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Female Question...


Mrs. Smith

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Mrs. Smith Explorer

I noticed that my "gluten" symptoms seem to come back when Im PMS-ing. For the whole week before my period I get D, muscle aches, eczema outbreaks, brain fog, hot flashes, bursts of energy followed by fatigue. What is going on? Is it my vitamin difficiencies? I am gluten free for sure now (Ive learned all the tricks...I think) Its been 5 mos. and this happens every month. Any suggestions? Advice? My periods are less heavy and crampy and always on time which is a benefit but once I start to feel good again...here it comes! Its just annoying, today Im sweaty and my ass muscles are sore but I cleaned my whole house top to bottom. What a rollercoaster!!


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MySuicidalTurtle Enthusiast

That sounds kind of just like PMS. Did you have different symptoms of it before going gluten-free?

samcarter Contributor
I noticed that my "gluten" symptoms seem to come back when Im PMS-ing. For the whole week before my period I get D, muscle aches, eczema outbreaks, brain fog, hot flashes, bursts of energy followed by fatigue. What is going on? Is it my vitamin difficiencies? I am gluten free for sure now (Ive learned all the tricks...I think) Its been 5 mos. and this happens every month. Any suggestions? Advice? My periods are less heavy and crampy and always on time which is a benefit but once I start to feel good again...here it comes! Its just annoying, today Im sweaty and my ass muscles are sore but I cleaned my whole house top to bottom. What a rollercoaster!!

After going gluten free, I noticed that my period was worse when I had eaten dairy the week prior. I tested my theory; I cut dairy out of my diet during one cycle and i had a cramp-free period. The next cycle I ate some dairy the day or two before my period, and it was horrible. If you haven't cut out dairy yet, you might try it--I think those of us with gluten sensitivities and celiac are also sensitive to dairy; like gluten, it's an inflammatory food.

Mrs. Smith Explorer
That sounds kind of just like PMS. Did you have different symptoms of it before going gluten-free?

The symptoms were also D and headaches. It just seems alot worse now, maybe Im just more concience of it now after having to pay so much attention to what my body is doing.

momof6incfl Newbie

It all sounds pretty familiar to me too. I would lose more,larger clots,last longer each month. I had fibroids so it made sense, last month I bled for a month and after intese stomach pain/vomititing coffee like grounds I went to the er and they kept me a week. I had 2 surgeries done, endometriol ablation, d&c,and hysteroscopy. Im 1/10 of a point from needing a blood transfusion and I need to get iron infusions weekly now and b-12 shots. If this doesnt work, I need a complete hystectomy.So far Ive not had any more bleeding at all. I dont know if I will ever even get another period or not, but I can still get pregnant, I wouldnt be able to carry the baby full term. Ive lost 2 in the past and Im rather done, Im too sick for more babies and Im almost 43. My biopsies are all abnormal, not cancerous but not normal either. I have Endometriosis in addition to the cysts and fibroids. I also have Hashimotos and am on steroids which gave me diabetes,in addition to the crohns and celiac. My 6 kids have celiac too. I let things go because theres too much going on. Dont do that. Make an appt. with your dr. as soon as you can. Write down your concerns and have them addressed.Dont let things go. Ask for specifics of when is such and such crossed over to be a concern,when is it normal and write it down. Keep track of your symptoms and what you see that makes them worse and better. I wish you well. Lynne

