. :angry:

So I had to diagnose myself, and the results tell me I am correct. :)

There is another intolerance you can have. This is an intolerance for salicylates and benzoates. This too has to do with Celiac.

But this is a very rare intolerance, if both avoiding lactose and histamine dont work 100%, you can take a look at that.

Lots of histamine-rich foods are rich in salicylates/benzoates too by the way. So histamine-low eating will take care of salicylates/benzoates for a great deal already.

But maybe going lactose-free is enough for you. :)


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



  • 2 months later...
BBadgero Newbie

David and Voss, great discussion here! I've been gluten-free for about 5 years and still am looking into 2ndary allergies or intolerances. I have just heard about Histame and plan on buying it for sure... I just got blood work done and both soy and yeast are culprits for me... I decided to just eat the caveman diet (www.thepaleodiet.com) and when I can muster the will power to do so, I feel well beyond 100% for very long periods of time.... I truly believe a true elimination diet is the only way to find out what it is... it is tough to stick to, but after 3 or 4 days it is easy to find out what you are not suppose to eat, etc.....

I'll try to share if Histame works for me or not.... cheers! B

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - knitty kitty replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    2. - Jane02 replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    3. - knitty kitty replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    4. 0

      Penobscot Bay, Maine: Nurturing Gluten-Free Wellness Retreat with expert celiac dietitian, Melinda Dennis

    5. - Scott Adams replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,329
    • Most Online (within 30 mins)
      7,748

    klkarius
    Newest Member
    klkarius
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • knitty kitty
      @Jane02, I hear you about the kale and collard greens.  I don't do dairy and must eat green leafies, too, to get sufficient calcium.  I must be very careful because some calcium supplements are made from ground up crustacean shells.  When I was deficient in Vitamin D, I took high doses of Vitamin D to correct the deficiency quickly.  This is safe and nontoxic.  Vitamin D level should be above 70 nmol/L.  Lifeguards and indigenous Pacific Islanders typically have levels between 80-100 nmol/L.   Levels lower than this are based on amount needed to prevent disease like rickets and osteomalacia. We need more thiamine when we're physically ill, emotionally and mentally stressed, and if we exercise like an athlete or laborer.  We need more thiamine if we eat a diet high in simple carbohydrates.  For every 500 kcal of carbohydrates, we need 500-1000 mg more of thiamine to process the carbs into energy.  If there's insufficient thiamine the carbs get stored as fat.  Again, recommended levels set for thiamine are based on minimum amounts needed to prevent disease.  This is often not adequate for optimum health, nor sufficient for people with absorption problems such as Celiac disease.  Gluten free processed foods are not enriched with vitamins like their gluten containing counterparts.  Adding a B Complex and additional thiamine improves health for Celiacs.  Thiamine is safe and nontoxic even in high doses.  Thiamine helps the mitochondria in cells to function.  Thiamine interacts with each of the other B vitamins.  They are all water soluble and easily excreted if not needed. Interesting Reading: Clinical trial: B vitamins improve health in patients with coeliac disease living on a gluten-free diet https://pubmed.ncbi.nlm.nih.gov/19154566/ Safety and effectiveness of vitamin D mega-dose: A systematic review https://pubmed.ncbi.nlm.nih.gov/34857184/ High dose dietary vitamin D allocates surplus calories to muscle and growth instead of fat via modulation of myostatin and leptin signaling https://pubmed.ncbi.nlm.nih.gov/38766160/ Safety of High-Dose Vitamin D Supplementation: Secondary Analysis of a Randomized Controlled Trial https://pubmed.ncbi.nlm.nih.gov/31746327/ Vitamins and Celiac Disease: Beyond Vitamin D https://pmc.ncbi.nlm.nih.gov/articles/PMC11857425/ Investigating the therapeutic potential of tryptophan and vitamin A in modulating immune responses in celiac disease: an experimental study https://pubmed.ncbi.nlm.nih.gov/40178602/ Investigating the Impact of Vitamin A and Amino Acids on Immune Responses in Celiac Disease Patients https://pmc.ncbi.nlm.nih.gov/articles/PMC10814138/
    • Jane02
      Thank you so much @knitty kitty for this insightful information! I would have never considered fractionated coconut oil to be a potential source of GI upset. I will consider all the info you shared. Very interesting about the Thiamine deficiency.  I've tracked daily averages of my intake in a nutrition software. The only nutrient I can't consistently meet from my diet is vitamin D. Calcium is a hit and miss as I rely on vegetables, dark leafy greens as a major source, for my calcium intake. I'm able to meet it when I either eat or juice a bundle of kale or collard greens daily haha. My thiamine intake is roughly 120% of my needs, although I do recognize that I may not be absorbing all of these nutrients consistently with intermittent unintentional exposures to gluten.  My vitamin A intake is roughly 900% (~6400 mcg/d) of my needs as I eat a lot of sweet potato, although since it's plant-derived vitamin A (beta-carotene) apparently it's not likely to cause toxicity.  Thanks again! 
    • knitty kitty
      Hello, @Jane02,  I take Naturewise D 3.  It contains olive oil.   Some Vitamin D supplements, like D Drops, are made with fractionated coconut oil which can cause digestive upsets.  Fractionated coconut oil is not the same as coconut oil used for cooking.  Fractionated coconut oil has been treated for longer shelf life, so it won't go bad in the jar, and thus may be irritating to the digestive system. I avoid supplements made with soy because many people with Celiac Disease also react to soy.  Mixed tocopherols, an ingredient in Thornes Vitamin D, may be sourced from soy oil.  Kirkland's has soy on its ingredient list. I avoid things that might contain or be exposed to crustaceans, like Metagenics says on its label.  I have a crustacean/shellfish/fish allergy.  I like Life Extension Bioactive Complete B Complex.  I take additional Thiamine B 1 in the form Benfotiamine which helps the intestines heal, Life Extension MegaBenfotiamine. Thiamine is needed to activate Vitamin D.   Low thiamine can make one feel like they are getting glutened after a meal containing lots of simple carbohydrates like white rice, or processed gluten free foods like cookies and pasta.   It's rare to have a single vitamin deficiency.  The water soluble B Complex vitamins should be supplemented together with additional Thiamine in the form Benfotiamine and Thiamine TTFD (tetrahydrofurfuryl disulfide) to correct subclinical deficiencies that don't show up on blood tests.  These are subclinical deficiencies within organs and tissues.  Blood is a transportation system.  The body will deplete tissues and organs in order to keep a supply of thiamine in the bloodstream going to the brain and heart.   If you're low in Vitamin D, you may well be low in other fat soluble vitamins like Vitamin A and Vitamin K. Have you seen a dietician?
    • Scott Adams
      I do not know this, but since they are labelled gluten-free, and are not really a product that could easily be contaminated when making them (there would be not flour in the air of such a facility, for example), I don't really see contamination as something to be concerned about for this type of product. 
    • trents
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.