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Celiac Blood Test Pending...

turbo

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turbo Newbie
turbo
Posted

First thing I read online is that these tests look for antibodies. Since I'd already suspected a wheat intolerance issue, I'd greatly limited wheat in my diet (for months prior to this). I had some the weekend before the blood was taken (4 and 5 days before), will that alone be enough to have the antibodies present or should I expect a possible false negative?

I told the doctors I'd all but eliminated wheat from my diet...

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MySuicidalTurtle Enthusiast
MySuicidalTurtle
Posted

Welcome to the board!

You really need to be eating gluten for a few ways or weeks to get the right test result. Maybe you were eating enough, though.

turbo Newbie
turbo
Posted
  • Author
Welcome to the board!

You really need to be eating gluten for a few ways or weeks to get the right test result. Maybe you were eating enough, though.

Yeah, that's what I was afraid of. Now if the result is negative, I'm always going to wonder...

MySuicidalTurtle Enthusiast
MySuicidalTurtle
Posted

If you go 100% gluten-free for awhile (weeks or months) and see an improvement then you will know. If you want an official doctor diagnosis, then you have to eat gluten everyday for at least 2 weeks.

turbo Newbie
turbo
Posted
  • Author
If you go 100% gluten-free for awhile (weeks or months) and see an improvement then you will know. If you want an official doctor diagnosis, then you have to eat gluten everyday for at least 2 weeks.

If this thing comes up negative I think I will do that and get a second opinion. Like I said, I've kept a gluten to very tiny levels in my diet for some time (maybe average having a little of it once a week). I'm must admit, I'm paranoid that if I bother them with this concern re: the test, they'll think I'm a hypochondriac.

I'm just really interested b/c after the doctor suggested it (b/c of my wheat-intolerance-like symptoms and arthritis) Thursday, I looked it up and a lot of little things I have might line up for it... poor digestion of wheat, arthritis since age 14, ADD-like brain fog, fatigue&mild depression, geographic tongue...

I also am not sure if this is normal for people with Celiac: do people tend to feel foggy right after a big wheat/pasta meal, and then get a throbbing headache?

Anyway, thanks, I appreciate your replies.

MySuicidalTurtle Enthusiast
MySuicidalTurtle
Posted

That sounds like a very common Celiac reaction! The brain fog can be so annoying and bothersome!

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      How do I contact someone at celiac.com concerning the cessation of my weekly e-newsletter? I had been receiving it regularly for years. When I tried to sign-up on the website, my email was not accepted. I tried again with a new email address and that was rejected as well. Thank you in advance!
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