Mrs. Smith Explorer
It all sounds pretty familiar to me too. I would lose more,larger clots,last longer each month. I had fibroids so it made sense, last month I bled for a month and after intese stomach pain/vomititing coffee like grounds I went to the er and they kept me a week. I had 2 surgeries done, endometriol ablation, d&c,and hysteroscopy. Im 1/10 of a point from needing a blood transfusion and I need to get iron infusions weekly now and b-12 shots. If this doesnt work, I need a complete hystectomy.So far Ive not had any more bleeding at all. I dont know if I will ever even get another period or not, but I can still get pregnant, I wouldnt be able to carry the baby full term. Ive lost 2 in the past and Im rather done, Im too sick for more babies and Im almost 43. My biopsies are all abnormal, not cancerous but not normal either. I have Endometriosis in addition to the cysts and fibroids. I also have Hashimotos and am on steroids which gave me diabetes,in addition to the crohns and celiac. My 6 kids have celiac too. I let things go because theres too much going on. Dont do that. Make an appt. with your dr. as soon as you can. Write down your concerns and have them addressed.Dont let things go. Ask for specifics of when is such and such crossed over to be a concern,when is it normal and write it down. Keep track of your symptoms and what you see that makes them worse and better. I wish you well. Lynne

Im sorry to hear about all this! I am clear from the DR and Gyno so I should be ok. My actual periods have actually improved. As a teenager I had severe cramps and fainting spells. Now Im 29, gluten free and my periods are shorter and less heavy. Im just noticing many symptoms of PMS now. I am on b12, prenatals, cal/mag, and various digestion supplements. Lets hope in a few months everything clears up a little bit. I think a certain amount of PMS is normal for most women. I am now keeping a food and symtom diary everyday so I can see if I notice a pattern. Thankfully I have no other autoimmune disease that they can find and Ive been tested for EVERYTHING! They think I just have celiac and am on the road to wellness. Thank you for your concern. I hope things go better for you as well! Stay Heatlhy. :)

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    • Scott Adams
      This is a very common question, and the most important thing to know is that no, Guinness is not considered safe for individuals with coeliac disease. While it's fascinating to hear anecdotes from other coeliacs who can drink it without immediate issues, this is a risky exception rather than the rule. The core issue is that Guinness is brewed from barley, which contains gluten, and the standard brewing process does not remove the gluten protein to a level safe for coeliacs (below 20ppm). For someone like you who experiences dermatitis herpetiformis, the reaction is particularly significant. DH is triggered by gluten ingestion, even without immediate gastrointestinal symptoms. So, while you may not feel an instant stomach upset, drinking a gluten-containing beer like Guinness could very well provoke a flare-up of your skin condition days later. It would be a gamble with a potentially uncomfortable and long-lasting consequence. Fortunately, there are excellent, certified gluten-free stouts available now that can provide a safe and satisfying alternative without the risk.
    • MogwaiStripe
      Interestingly, this thought occurred to me last night. I did find that there are studies investigating whether vitamin D deficiency can actually trigger celiac disease.  Source: National Institutes of Health https://pmc.ncbi.nlm.nih.gov/articles/PMC7231074/ 
    • Butch68
      Before being diagnosed coeliac I used to love Guinness. Being made from barley it should be something a coeliac shouldn’t drink. But taking to another coeliac and they can drink it with no ill effects and have heard of others who can drink it too.  is this everyone’s experience?  Can I drink it?  I get dermatitis herpetiformis and don’t get instant reactions to gluten so can’t try it to see for myself. 
    • trents
      NCGS does not cause damage to the small bowel villi so, if indeed you were not skimping on gluten when you had the antibody blood testing done, it is likely you have celiac disease.
    • Scott Adams
      I will assume you did the gluten challenge properly and were eating a lot of gluten daily for 6-8 weeks before your test, but if not, that could be the issue. You can still have celiac disease with negative blood test results, although it's not as common:  Clinical and genetic profile of patients with seronegative coeliac disease: the natural history and response to gluten-free diet: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5606118/  Seronegative Celiac Disease - A Challenging Case: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9441776/  Enteropathies with villous atrophy but negative coeliac serology in adults: current issues: https://pubmed.ncbi.nlm.nih.gov/34764141/  Approximately 10x more people have non-celiac gluten sensitivity than have celiac disease, but there isn’t yet a test for NCGS. If your symptoms go away on a gluten-free diet it would likely signal NCGS.
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